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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be concerned about what Liz Kendall is up to with disability benefits?

1000 replies

Locutus2000 · 01/02/2025 13:54

The Times reporting just how enthusiastic Labour are about targeting the disabled.

I can only hope they are getting the worst ideas out there first, if not I dread to think what is coming in the upcoming review.

I was confident Labour would at worst be no worse than the Tories.

I was wrong.

Free archive link here.

Long-term sick will need to look for jobs in benefits overhaul

Claimants could face cuts of £5,000 a year as government prepares for rows with backbenchers and campaigners over bringing down £65bn sickness bill

https://www.thetimes.com/uk/politics/article/long-term-sick-will-need-to-look-for-jobs-in-benefits-overhaul-kzxr3hjpw

OP posts:
Thread gallery
20
EarlyM0rnibg · 03/02/2025 08:45

SlapTheMelon · 03/02/2025 08:31

Then why is the rest of the world getting in fine? What nonsense.

It isn’t though, there are similar issues in other countries.

pointythings · 03/02/2025 08:49

I do think that having a contributions based benefit system would help. Where I am from, unemployment benefits are linked to your last job, both in terms of duration and amount. It means you aren't instantly flung into financial disaster, and the incentive to work is greater. There is a separate system for ill health and disability.

PandoraSox · 03/02/2025 08:58

pointythings · 03/02/2025 08:49

I do think that having a contributions based benefit system would help. Where I am from, unemployment benefits are linked to your last job, both in terms of duration and amount. It means you aren't instantly flung into financial disaster, and the incentive to work is greater. There is a separate system for ill health and disability.

I think that would make sense. At the mentioned all people get in terms of contribution based unemployment benefits is £90 a week for six months, no matter how long they have worked for.

Sushu · 03/02/2025 09:49

WeWillGetThereInTheEnd · 02/02/2025 22:44

All this frothing at the mouth, that the UK can’t afford disability benefits - it’s estimated the real cost of public sector:

https://iea.org.uk/media/public-sector-pensions-cost-57bn-per-year-more-than-is-declared-finds-new-iea-research/

Why don’t posters suggest public sector pensions are brought in line with the private sector? Say 4% employees contributions and 4% employers?

Its all disability bashing again!

They’ll have to raise salaries and perks in line with the private sector then. It won’t save any money. There will be a mass exodus to the private sector. The pension is the only perk of my LA job right now.

Sushu · 03/02/2025 09:50

Tangerinenets · 03/02/2025 08:25

My adult son is disabled, needs 24/7 care . He gets the highest rate of UC £809 per month and then pays £156 per week to social care as his contribution to his care package. This leaves him with practically nothing. Luckily we are able to support him financially but the system needs looking at definitely.

Is your son in residential care?

pointythings · 03/02/2025 09:53

PandoraSox · 03/02/2025 08:58

I think that would make sense. At the mentioned all people get in terms of contribution based unemployment benefits is £90 a week for six months, no matter how long they have worked for.

And that's bananas. In the Netherlands it's up to 75% of last wage, and you get one month for every full year worked. When it runs out, it drops but it helps bridge the gap between jobs and makes it really clear that you're better off working.

Marilyn17 · 03/02/2025 09:54

@Tangerinenets Does he claim PIP as well or is it just UC? If he claims PIP then someone could claim Carer's Allowance to help look after him. Apologies if you know all this but you only mentioned UC.

Feelingathomenow · 03/02/2025 10:13

pointythings · 03/02/2025 09:53

And that's bananas. In the Netherlands it's up to 75% of last wage, and you get one month for every full year worked. When it runs out, it drops but it helps bridge the gap between jobs and makes it really clear that you're better off working.

That sounds a great system - it so unfair if you have worked all your life the. Lose everything I’d say the form you work for goes under, yet someone who has never worked sits there and gets everything paid for them

Frillysweetpea · 03/02/2025 10:22

JoyousGreyOrca · 03/02/2025 00:39

You do know suicide rate is highest in middle aged women and men, not young people?

I am saying that we have a generation of young people who will mature without the skills and resilience or the social conditions to function effectively as adults. Sadly, I expect the culmination of this may be increased suicide rates down the line, not necessarily during early adulthood.

Nanny1965 · 03/02/2025 10:37

There's a forum Called .. benefits and work. It's run by benefit advisors and is very good. Maybe worth a look to save any panic.

