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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Suddenly can't move legs

216 replies

Whitfloor · 18/09/2024 14:52

My friend had a general anaesthetic two days ago (her first) to correct a minor problem. She seemed fine. She's in her late thirties.

Two hours ago she felt very sick and became unable to stand. She became unresponsive. No raised temperature. An ambulance was called.

Waiting on a CT scan. She can't move her legs.

She was frightened about the possibility of having a reaction to the anaesthetic. Could this be a delayed reaction?

Reduced sensation in all four limbs. SATS fine throughout. Now perfectly clear mentally but passed out for a while in the ambulance.

What could be happening?

OP posts:
Poopants1000 · 20/09/2024 18:29

Greybeardy · 20/09/2024 18:23

its extremely unlikely that nitrous will have been used.

Best to ask them, no?!? 🤔

naw131 · 20/09/2024 18:33

I agree that it sounds a lot like Guillan Barre too......however, i was diagnosed with MS, after an operation to have my wisdom teeth out resulted in similar symptoms to your friend. She'll need an MRI on her brain and spine.......a spinal stroke is another option.

Greybeardy · 20/09/2024 18:38

Tricey · 20/09/2024 18:28

Glad to hear your friend is feeling better. Might suggest she check out her MTHFR genes status. Some people who have it can't detox well and are better with different anesthesia types and other products. Here's a quote from someone who has posted a lot of her research on it after a neuro experience for her son. This is not her research, but it is a quick quote that might help lead to more answers if applicable. Quote: "...people with (compromised) MTHFR cannot detox well. Thus, when given certain medication, vitamins and supplements, there can be adverse reactions. In many cases where anesthesia is used, the situation is immediate or an emergency and there isn’t much time to gather needed information on the spot. This is why it’s important to have looked into it and to have the information in a handy spot as a ‘just in case.’ Certain anesthesias, including ones used in dentistry, can lead to a stroke, serious neurologic outcomes, or even worse for some. Please note, I am not a doctor."

Once again, in the context of anaesthesia, this relates to nitrous…which is extremely unlikely to have been used.

naw131 · 20/09/2024 18:42

your friend MUST GET AN MRI NOW!!!..........she needs to be checked for any Demyelination on her brain or spinal cord. She shouldn't accept their excuses, this is very serious stuff......even something temporary can end up coming back with a vengence. This is from experience.

ObieJoyful · 20/09/2024 18:44

pissedpocket · 18/09/2024 17:51

Sounds like functional neurological disorder (fnd). It used to be thought as psychological (was called conversion disorder or hysteria in the past) but new research shows it's not. However the general public and a lot of the NHS aren't aware of this. It'll be a positive diagnosis via the hoover test if it is, not a diagnosis of exclusion of anything else. She's in the best place to be investigated and looked after. X

My daughter has FND, it presents as seizures with her.

MotherJessAndKittens · 20/09/2024 19:20

It could be related to the ear surgery as the ear helps with balance.

IOSTT · 20/09/2024 19:20

Whitfloor · 18/09/2024 17:15

CT scan clear.
Still waiting for blood work.
She's having bad pins and needles.
She can feel touch but she can't move legs at all, fingers just a fraction sometimes. When she falls asleep her body shivers and jerks.
The staff are beginning to suggest it's psychological...I really don't think so.

Staff suggest it’s psychological when they don’t have a Fu**ing clue what they are doing. Tell them she is a man and they will take it more seriously 😡

Beautifulweeds · 20/09/2024 19:26

I'm no expert but my first thoughts were blood clot or infection.

YYBU · 20/09/2024 19:26

Whitfloor · 18/09/2024 15:40

Making no apologies for the post.

Sorry, but you should.
Listen to good advice when it's given. This is not the place for Doctor Google hysteria. Just leave it to the experts and not the untrained.

