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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

...to still be afraid of starting HRT?

56 replies

ohime · 29/12/2024 10:31

Hello collective wisdom, and many thanks in advance for reading a very long post (which is probably a question lots of people have already asked). I'm seeking some AIBU and WWYD advice because I don't feel that my doctor is taking my concerns seriously. This could mean of course that my concerns aren't serious - thus the reality check!

I'm 58 and have been post-menopausal for quite some time, I think around four years. My menopause, as I perceived it, started around 52 and lasted for around two years with mild symptoms, mostly hot flushes and brain fog. I was happy to endure these, as I'd always had painful periods and was looking forward to leaving them behind. When it all seemed to stop I thought I'd got off lightly, without needing to resort to HRT.

I was prescribed it though, by a young doctor who, to me, seemed oddly cavalier about the risks. At the time my genetic makeup and family history were completely unknown (my mother was adopted and I never knew my father); for all this doctor knew, every female relative on both sides of my family could have died of breast or ovarian cancer, and yet she didn't seem to think caution was called for, which I found odd.

I'm part of the lost generation in relation to HRT, due to the Million Woman Study and its fallout where the medical establishment was completely freaked out about hormones and basically stopped prescribing them. They seem to have started up again with a vengeance though, and to me it looks like they're now pushing HRT for everyone under a blanket notion that the benefits always outweigh the risks.

Having just turned 58 I'm suddenly experiencing more symptoms, and they're much worse than the previous ones: copious night sweats where you wake up in a horrible chilly puddle, complete body temperature dysregulation (so I'll be boiling when it's freezing in a room, or freezing when it's 21 degrees), and extremely painful musculoskeletal issues - my right hip, for example, hurts so much that when I get up from a chair I can't stand, and would fall over if I didn't hold on to something. But even worse is the rage. About stupid, small things. I've always been very even-tempered - I told a friend the other day that I'd been ranting and cursing and throwing things around in fits of pique, and she didn't believe it - so this is making me feel like I'm losing myself. Back to the doctor, who - no surprises - has prescribed HRT.

This time I'd had a DNA test. I don't have either of the BRCA genes or any other cancer genes, but apparently I have an 'increased risk' (16%) of breast cancer, although the reasons why are somewhat opaque. In her 80s, my mother said she had a breast lump which her doctors were 'watching' rather than doing anything about; I never really knew much about it, but it added to my general paranoia!

Part of the background is that I had a friend who died of breast cancer several years ago, at around my age, after enduring several years of really horrible chemo. Coupled with the bad publicity HRT has received during most of my adult life, and with whatever was going on with my mum, I feel like my own judgment is very coloured, but then again my paranoia may be justified. So, AIBU? And WWYD? Even if you just have a minute to vote YABU or YANBU, it would be extremely helpful in the reality-check department and I'd be very grateful. And I promise not to throw anything or curse (much)...

OP posts:
ohime · 30/12/2024 10:58

Teeshirt · 29/12/2024 11:50

I got breast cancer after being on HRT for about a year. There are different types of breast cancer, and the one I got has a definite link to HRT. The incidence of it has doubled in about ten years, I think. I was genetically tested, and HRT is one of the things they ask about (other things being hormonal contraception and pregnancy and breast feeding). I was fit, slim, plant-based diet, a non-drinker and non-smoker. I would never take HRT.

Edited

@Teeshirt, that is really awful and I'm very sorry to hear it. I hope you're ok now?

Would you be willing to say what kind of cancer it was that you had (erm so I can google it)?

OP posts:
ueberlin2030 · 30/12/2024 11:07

ohime · 30/12/2024 10:55

Hi @ueberlin2030, might you be able to say a bit more about why your research has given rise to a desire to avoid HRT...?

The two aren't necessarily related.
I just wanted to clarify that I wasn't anti-medication.

ToomanyMilesAway · 30/12/2024 16:24

I've been on HRT for 14 years and am not planning on coming off it.

wellington77 · 30/12/2024 16:29

I maybe wrong but Davina Mcall did two documentaries on this and I’m sure it had been disproven that there was an great risk of cancer from taking HRT

SugarandSpiceandAllThingsNaice · 30/12/2024 19:57

wellington77 · 30/12/2024 16:29

I maybe wrong but Davina Mcall did two documentaries on this and I’m sure it had been disproven that there was an great risk of cancer from taking HRT

The documentaries had a proHRT bias and financial conflict of interest by having Dr Newson featured in and a producer for them. Dr Newson is under investigation for prescribing HRT dosages exceeding NICE limits at her private menopause clinics where she charges women £250/minimum per appointment. She has made millions, which is ok it’s just that the documentaries have a clear conflict of interest in that you really shouldn’t have a private clinic owner who has paid an actress/celebrity like McCall advertising HRT while calling it a documentary.

No research has ever linked HRT to a “great risk” of cancers, but research has consistently proven that HRT increases risk of certain cancers. The risk is a small increase across the board, but the newer types of HRT are even smaller risk than the older types of HRT. There is only one type of HRT that has no risk of cancer and it is the estrogel used for vaginal dryness.

SugarandSpiceandAllThingsNaice · 30/12/2024 20:01

Movinghouseatlast · 29/12/2024 14:36

I definitely had new symptoms starting 4 years after menopause. Vaginal.atrophy and vertigo. The vertigo is because there are oestrogen receptors in the inner ear. The oestrogen 'lubricates' 'the inner ear and a lack of oestrogen in that area can lead to balance issues.

I see a menopause specialist and she said new symptoms after menopause are very common.

Of course people should be checked to see if its something else but it is plain wrong to suggest symptoms don't come on after menopause because they do.

I did not say they don’t come on, I said it was unlikely to have sudden and severe symptoms appear when 4 years post menopause. I said she should have them checked out and not self-diagnose.

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