To ask if this is anxiety or if I’m actually not strong enough for this world!

[SwimmingSally]

DD has been unwell for quite some time and it’s been really difficult to get to the bottom of what’s causing it.

I have recently stumbled upon a condition that she has a number of symptoms of, that we will ask the doctor about at her next appointment.

There are a number of variations of this condition, and the most severe version has an average life expectancy of 51 and the condition itself has some horrendous implications on the quality of the persons life.

This is the rarest form of the condition, but I can’t help but worry about it, and I know that it’ll be months before we even get a referral, let alone testing.

In the mean time, I can’t help but look at my daughter and feel sick with worry. I fear for the future, I fear for her health and can’t help worry about the worse case scenario. I’m totally consumed by it.

I don’t know if it’s normal to feel like this, or if it’s a sign I’m struggling with my mental health. I do have a history of anxiety and depression and have previously taken medication. I have a constant sick feeling in the pit of my stomach.

YABU - this is your mental health that’s the problem.

YANBU - it’s totally normal to feel this worried.

Is it EDS by any chance?

I think you are having a perfectly normal reaction to a stressful situation IMO.
When will you be able to speak to the GP about her? Can you think of any ways to try and manage your stress levels until that time?

@Errors we have a week until we see the GP.

Ok, do you think that visit will put your mind at rest somewhat?
I think you may be problem stacking here a little. You’re quite understandably anxious about your child, but please try not to be anxious about being anxious if that makes sense?

If I’m honest, I don’t think it will. I don’t think my mind will be at rest until the worst case scenario is ruled out. So how do I cope until then?

DH is unwell at the moment too. Probably just a virus, but I’m just on such a downward spiral of thoughts that even that is triggering me at the moment.

That sounds like anxiety triggered by an event that its reasonable to be a bit anxious about. Are you getting any help or support for the anxiety? Its awful to have to live with, and you don't need it on top of concerns about your DD's health.

Thank you @Thelnebriati. I can’t think about anything else. Literally at all! And I am feeling sick from the minute I wake up to the minute I go to sleep, and any time I wake in the night. I feel like there have been many times when things could have gone wrong in life and so far they haven’t. So it’s now our turn for bad news! I know that sounds crazy!

Are you on any medication?
If not, I find Kalms to be effective at muting short term anxiety like this

Do you want to share any more details about your daughter’s illness and what you think it might be? Do you consider it a realistic possibility or are you overthinking that part of it also?
Someone may be able to put your mind at rest maybe?

Given what's going on with your daughter, I think its pretty normal to be this worried. I would be too.

@SwimmingSally I can't access your message, I only use the app.

If it IS that, then there's nothing to worry about, it's incredibly rare to that Verison and it actually runs through families so if it's not been on the family line yet then it's another Verison of it.

It's really hard, I sympathise. My sons (then aged 8 and 6) were diagnosed with a rare genetic condition with significant future health implications, but it took six months to get the diagnosis. During that time I was so incredibly worried and could hardly think of anything else. I'd say please try to carve out some time for yourself throughout the process. Seek medical help if you feel it's unmanageable, there's no shame in taking medication for a while. Best of luck to you all x

Thank you @HailtotheBop. I’m sorry to hear about your boys? How are they doing now? How did you feel once you had the diagnosis? I hope they are doing well. ❤️