WeWillGetThereInTheEnd · 03/02/2025 10:50

Sushu · 03/02/2025 09:49

They’ll have to raise salaries and perks in line with the private sector then. It won’t save any money. There will be a mass exodus to the private sector. The pension is the only perk of my LA job right now.

Go where? Employers in the private sector are either pausing recruitment or making redundancies, in preparation for the increase in NI’ers and the NMW?

Kitten1982 · 03/02/2025 10:51

This has been stopped by the courts as the Tory’s consultation process was unlawful. I think they’ll face other lawful challenges if they try to continue with it after a more in depth process. I know i couldn’t afford to stay alive if i lost my PIP. I’m mostly bed bound. I also have a young adult learning disabled son. We combine our money to keep everything afloat as my other two are at college, but we just wouldn’t be able to if they stripped us of PIP.

The consultation completely ignored that, as disabled people, we have added expenses that can’t just be covered by a catalogue. It won’t help me with the increased costs i have regarding gas and electric, it won’t help me with the limited special diet I need, it won’t help me when i need to order from somewhere like Deliveroo because something unexpectedly ran out, it won’t help me with the added detergent i need, or the more water i have to use. It sure as won’t help me with having to pay for services to cover things i can’t do (wash the upstairs windows, mow the lawns, taxis everywhere). It’s cruel to think there’s anything morally justifiable about it.

I didn’t vote for Labour because i knew they would screw over disabled people. But the top article refers to a Tory policy and consultation process. Now that’s been stopped and a proper consultation will take place- and any disabled people reading this, please write to the consultation and explain how this would impact you- the policy will be changed. I don’t trust how it will be changed, but i think it will differ from the Tory green paper

pointythings · 03/02/2025 10:52

WeWillGetThereInTheEnd · 03/02/2025 10:50

Go where? Employers in the private sector are either pausing recruitment or making redundancies, in preparation for the increase in NI’ers and the NMW?

You make it sound as if 100% of private sector employers are doing this. Don't catastrophise.

Kitten1982 · 03/02/2025 10:56

Feelingathomenow · 03/02/2025 10:13

That sounds a great system - it so unfair if you have worked all your life the. Lose everything I’d say the form you work for goes under, yet someone who has never worked sits there and gets everything paid for them

My son has never worked. He is moderately learning disabled (meaning his IQ is between 30 and 70), autism, ADHD, processing skills disorder, and multiple other things besides. The people who’ve worked all their life and then become disabled are not more virtuous and deserving than those who were born with severe disabilities. I don’t know if you intended to sound that way, but i can’t fathom what else you could possibly have meant. I became disabled as a child, and managed some periods of work, but I’ve been out of it more than in it because of my health. We mainly relied on my husband’s income but I left him due to abuse. So now we’re totally reliant on benefits. Are we bad people because we haven’t/ have barely worked because we’re very sick? Do you know how hard it is to even convince an employer to take a chance on you in the first place when your disability is visible?

Marilyn17 · 03/02/2025 10:58

@Feelingathomenow But do they really just sit there and get everything paid for them when they've never worked a day in their lives? We'd never claimed benefits until my dh became ill and the process you have to go through to actually get awarded anything is extensive and exhausting. You are only excused from work after a thorough interview, where you have to provide medical evidence. That's just for UC, applying for PIP is a whole new nightmare of it's own. There are sanctions (benefits stopped) if people don't turn up for meetings with their work coach and don't spend enough time going for interviews and searching for jobs. If there are people sat at home doing none of this, then it's the work coaches who need looking at for not doing their jobs properly, its their job to make sure they aren't sat at home doing nothing and that they are actively seeking employment and attending work preparation training sessions.

XenoBitch · 03/02/2025 11:04

Kitten1982 · 03/02/2025 10:56

My son has never worked. He is moderately learning disabled (meaning his IQ is between 30 and 70), autism, ADHD, processing skills disorder, and multiple other things besides. The people who’ve worked all their life and then become disabled are not more virtuous and deserving than those who were born with severe disabilities. I don’t know if you intended to sound that way, but i can’t fathom what else you could possibly have meant. I became disabled as a child, and managed some periods of work, but I’ve been out of it more than in it because of my health. We mainly relied on my husband’s income but I left him due to abuse. So now we’re totally reliant on benefits. Are we bad people because we haven’t/ have barely worked because we’re very sick? Do you know how hard it is to even convince an employer to take a chance on you in the first place when your disability is visible?

We are just expected to starve.
Benefits are not a reward for working hard at some point, or paying in. There was a thread on here a while back about how you can't claim UC if you have so much in savings. Some people (who had savings) were actually upset about it and said they were being punished for "doing the right thing".