MumblesParty · 20/09/2024 19:48

IOSTT · 20/09/2024 19:20

Staff suggest it’s psychological when they don’t have a Fu**ing clue what they are doing. Tell them she is a man and they will take it more seriously 😡

She has recovered within 24 hours spontaneously, so maybe it was psychological after all. But don’t let that stop you slagging of the medics. I expect you know better.

Faldodiddledee · 20/09/2024 19:59

My first hemiplegic migraine mimicked stroke symptoms. Incredibly dramatic, loss of ability to stand, speak, co-ordination difficulties, balance issues, taken to A and E. Lasted several days. Had many since then but that first one was the worst.

Have no idea if this experience is similar, and the most important thing is to rule out other causes. I had an MRI a few months later. I take preventive medication now, which makes them much less frequent and milder although still sometimes lose ability to walk temporarily.

H0210zero · 20/09/2024 20:05

It could very well be psychological if she has worried about the general anathetic prior to her surgery. I suffer from FND Functional Neurological Disorder which is a psychological illness. I lost the use of my right arm during high times of stress and have never regained it. No medical explanation physically all scans are fine. But the situation I was going through at the time literally felt like I was.cutting.ky right arm off. It also began triggering seizures. I've come to accept it is psychological after diagnosis but only because after every medical team even the one diagnosing me couldn't do anything else I tried my hand at Lucid dreaming. Entering and.co trolling my dreams I can control my arm in my dream and as I wake I sometimes get a brief moment of feeling sometimes that lasts a little longer and the more I persist with lucid dreaming the more I feel my arm upon waking. If it had been physical that would be unlikely to work.

CassandraWebb · 20/09/2024 20:15

MumblesParty · 20/09/2024 19:48

She has recovered within 24 hours spontaneously, so maybe it was psychological after all. But don’t let that stop you slagging of the medics. I expect you know better.

Spontaneous recovery doesn't mean it is necessarily psychological. my condition usually improves rapidly with rest. It doesnt make it any less real.

Just because we don't know what caused something, it doesn't mean it had a psychological cause. That's such a backwards way of thinking. It took 20 years of doctors telling me my illness was psychological before the very real physical cause was confirmed.

ThisFunHedgehog · 20/09/2024 20:28

Whitfloor · 20/09/2024 07:36

Apologies for not updating sooner. I have good news.

She was discharged yesterday morning with movement in her hands returned. She had breakfast by herself. The walking wasn't far behind.

About six hours after this all began, she started having horribly painful pins and needles. Six hours into that, she could move some fingers a little and has better head control. Fast-forward another ten hours and she was able to pick up s coffee cup. Another six hours after that and she was able to use her phone by herself.

They have ruled out anything sinister but don't have an explanation for her. I would have liked them to do an MRI just to see what they could see as I cannot imagine how difficult it will be for her to face future operations without this experience ruled out as a side effect. However we're just thankful she's safe and well.

Thank you to everyone who offered support and sent good wishes. They are so appreciated and it's wonderful to come back with a positive conclusion.

Hi OP, not read the full thread but just wanted to mention about checking B12 levels via blood test (sorry if this has already been mentioned) . Glad they are improving.

Bs0u416d · 20/09/2024 20:37

In amazed they discharged her before she had regained the use of her legs? Did they provide her with a wheel chair? Or did you have to carry her?

linsey2581 · 20/09/2024 20:39

@Whitfloor Don’t think it’s appropriate for you to be publishing your friends medical details online .

ForeverDelayedEpiphany · 20/09/2024 21:19

OhMaria2 · 18/09/2024 20:11

Yes but women get hurt and suffer decades long consequences from this constant leap to say everything is psychological

I certainly can attest to this, alongside the misogyny and arrogance of male doctors who refused to agree my drug injury from am antipsychotic was an actual neurological involuntary movement disorder. I was given the cop-out diagnosis of Functional Neurological Disorder too, which is pretty much their way of saying 'we don't really know/won't admit to these drugs causing harm/want to get rid of you and give you a diagnosis so here is one".

