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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Anyone want to try and diagnose me since doctors can’t?

177 replies

FcukedUpFeet · 01/03/2025 18:38

So I’ve seen several doctors and so far they don’t have a clue, so I thought I’d try and see if anyone on here is bored on a Saturday night and wants to give it a go?

in October last year I went on a hiking trip. Feet got cold and wet, no damage or blisters, just wet. A few days later I got sores on my toes, no where else, just the toes. After 6 weeks, I took some pictures and went to the pharmacist. Pharmacist said chilblains and sold me tiger balm. This didn’t work. Toes started getting very cold and going purple. Sores continued on toes. To be clear- not the feet. Literally just my freezing purple toes. By mid December I gave up on the tiger balm and tried to make a doctors appointment. Except it was too close to Christmas so the appointment wasn’t until the middle of January. By now the sores are either healing and pealing, or rubbing on my toes and bleeding. Doctor looked at my toes and said they’d never seen anything like it. I queried Raynauds syndrome but was told they didn’t think so. The doctor googled Raynauds while I was there and said because my toes aren’t going white, and fingers aren’t affected, it’s unlikely. They checked my pulse in my feet and it’s fine. So I was sent for blood tests.

Blood tests came back to say my white blood cell count is low, not dangerously low, but not where it should be. That’s all it found. So doctor said I don’t need another appointment yet, just another blood test. I had another test on Friday and I’m just waiting for the results. But the doctor clearly doesn’t know what it is. So wise mumsnetters. Any idea what the fuck is wrong with my feet? They’re so painful, shoes hurt and rub until my toes bleed. I’m living in multiple pairs of granny slipper socks and my toes are still so cold they’re purple!

I can add pictures if people want to see (they’re really gross so didn’t want to add at the beginning)

OP posts:
VWT5 · 01/03/2025 20:04

SquirrelyWirrally · 01/03/2025 19:12

Common in army personel, especially people of African heritage who get cold but not frozen on exercise. Which fits how yours started

Another vote for cold injury.
I had both thighs similar (prolonged cold wet exposure in Cairngorms (also ex military)).
A very senior hospital doctor didn’t know why I had black thighs.
He later casually swung by my desk after seeking advice elsewhere to say it was “frostbite”
The discolouration and tenderness resolved after 3 years I think.

ichifanny · 01/03/2025 20:08

damage from frostbite

ColonelRhubarbBikini · 01/03/2025 20:12

Looks very much like the chilblains I get on my (raynauds affected) toes.

Lots of medical professionals don’t know an awful lot about chilblains I find.

I recently went to a private podiatrist who was fantastic and she recommended hirudoid cream or gel which you can get from behind the pharmacy counter or online so I’m gonna try it out.

FcukedUpFeet · 01/03/2025 20:14

Hi, thanks all for all the advice. Lots of people are suggesting frostbite- it wasn’t that cold, definitely not zero or even close to that. Unless it was chilblains and I’ve caught frostbite since during winter?

and for the hike, it’s nowhere near military sort of hiking, more of a slow wander to the next pub sort of situation. Not that I’m a drinker, I drink two or three times a year so it’s not alcohol related

OP posts:
Viviennemary · 01/03/2025 20:20

I thought covid toes. Plenty about it on the Internet

GoldPoster · 01/03/2025 20:20

Bit off the wall but have you considered trench foot?

DrFoxtrot · 01/03/2025 20:21

I'd say chilblains and give you a trial of nifedipine tablets to see if it helps.

terracelane23 · 01/03/2025 20:21

My hands look like that and nurse suggested Raynards. I wear heated socks so I don't get it in my feet.

mamaison · 01/03/2025 20:21

They look like when I would get chilblains. Runs in my family with EDS//Pots/Raynauds.

I remember same thing happening to a family member on an outward bound style residential. His got infected like yours and took a while to recover.

I wonder if yours will resolve when it gets warmer?

I find Chinese Drs quite good at helping when I am having issues like this and there is no clear course of treatment with conventional medicine. It has a focus on restoring flow.

crackfoxy · 01/03/2025 20:22

See a podiatrist.

Maia77 · 01/03/2025 20:24

Looks like trench foot.

Anewuser · 01/03/2025 20:32

Looks like chilblains I used to get years ago.

