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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think this is diabolical?

79 replies

ChaosAndToast · 14/02/2025 12:27

I have a child whose 4 and they are starting school in September - they have a rare genetic disorder, autism, GDD (currently mentality has been scored between 12-15m) hypermobility and low muscle tone.

He can't walk but is mobile, he walks around on his knees or crawls. Refuses to use walking aids as becomes very distress. He is limited verbal, he can communicate his basic needs (want drink), he isn't potty trained and doesn't understand when he needs to be or knows he needs to be, he has social and emotional needs - he still struggles every morning going to nursery and keeps away from everyone and everything, no awareness of danger - you get the picture.

He has an EHCP.

The local authority have decided he's absolutely fine to attend a mainstream school, one we visited and well, they had a lot of stairs and the headteacher made it very clear he wouldn't be able to support my child in any capacity.

I know it's a money thing and everyone's struggling but it's so shit. I have no idea how my child is going to cope.

OP posts:
ChaosAndToast · 19/02/2025 12:36

I wrote to my MP about it all in a moment of madness haha and they've written to the director of the EHCP something - I don't think it'll do anything and I think we'll still need to go to court but it's nice to feel heard.

I did contact Sendias and no one had gotten back to me and no matter when I call they don't answer so I've filled in the appeal myself using IPSEA etc and will update the evidence as it comes in.

I think my biggest piece of advice evidence is probably the mainstream school saying they can't meet his needs so waiting for that and a few other supporting documents as evidence.

OP posts:
KindLemur · 21/02/2025 08:12

ChaosAndToast · 19/02/2025 12:36

I wrote to my MP about it all in a moment of madness haha and they've written to the director of the EHCP something - I don't think it'll do anything and I think we'll still need to go to court but it's nice to feel heard.

I did contact Sendias and no one had gotten back to me and no matter when I call they don't answer so I've filled in the appeal myself using IPSEA etc and will update the evidence as it comes in.

I think my biggest piece of advice evidence is probably the mainstream school saying they can't meet his needs so waiting for that and a few other supporting documents as evidence.

Yes well done.

Superhansrantowindsor · 21/02/2025 08:17

YANBU. The people who make these decisions are utterly clueless. And at the centre is a child who deserves to be treated fairly.

ChaosAndToast · 25/02/2025 13:54

It honest gets better and better.

The council director has responded to my MP with outright lies basically luckily I have evidence that proves they are lying and have sent it to the director and the MP.

I'm going to have to go to tribunal but I think they're going to embarrass themselves a bit if they continue lying.

It's so unnecessary and stressful.

OP posts:
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