Hyperhydrosis

[LittleBird74]

AIBU to be totally fed up of this condition?

i suffer so badly with hyperhydrosis pretty much head to toe. My face and scalp are the worst and it’s so bloody embarrassing as it’s so noticeable. My back is pretty bad too. Even my legs can sweat profusely.

It doesn’t appear to be caused by any medical conditions. Medication from the doctor has done very little to help, the one tablet I’d love to try and have read great things about, the NHS have refused to prescribe to me due to funding. I’ve tried topical medications with v limited success.

The slightest change in temperature or exertion has me dripping. It rolls off my face and can soak my hair through.

So miserable.

I'm sorry to hear that OP. Have you tried botox?

There is a few medications that can help.. not sure which one the NHS won't prescribe
There is also Botox.
Creams and wipes for certain parts of the body.

Also some antidepressants help.
Has GP sent you to a specialist?

Exactly the same here. Face & scalp is the worst and I’m always hot. I’ve tried Botox (got it on the nhs but didn’t work), I’m on pills which help but don’t come close to stopping it, I’ve tried iontophoresis, nothing helps. Had it since I was 16 and doctors won’t investigate WHY I’m so hot all the bloody time. I can’t even wear jumpers in December as I’ll start sweating immediately

The NHS do prescribe all the medication available for HH (I’m on Oxybutynin & Propantheline and they also prescribe Glycoprollate. I also got Botox on the NHS

@LittleBird74What medication are they refusing OP? As they’ve never refused me any of them

I had surgery in my late teens as the sweating in my hands was so bad I couldn’t write without my paper dissolving (not great esp for exams 😳). I still get it everywhere else except my face (side effect of the surgery). Doc says it’s largely menopause but I’ve always been hot, just now it’s unbearable.

Yep I'm also in the club! Hands and feet mostly. Can't wear slip on shoes I have found a good foot spray though ( I can take a photo tomorrow if anyone wants details) my hands are either sweaty or icy.
(My feet panic sweat when I'm scared too!)

Yep, I suffer too. Just walking in to a busy room can have the sweat rolling down my face and don’t get me started on shops that are heated to the extent their staff are in thin clothes in winter whilst we walk in wearing coats. As a runner with HH a sweatband is essential all year round and a towel in the gym is a must. Mid 50s now and never found a good solution to the problem 😩

Also had problem on and off which I'm sure is hormonal. Used Anhydrol forte for years on and off. Didn't realise there were pills too so may ask my GP as peri menopause is worse 🤯

Sorry to hear of others having to put up with this too!
To answer the questions, I’ve never had Botox offered by the doctor, I know private is an option but the cost is an issue.

They refused Glycopyrrolate. My GP was happy to prescribe it but had to ask permission which was refused. She did fight my corner but they wouldn’t budge.

Oxybutynin didn’t help at all. Propantheline helps a little but not enough to take continuously and deal with the awful side effects I get from it. I take it when desperate or going to a big event.

I’ve tried odaban and driclor which help a little bit for a while then they stop being effective.

They haven’t sent me to a specialist, just done bloods and checked me over.

I’m 40 now and it started probably about 20 years ago.

I've had hot hands since childhood ( would often be pointed out by other children or adults when you had to hold hands) I'm forties now
Driclor odaban etc make me sore and can irritate enough to bleed ( I'm allergic to some really standard things recently my hospital wristband!)

Are you taking an anti-depressant by any chance? They make it ten times worse

You’re absolutely not unreasonable, I’m sorry you’re feeling so fed up. Totally empathise with you!

This wouldn’t be helpful for scalp sweating, and can cause issues with compensatory sweating, but if you can find them Secure Wipes are incredible! I used them on my armpits in my late teens and still don’t really sweat there 20 years later (although do all around my torso/back/neck/crotch…but find that easier to cover up!). This was a long time ago and was costly as we had to import them from an online pharmacy in Canada but might be worth a look.

I am yes, but it was a problem before I started taking them too.

Thank you! Sounds like they may be helpful for the face, I will take a look.

Do you take these together ?
I have been prescribed both too, but doctor said to try propantheline first.
what dosage do you take?

I’m on Propantheline & Oxybutynin and had Botox on the nhs on my scalp, but the Botox didn’t work. I’ve been offered glycoprollate or however it’s spelt but refused it because of an interaction with my existing meds. I’m on an SNRI (similar to SSRI) that has extreme sweating and heat sensitivity as a primary side effect. So that doesn’t help. Have you been offered the surgery?

I’ve had Botox refused by NHS. It seems to be a postcode lottery.

trying propantheline atm but not sure if it is doing much

Omg this was me! I tried so many things but really,
medically, nobody had a clue.

What changed everything was acupuncture;
had maybe 8-10 sessions about 16’ years ago, and it disappeared completely, and has never returned.

I had oxybutnin, didn't really get on with it.

Pro-banthine was a life changer! Honestly just ask your GP.

I was supposed to be taking up to 4 a day (15mg) but just one was enough, and I would be soaked from head to toe. It was awful. It really does impact on your confidence and your life.

They do cause a dry mouth (dry everything) so keep water and or gum with you.

Do it!

Do it now!! 🤣

Mine started at puberty. Mostly my hands. They'll drip if I'm anxious. There's an operation you can have but my Doc advised against it. I've put up with it for 40 years.

I take pro-banthine (I have a private prescription for it) but only when I need to look and feel ‘presentable’ as it makes me feel really rough and food all tastes like cotton wool. As spring is finally arriving, I feel a sense of doom that here comes the bloody sweating again! It’s been lovely not having to worry about it during winter.

I only take it now as needed, certainly not 4 times daily! I take it a couple of hours before needed.
Mine is on repeat NHS so I don't think there's any problem with asking for it, but I completely appreciate the dry mouth!

I had to have mine in winter too, probably still would, but now I have a physical disability that leaves me unable to walk far or do much. I couldn't wear in winter because of head sweating, everything would still sweat and then you'd be left freezing. So hard to just regulate body temperature.
I holidayed in the Canary Islands in August... One tablet would see me through the day. It's not always heat related. I think mine was antidepressant related, started when I was 21, never left.
I'd get sweaty having a shower and drying my hair. Marvellous, hairs wet again 😭