Marilyn17 · 03/02/2025 11:14

@Kitten1982 Surely that's what the welfare state should be all about, looking after people who can't look after themselves, not making them feel guilty or like second class citizens because they claim disability benefits as this government seems to be doing and encouraging the general public to think like that too. People ought to be grateful it's not them who was born with or developed a disability that meant they could never work and participate fully in a "normal" life.

TigerRag · 03/02/2025 11:18

Nanny1965 · 03/02/2025 10:37

There's a forum Called .. benefits and work. It's run by benefit advisors and is very good. Maybe worth a look to save any panic.

You can get a lot of the same information free online elsewhere

TheWordWomanIsTaken · 03/02/2025 11:23

allmycats · 01/02/2025 15:16

Employers need to work harder to ensure people with disabilities can manage their working environment. But, the present situation is untenable and needs looking at.
There are people who insist that they are not going to work and their behaviour impacts negatively on those who are genuinely unable to work.

It goes further than that - employers need to help neurodiverse people actually get the job in the first place.
My eldest has ASD - diagnosis of Aspergers from many years ago. He is a phenomenal worker, reliable, trustworthy, bright. His work ethic is amazing.
But he would never get past the interview stage.

WeWillGetThereInTheEnd · 03/02/2025 11:26

pointythings · 03/02/2025 10:52

You make it sound as if 100% of private sector employers are doing this. Don't catastrophise.

You haven’t answered my question - where are the hundreds of thousands of job vacancies to take a mass exodus from the public sector?

Tittat50 · 03/02/2025 11:31

iwentjasonwaterfalls · 03/02/2025 08:16

More checks on the people doing the assessments. My assessor was nice and I was awarded enhanced for both on PIP, but when I got the report through, she'd given the right amount of points but in the wrong categories (got showering and toileting mixed up, for example).

Also more robust auditing when things are denied. I know of so many people whose reports read "you said you were unable to do X, Y and z. I determined that you are able to do these things" - where's their evidence? How did they come to that decision over the phone?

I used to work in audit for an ambulance service and it shocks me sometimes, the level of mistakes deemed acceptable by the DWP.

I think it benefits the Government to have DWP make mistakes that mean claims are denied. There's a proportion that will give up and go away. They absolutely know that.

Tittat50 · 03/02/2025 11:37

TheWordWomanIsTaken · 03/02/2025 11:23

It goes further than that - employers need to help neurodiverse people actually get the job in the first place.
My eldest has ASD - diagnosis of Aspergers from many years ago. He is a phenomenal worker, reliable, trustworthy, bright. His work ethic is amazing.
But he would never get past the interview stage.

So many kids / young adults like this.

My son would have been given that diagnosis too. He's Autistic / ADHD. He's in mainstream along with a fair amount of ND kids and it's just set up to fail them.

It isn't even the teachers fault. They didn't expect this I imagine and what tools are they given to adequately support this growing population in a class of 30 kids? In primary my son was 1 of approx 5 ND kids in a class of 25.

Flopsythebunny · 03/02/2025 11:49

Porridgeislife · 02/02/2025 14:36

I think it will be less than you think. Baby boomers are phenomenally asset rich at population level. 1 in 4 over 65s lives in a household with net assets of over a million pounds. The threshold for self funding is only £23k in savings!

But for the majority, those assets are in the property that they live in

FreedomandPeace · 03/02/2025 12:02

Marilyn17 · 03/02/2025 11:14

@Kitten1982 Surely that's what the welfare state should be all about, looking after people who can't look after themselves, not making them feel guilty or like second class citizens because they claim disability benefits as this government seems to be doing and encouraging the general public to think like that too. People ought to be grateful it's not them who was born with or developed a disability that meant they could never work and participate fully in a "normal" life.

The Government aren’t looking at those who have disabilities that make them unable to work though. They are looking at those that can work but are in receipt of a disability allowance.
I agree absolutely that the Welfare State was set up to look after those that cannot look after themselves, including pensioners who should be treated as equal.

FreedomandPeace · 03/02/2025 12:06

Flopsythebunny · 03/02/2025 11:49

But for the majority, those assets are in the property that they live in

Exactly
Plus those million pound assets are squeezed to those in the south of the country due to generally more expensive properties. The North still has to provide the same level of care with less money to do so as assets are not as high. Only 17% can pay in the NWest. ( 50% average across the country )
We need a centralised system to take the pressure off stretched councils.

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