chronic liver disease ir celiac

[Terrifiedshakes]

My Serum anti ttg levels came back elevated but the antibody test negative. I've googled and googled and it's coming back that with an elevated Serum anti ttg, if not celiac, then it could be the liver. I'm really stressed again. I'm not attention seeking, I'm just not well atm with health anxiety, I'm having a really bad time these last few months.

Now I'm worried again! I've never drank alcohol apart from the ODD night in my twenty ten years ago. I'm a very good BMI. Not had alcohol for years now.

I'm again freaking out. Again. And I go on holiday today.

The gp has refered me for a camera down the throat but only because I'm anxious. We sat together and decided if I wantedthe camera or not because ive got bo evert syproms of celiac. She refered me on the grounds of being anxious and needing reassurance and my maternal neice has celiac disease and my mum has rheumatoid arthritis. I'm not phased by having this camera. I'd do it myself if I could.

I've not got any symptoms of celiac, so it's got to be my liver thats the problem? But my liver blood results have come back in normal ranges so I'm just doing my own head in basically.

My symptoms are twitching muscles the odd pins and needles in feet and burning joints. But I'm a long distance runner so my burns could be that.

Please don't be liver diseases, damage. I need to snap out of this one for my DH and our family holiday. I can't go on holiday feeling like this again, it's not fair on him.

I did ask the GP if I'm not celiac then what do we do about my raised levels and she just shrugged and said not a lot really but I think she was just calming me down and thinking we will cross that bridge when we come to it and talk about your liver then. But she did say my liver results are in normal ranges.

It does help to talk on here.

I'll add if I do have celiac then ill deal with it with the support of my neice who eats such a healthy diet as she has celiac disease. She's in her 20s and has had it for years.

I'm not worried about CD..I'm terrified of liver disease

It’s certainly possible to have coeliac disease with no symptoms. And rarely I have heard of people with a negative blood test for coeliac but positive on endoscopy.

ive no idea about the antibody test, think Dd only had the ttg test before her endoscopy

if your liver function results are fine then I doubt you have liver issues.

And if I were you I’d ring the Coeliac U.K. helpline….theyre very good.

Just googled false positive ttg test and it says that a connective tissue disorder can give a false positive ttg as well as liver issues. So that might fit in with your muscle issues? Are you hypermobile.

See, no antibodies. I dont understand and I'm too anxious to even get to the bottom of it. I can't keep googling.

And also possibly a viral infection at the time of the blood test journals.lww.com/ajg/fulltext/2011/10002/false_positive_anti_tissue_transglutaminase.681.aspx#:~:text=Overall%2C%20the%20sensitivity%20of%20anti,%2C%20cirrhosis%2C%20connective%20tissue%20disease. journals.lww.com/ajg/fulltext/2011/10002/false_positive_anti_tissue_transglutaminase.681.aspx#:~:text=Overall%2C%20the%20sensitivity%20of%20anti,%2C%20cirrhosis%2C%20connective%20tissue%20disease.]]]]

Hope you get some answers.

At the time of the test i was very poorly. Snotty nose, sore throat, temperature. Really poorly with a virus, but the nurse said to come in and have the test and wear a mask. It was a Saturday so the surgery was empty.

Could it be that I had a virus and it raised it?

Sounds like that’s possible.

maybe they should repeat the blood test?

There’s also a skin only condition form of coeliac which according to Google if you have that form then you may not have antibodies.

ts that are used less often include:

• Anti-endomysial antibodies (EMA) tests for antibodies developed in reaction to the ongoing damage to the intestinal lining; it has been found that tTg is the substance detected in this test. Almost 100% of people with active celiac disease and 70% with dermatitis herpetiformis (another gluten-sensitive condition that causes an itchy, burning, blistering rash on the skin) will have the IgA class of anti-EMA antibodies.

I can't repeat the blood tests. I can't wait for results again. I'll have to wait for the camera.

