Is there any medicine for Raynaud’s Syndrome?

[Helppppppppppp]

Just that really. I cannot take the pain that it causes in my breasts any longer. My nipples are constantly hard and if I accidentally brush them against anything, I’m in sheer agony. My body feels so cold all the time and it’s all too much.

I’m going to have to call the GP on Monday but I wondered if there’s any medication that helps to reduce the symptoms?

Dc1 takes nifedipine. It's really helped. Not one infection in the 3 years it's been prescribed (was having antibiotics every 4-6 weeks). It does lower your blood pressure which may be a consideration for you.

Yes. Nifedipine is often given for raynauds

Yes my dad takes it. I have awful raynauds in my hands and feet with chilblains but I don't want to take anything.

And on the basis of the PP, I already have low blood pressure so it would be a no for.

Thank you guys, much appreciated. Does the medication have to be taken every day/long term or just when you’re impacted by the symptoms? I’m absolutely fine in winter but summer, I literally can’t cope!!

I have also taken Nifedipine but as people says it lowers your blood pressure and it made me feel very odd so have stopped it. I have lots of thermals and never let myself get cold. I even wear socks in hot weather

My gp said some people come off it in the summer

Nifedipine gave me heart palpitations. I'm now on a slow release version.

Dc takes theirs everyday October to April. Takes it at night due to side effects.

Weirdly viagra was developed for raynards and heart issues, but I dont think it's given on prescription for that purpose 😂

I don't get raynards in the boobs, I get it in my fingers and feet. But I do get cold boobs running and cycling in winter. I was tipped by a breast feeding friend to use silk and wool nipple pads. They really help, and also hide embrassing poky nipples when you're exercising!

Only time I had relief from it was when I had pre-eclampsia & got prescribe BP meds.
The boobs are the worst & quite embarrassing at times with bloody nipples that cld cut glass.

I’m not sure about medication but cutting out caffeine helped me.

My daughter wears GTN patches for her raynaud's.it seems to work well.

I take Coracten SR 10 mg capsules of nifidiprine one a day, except for summer and go back to them when the weather goes dull, damp and cold - my finger works like a barometer and can predict impending weather changes

I have Raynaud’s in one finger, and an attack would blotch my whole hand

It takes a couple of days for them to get working, and once when I was away I lost my pills. Over a couple of days it wore off and then when I was back home it took a couple of days to build up protection again

They are not a miracle cure, but make a large difference. What would be pain without tablets becomes a twinge on tablets

@GingerLiberalFeminist actually someone where I work takes it for that apparently, but she does have really bad raynauds and a fair bit of necrosis by the sounds of it (I got this second hand).

I don't take anything for mine but was offered some by rheumatology. They said the side effects were bad (I can't remember what it was now, it was a long time ago). This summer has been a weird one for mine, I'm normally ok ish in summer but I've struggled.

OP are you sure you have Reynaulds, has it been diagnosed? I only ask because its very very unusual to be affected only in the warmer months and be absolutely fine, as you say you are, in the colder months. You also mention feeling cold generally but Reynaulds is usually localized and most often to the fingers, toes, and facial extremities.

I have severe raynauds and heard about Nifedipine on here. Luckily, it agrees with me and it's brilliant.

The feeling in my boobs are actually unreal! The constant pain makes me really self conscious, it’s unbearable tbh

Nifedipine made me feel very weird but I was told to up iron intake and cut caffeine and has made some difference

Well last summer I had the exact same thing and the GP said that it may be Reynaulds. They wasn’t 100% so wanted me to take a blood test and turns out I’m still anaemic and have low vitamin D. However, this isn’t new news! I’ve always been like this and have never had these symptoms.

I have no clue what else it could be! I will go to the GP on Monday, tell them my symptoms and take it from there

I get it in my feet badly and always suffer from chilblains in winter which is very Victorian apparently!

My housemates fingers used to turn blue and she got freezing nipples too! She always wore padded bras and had these rechargeable hand warmer discs that she put in her bra which apparently worked!