Eventually, tried old wives tale and peed on my feet.

Yes, disgusting but got rid of them and haven’t come back for thirty years.

Newlittlerescue · 01/03/2025 20:33

Mumsnet at its best - I hope the suggestions here help you work out what is wrong OP; they look very painful.

I'd recommend 'Diagnosis' on Netflix for a documentary series along the lines of this thread (crowdsourcing to diagnose medical conditions that have baffled doctors).

Floralnomad · 01/03/2025 20:34

I know nothing about covid toes or chilblains but for what it’s worth I have Raynauds and my fingers / toes do not follow the usual colour pattern .

Littlejellyuk · 01/03/2025 20:37

Anewuser · 01/03/2025 20:32

Looks like chilblains I used to get years ago.

Eventually, tried old wives tale and peed on my feet.

Yes, disgusting but got rid of them and haven’t come back for thirty years.

Does anyone else want OP to now try peeing on their feet? A golden shower solution? Nope? Just me then 😆 🤣 😂

Rosesducks · 01/03/2025 20:38

Your symptoms cold, purple, ulcerated toes, a low white blood cell count, and a history of COVID point to something vascular, possibly autoimmune, and certainly not to be ignored.

You need a rheumatologist and a vascular specialist.

Demand tests that matter ANA panels, cryoglobulin levels, inflammatory markers because if this is an undiagnosed vascular or autoimmune issue, waiting will only make things worse.

Keep your toes warm, dry, and protected, and don’t dismiss the possibility that COVID has left its mark on your circulation.

TitusMoan · 01/03/2025 20:38

GlessJinn · 01/03/2025 18:52

If it is chilblains, try dabbing on methylated spirits (the purple stuff), I seem to remember having that done as a kid.

Meths?!! That’s not purple. Do you mean gentian violet?

Binfire · 01/03/2025 20:40

I hope you can get to the bottom if it, they look terribly painful!

It could end up being a weird post viral thing, viruses can bring with them all sorts of strange after effects. Once after a virus mine and my son’s hands came out in prickly heat type spots for days and then the top layer of skin peeled off completely over the following weeks. It was so weird and the GP just said it was a post viral thing.

Hopefully it’s nothing too nasty and you can get back to normal soon.

Brickiscool · 01/03/2025 20:42

My daughter has COVID toes.

Initially she lost all feeling , then it came back and the skin started to peel off. Three years on they are fine except the go cold and purple occasionally

Chuchoter · 01/03/2025 20:43

They look like chilblains to me.

You won't like this but wee in a jug and then place feet in a plastic bowl and pour in your urine.

It's a very old cure but it works.

Anewuser · 01/03/2025 20:44

Littlejellyuk · 01/03/2025 20:37

Does anyone else want OP to now try peeing on their feet? A golden shower solution? Nope? Just me then 😆 🤣 😂

There you go, @Chuchoter got it.

dawngreen · 01/03/2025 20:47

It sounds like your feet might be experiencing a condition caused by prolonged exposure to cold and wet conditions, such as trench foot or a fungal infection like athlete's foot. These can lead to symptoms like redness, sores, peeling skin, and discomfort. Here are some steps you can take:

  1. Dry and Warm Your Feet: Remove wet footwear and socks immediately. Gently dry your feet and keep them warm.
  2. Clean and Moisturize: Wash your feet with mild soap and lukewarm water, then apply a fragrance-free moisturizer to prevent further dryness.
  3. Avoid Tight Shoes: Wear loose, breathable footwear to reduce irritation.
  4. Antifungal Creams: If you suspect a fungal infection, over-the-counter antifungal creams might help.
  5. Seek Medical Advice: If the condition persists or worsens, consult a healthcare professional to rule out more serious issues like infections or conditions like erythromelalgia.
Allmarbleslost · 01/03/2025 20:47

Can you see a podiatrist? They know feet better than a GP. I've seen one recently and it cost £40

Nothatgingerpirate · 01/03/2025 20:48

This actually sounds odd, but looking at what they ruled out, it could be what they call "COVID toes"
in the US.
Not a joke, apparently most amongst teenagers and people who had the virus 🦠 without symptoms.
Hope it helps, Google it up.