Then them results. 😫

I'm sorry I keep coming on here. I'm at a loss what to do with how I feel. Medications di t work plus if it's my liver I'm guessing it's the last thing it needs.

I don't know if this helps but having a result outside the normal range is not proof of pathology. The range is what most people without issues fall between but we are not machines and a few people's results will be quite normally outside the range. Added to this is the fact that other factors can change results short term such as intercurrent illnesses, medications etc. Repeating a test after six or eight weeks can often clarify this.
It is obvious that your anxiety is the illness currently causing the most harm to you and if at all possible you really need to find a way to tackle it . All the best.

Yes I'm really poorly. I've just got an appointment with a doctor to have a chat.

I can't go on like this

Even the blood results thst have come back 'Satisfactory ' are the ones linked to liver.

My alk phosphate came back slightly high a few weeks ago, it got retested and came back within normal ranges but on the higher end.

I can't have a liver disease, this is me. I look about 19 and I'm so fit and healthy

You can be what’s called a “silent coeliac”. No symptoms but your stomach is being damaged by gluten. I am a silent coeliac. I had no symptoms other than a severe iron deficiency, but when they put the camera down they could see the damage. Having the camera down is the right thing in your case.

It's the lack of antibodies alongside an elevated anti ttg result that I'm really worried about.

I have noticed that my stools have changed when I eat gluten too. This could be a coincidence. I don't have any pain in my tummy.

OP. I say this kindly. You need help with your anxiety. You really need to engage with medication and/or therapy.

If you scanned someone who is fit and healthy, you'd likely find some 'problems' but they wouldn't be causing the person any symptoms. They're called incidental findings.

Of course, get checked out for your symptoms but one of your symptoms is anxiety. See it as treating your brain if that helps.

OP I had no tummy pain. No symptoms at all apart from being dizzy because my iron was low. I have silent coeliac. You really need to wait and see what they find with the camera. It’s not liver disease, that would show up on the tests.

Your doctor has referred you for an endoscopy. That will provide more information. If you remain unhappy afterwards then ask for referral to a liver specialist. However, and as gently as I can, if your liver bloods are normal it is likely to be unnecessary, therefore, I think you should pay for further tests and Co sultations that are not physically indicated but are what you want.

I asked my doctor a out silent celiac and she pulled her face like it wasn't a thing.

I'm seeing another doctor at 10.30 this morning. To ask more questions and to get on meds for anxiety again

I feel like my antibodies were maybe also normal but my ttg was mildly positive and I’m coeliac - confirmed through endoscopy but also my mum is so as soon as there was any sign it was clear.

The first two test I had for it throughout my childhood and teen years were negative. It’s not always like a smack you in the face clearly positive result.

Coeliac disease can have any number of symptoms or, at times, none at all.

I don't want a liver test. I don't want a scan. I don't want an MRI.

I want a doctor to explain to me results, what they mean, what they don't mean. The likelihood of things.

But I don't want any more tests. Or results. Or waiting for results. NHS or private. No more tests or letters or me having to look at the NHS app for results.

I just want to understand.

I think people think I want tests. I fucking do not. I can believe words if the person saying them knows what they are saying.

I do think you need to work on your anxiety. I’ve been ill recently and have been referred for lots of testing but I seem much less stressed than you. I think whatever test / check/ scan you have you’ll tie yourself into knots wondering about the results then jump onto the next possibility.

Im going for a gastroscopy in a few weeks and it’ll take a week for results to go to Gp for example.

The way I think about it is rather than what I have it’s what don’t I have the blood tests have ruled out pretty much everything serious so whatever crops up down the line will be manageable.

It's when results come back satisfactory or at the higher range if normal.

I have an image of a busy over worked GP with many patients and their blood tests to interprete, so they are sat there at their desk, knackard, my results looks satisfactory , so they tick this without looking at the full picture.

My DH said I work with all the negative and shrugg off all the positives.