And of course, people can have physical symptoms when they have suffered trauma etc, so I'm not saying this doesn't happen. But I'm not sure if in your friend's case that the cause is psychosomatic this time, especially as it happened after being administered medication.

GabriellaFaith · 20/09/2024 22:07

There are a huge number of things it could be, and it is speculation as well to assume linked to the op. It could even be a slipped disc completely unrelated but causing nerve compression. Potentially a TIA which may, or may not, be linked. I know in this day and age we all look for answers online, but I think mumsnet is possibly a bad idea as you will get lots of advise from non medics, people, like me really! Who are medical but with that info rather a guess in the dark! I wish her better.

Someone once said don't stress before you know the outcome, otherwise you put yourself through the pain at least once more than you needed too, maybe twice.

Good advise 😘

Destiny123 · 20/09/2024 22:18

LBFseBrom · 19/09/2024 19:36

Is it not a reaction to the anaesthetic? Her symptoms fit that. Of course we can't diagnose on here but from what you say, op, it sounds like that. Reaction to some anaesthetic can manifest as paraesthesia, neuropathic pain (pins and needles), numbness and, rarely, jerking about. Having just written all that I think I already said it not long after you first posted so sorry if I did manage to post, am having problems with wifi going off and on.and my posts sometimes aren't 'sent' I'll try and find where I read it.

However it might have worn off by now. I do hope so.

Fit what anaesthetic reaction? Worrying these are chair diagnoses. The anaesthetic will be out of her system and 10y of anaesthetising I can't think of any reaction this can be??

MadamePeriwinkle · 20/09/2024 22:18

I work with teenager with FND and it’s certainly possible for it present as temporary paralysis that can last a few hours. Your description of her falling asleep and twitching etc also sounds like a functional seizure.

Definitely best to look at physical causes first as it’s happened off the back of surgery but if it continues to happen it’s something to consider.

GP will likely want to do ECG, EEG and MRI.

Also your mention your friend has dealt with mental health issues before without a physical outcome but it could just be that the stress around her surgery has tipped the balance. FND is often the result of unconscious/unprocessed emotions that your friend may not even be aware of.

CassandraWebb · 20/09/2024 22:23

@Destiny123 this situation doesn't sound like Myasthenia before you accuse me of armchair diagnosing but you may want to swot up a bit on it because I am very weak for a good week after even dental anaesthetic and most Myasthenics find the same. I imagine anaesthetists often aren't even made aware of these longer to take effect after affects though.

(Although I am sure you are always on high alert for a potential myasthenic crisis during surgery - and of course because doctors kept insisting my symptoms were psychological I went over 20 years not realising how at risk I was from Myasthenia, so denial of reality is not just gaslighting it's potentially dangerous)

BlueFlowers5 · 20/09/2024 22:44

My legs stopped working for a few hours when I had peritonitis many years ago. Burst appendix.

MO308002 · 20/09/2024 23:00

Jesus Christ.

The NHS is even more unbelievably shit than I thought if this is true.

Your friend would not leave a Spanish hospital in that state, and they would definitely give an MRI.

And she would have a follow up out patient appointment.

And the people here claiming it's "anxiety" ......I don't know what to say.

Bs0u416d · 20/09/2024 23:01

Destiny123 · 20/09/2024 22:18

Fit what anaesthetic reaction? Worrying these are chair diagnoses. The anaesthetic will be out of her system and 10y of anaesthetising I can't think of any reaction this can be??

My DP is an anesthetist and has been enjoying this thread, vicariously.

CassandraWebb · 20/09/2024 23:30

Bs0u416d · 20/09/2024 23:01

My DP is an anesthetist and has been enjoying this thread, vicariously.

I mean we can all claim to be anything on Mumsnet.

But it's a shame if anesthetists don't have a curiosity about longer term impacts of anaesthetics on the neurological system, because they definitely impact most myasthenics I know for far longer than a couple of days.

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