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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Year 7 child possible neurodivergent? Adhd or asd? Or something else? Someone with experience of girls being diagnosed late would be help

8 replies

Starbright885 · 14/09/2024 12:19

I have an 11 year old daughter who has just started secondary. Let’s go back to her toddler years where it was becoming more and more difficult getting her dressed. She hated shoes and socks, would pull off clothes and have massive tantrums. Told it was a phase etc. well the phase never passed and at 9 years old and in year 4 diagnosed sensory issues but I often suspected asd traits but her friendship groups are strong and socially she is fine. She has lots of friends to the point I can’t keep up but there are a few she is stable with but talks with lots of different friends. School wise she is very smart, barely picks up a book yet reading age was 2 years higher and greater depth in sats in most subjects despite never doing homework, shamefully I did it as she would have massive meltdowns after school but she still did better than most kids who were tutored! And being home schooled lockdowns etc she did some work but refused a lot of the time. one teacher in year 5 an ex senco noticed she might be neurodivergent but never had a chance to talk as he left the school. He said I suspect something with your daughter. It’s never been picked up by anyone else. Now the behavior at home, food very particular , will say ‘I want food give me food but doesn’t know what ? Awful name calling, she is so rude to me that even in front of friends calls me the worst names, I will not repeat, I’ve sought help, tried with family support worker but their methods don’t work with her. We’ve had an occupational therapist who also mentioned nueordivergent by spending time with her and myself. She said it’s biological and you’re like her mum, and it’s just the way out brain worked. Don’t know what she noticed about me. But she said I was best off going to get assessment done for my daughter, and quoted 3000 with a well known psychologys they work with! Great reviews but which no way I can afford right now. I have 2 children boys who have a young both diagnosed asd but they don’t have the sensory issues my daughter does but aren’t sociable and don’t like being around people they don’t know. We manage it all very well, and all children go to school and and we have days out, we just have to do things a bit differently. My dilemma is who do I turn to? GP? School! How do you go about this at secondary ? I have much more to say about my daughter including sleep patterns, her meltdowns after spending time with friends, one thing she told the occupational therapist when she asked my daughter ‘do your friends poke holes in your bucket or empty it? As in the bucket gets full and we have things that can make us better by poking holes and she said both. She likes being with friends but maybe they fill her up and she becomes overwhelmed. We have close families, no real family traumas I’ve seen disadvantaged children with questionable parenting and they don’t have the sensory issues my daughter has or behaviors. She gets really hyper at times, wanted an adhd sofa, gets bored at school, she can’t stop her anger. She told me once she just can’t help it. Interrupts you, will talk to you but dont something back she gets so angry and is quite frankly really rude. Things have to be done a certain way, at home she’ll only eat with certain cutlery, trays, food has to be separated hates eating with anyone as can’t stand people chewing, copes at school but only just, just screamed at me for washing her shirt. Only just got her a proper bed as spend 1000k buying beds that she hated and felt uncomfortabl. This bed has been fine. Thank God. Has to have clothes all over floor, will not fold them. Shoes in certain positions. She has started her periods so is wearing sensory pants and touch wood please God so far she dealt with it as well as can be.
I’m not perfect and my disciplining skills haven’t always been the strictest but has I say seeing other parenting no different. If I ask her to do anything it’s a meltdown. Any advice

OP posts:
Fluffytoebeanz · 14/09/2024 12:43

My daughter has ADHD and sensory issues, as well as various other things. We finally got her diagnosed in Y8 but had known for a while, delays due to COVID and lack of school support. I'd speak to your GP and school. DD is on meds now and it's helped a lot. Unfortunately her school experience has been terrible but we are in the process of starting a new school

Bee23 · 14/09/2024 12:43

We can’t tell you if your daughter is neurodivergent, but you have had some professional suggestions that she might be. The change to secondary school and the increase in pressure might well lead to her being unable to cope or mask as well as she did at primary. That does happen with girls.

My advice is to get her assessed before you get to the GCSE years as then the school can put adjustments in place and you can try medication, if you choose to, well before the pressure ramps up again for exams.

Unfortunately there is a (very) long wait for the nhs and private assessment comes at a cost, but that’s how it is right now. An assessment would mean the school will take it seriously and give you access to medication if needed.

There is good advice through ADHD charities like ADHD UK or ADHD Embrace.

Fluffytoebeanz · 14/09/2024 12:44

I'll add that puberty makes disregulation worse in her case. It's also taken ages to get meds that work for her.

SquigglyNonsense · 14/09/2024 12:51

Also have sons diagnosed with ASD and a daughter who - although she struggled more than them at times- was just fobbed off by teachers/sencos and even CAMHS at one point. But by 13-14 she was falling apart (puberty and a large secondary was not a good mix) and we got a private diagnosis of ASD. Knowing what the issue actually is had made the world of difference to her. She wasn't an awkward quirky girl but a neurodiverse one.

WeAreWhereWeAre · 14/09/2024 13:00

Maybe book an appointment with the GP?

In year 7, the SENCo at her primary school said she thought DD1 had autism, I booked a GP appointment and she was referred to CAMHS for an assessment. In year 11, we finally got the diagnosis (after constant prodding from GP, school and my local MP).

In the interim she had a lot of mental health issues and SH.

Thankfully her diagnosis came in time for her GCSEs and although the school had been excellent with her support, the diagnosis meant we could get her extra support at school.

Phineyj · 14/09/2024 14:22

She sounds very much like my DD would be if a) we hadn't got a private ASD/ADHD assessment at 7 and b) got an EHCP in place for secondary.

You should request an EHCNA from your LA. Ipsea website has a template letter you can use.

Speak to the school SENCO. Ask specifically if there are any groups at break or lunch she could join (nurture, social skills, stuff in the library). Explain the difficulties. Follow up with an email.

Sensory Smart is a good website for comfy socks and tights. Maybe a soft undershirt too if the school shirt is scratchy.

Ask your GP if you can get an ASD assessment through Choose and Book.

The Lorna Wing website may be helpful.

There are some good books in the Do You See Me series about an ASD girl going to a mainstream school (fiction but with an ASD girl who contributed). If DD is a good reader she may enjoy them.

Phineyj · 14/09/2024 14:24

Also the book The Explosive Child could be helpful.

Phineyj · 14/09/2024 14:26

And you need support for you.

We also get the verbal abuse and it's tough. We found NVR helpful. We had a coach but Yvonne Newbold's resources are free.

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