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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Anyone else noticing the uptick in open hostility towards people with ASD?

949 replies

FFSakeDrinkSake · 17/07/2024 03:05

As the title says. It feels like it's open season recently. In the last few weeks alone I've seen many threads questioning the validity of Asd, the credentials of those diagnosing the condition, the 'explosion' of diagnosis', the 'fact' that you qualify for extra benefits if you are autistic and/or have ADHD, the apparent drain on resources kids with ASD have on the educational sector depriving others and most recently the idea that someone (self diagnosed) can 'outgrow' autism. Most of which contain the worst misinformation about what we're trying to deal with on a daily basis and making it sound like we're just trying to .. i dont even know tbh.. scam our way through life?

Disclaimer NATAAT.

OP posts:
Thread gallery
17
lovelysunshine22 · 18/07/2024 10:22

@Alwaystired94 because the type of person who would do this is also the type of person who doesn't wish to take any responsibility for anything their child does! Anytime anyone ( school, other parents, relatives etc) calls out bad behaviour they will just say oh they have ASD! Essentially deflecting any responsibility away from themselves! They will also take full advantage of all the various adjustments that are in place for people who have these conditions! An ex colleague of mine ( child development professional) was actually convinced that many kids are misdiagnosed with ADHD and ASD when what they actually have is Attachment Disorder caused by neglectful parenting! Many many of the symptoms crossover and both conditions present very similarly.

Againlosinghope · 18/07/2024 10:28

What percentage do you think of people pay for a assessment know their child isn't autistic?

What % of this people get the diagnosis?

What % of auto diagnosis do you believe are incorrect?

Surely it's such an insignificant number that it is not worth casting doubt on all autism diagnosis and this making it even harder for people to believe that autism is a thing

Againlosinghope · 18/07/2024 10:32

lovelysunshine22 · 18/07/2024 09:58

@Againlosinghope No my eldest dc barely got any support at all as it was not as well understood back then! He was failed by the education system but has made a decent life for himself since with support from family and good employers! His ASD traits make him fantastic at his job. My younger dc who has a diagnosis of ASD, ADHD, SPD and ODD ( again diagnosed by the NHS) was seriously failed by the education system and eventually did get the support he needed ( all be it far to late) but i had to fight every step of the way for every single bit of support he got!

Maybe to be safe you ought to get them reassessed now as maybe you were just a bad parent and just wanted to label to excuse your deficiency as a parent. Afterall people con the system and everyone and their dog wants their kids to be autistic for all the benefits they bring.

If they were autistic wouldn't this have been recognised and support offered? The fact you had to fight for the support means it was obviously not needed

lovelysunshine22 · 18/07/2024 10:35

This reply has been deleted

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Morph22010 · 18/07/2024 10:36

Alwaystired94 · 18/07/2024 10:16

and what does that diagnosis do then? it's not like there isn't stigma associated with ND children so it's hardly that they won't be judged.

'fake' diagnosis' are a drop in the ocean compared to the sheer amount of people who CANNOT get the diagnosis due to the system being stacked against them.

And what good is a fake diagnosis anyway? You don’t get anything just for being autistic. There is a completely seperate assessment process for dla and ehcp so the people assessing for those would also have to be convinced.

lovelysunshine22 · 18/07/2024 10:36

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lovelysunshine22 · 18/07/2024 10:38

@Morph22010 yes the people for DLA and EHCP have to be convinced separately but you have a far greater chance of convincing them if you have a diagnosis than if you don't have one!

Morph22010 · 18/07/2024 10:38

Againlosinghope · 18/07/2024 10:32

Maybe to be safe you ought to get them reassessed now as maybe you were just a bad parent and just wanted to label to excuse your deficiency as a parent. Afterall people con the system and everyone and their dog wants their kids to be autistic for all the benefits they bring.

If they were autistic wouldn't this have been recognised and support offered? The fact you had to fight for the support means it was obviously not needed

No the support system is rubbish, it is basically diagnose and discharge with asd there is no offers of support you have to fight for everything even if the needs are glaringly obvious

Periwinkl3 · 18/07/2024 10:39

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They aren’t in the sectors I work in. The NHS is rolling out training to better inform people like yourself. Within education professionals are the ones who often highlight ND and they welcome diagnosis to better inform. You are making false claims to dismiss autism diagnosis.

Againlosinghope · 18/07/2024 10:40

This reply has been deleted

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No I just think you are beyond disgusting to doubt diagnosis and say you have evidence of dodgy professionals that are selling diagnosis but aren't prepared to report them.
You believe your children's diagnosis are correct but want to cast doubt to other children and make people lives even harder dealing with view

What gain do you get by casting doubt maybe it's because you doubt your own children's diagnosis is correct ?

Alwaystired94 · 18/07/2024 10:40

lovelysunshine22 · 18/07/2024 10:22

@Alwaystired94 because the type of person who would do this is also the type of person who doesn't wish to take any responsibility for anything their child does! Anytime anyone ( school, other parents, relatives etc) calls out bad behaviour they will just say oh they have ASD! Essentially deflecting any responsibility away from themselves! They will also take full advantage of all the various adjustments that are in place for people who have these conditions! An ex colleague of mine ( child development professional) was actually convinced that many kids are misdiagnosed with ADHD and ASD when what they actually have is Attachment Disorder caused by neglectful parenting! Many many of the symptoms crossover and both conditions present very similarly.

"Essentially deflecting any responsibility away from themselves! "

how dos that work when constantly parents of ND children are judged, ostracized and mocked? Stop parroting these silly soundbites which don't make sense.

lovelysunshine22 · 18/07/2024 10:42

@Alwaystired94 well as a parent of two ND children i can't say ive ever felt judged 🤷‍♀️.

circular2478 · 18/07/2024 10:44

@GT123

There is indeed a huge shortage of EPs, but they can’t diagnose autism or ADHD. So saying ‘a lot of them won’t do a diagnosis until X’ simply isn’t true

EP's can and do diagnose these conditions as part of a multidisciplinary team. You can find a list of professionals who can be part of these assessments in the NICE guidelines.

Alwaystired94 · 18/07/2024 10:45

lovelysunshine22 · 18/07/2024 10:42

@Alwaystired94 well as a parent of two ND children i can't say ive ever felt judged 🤷‍♀️.

goodie for you, you definetly have been though as i've yet to encounter a single parent of ND children who would agree with you.

Were you never told if you had nothing nice to say, don't say anything at all? You've come onto a thread where the OP is talking about discrimination towards those with Autism and have literally proved their point. Do better,

Againlosinghope · 18/07/2024 10:46

lovelysunshine22 · 18/07/2024 10:42

@Alwaystired94 well as a parent of two ND children i can't say ive ever felt judged 🤷‍♀️.

Your experience isn't the experience most of us have. But maybe your children had the 'right' autism presentation. Maybe you didn't have to fight to have your child's needs recognised

WaitingForMojo · 18/07/2024 10:46

lovelysunshine22 · 18/07/2024 10:42

@Alwaystired94 well as a parent of two ND children i can't say ive ever felt judged 🤷‍♀️.

That’s lovely for you! As a parent of four ND children, I feel judged every day even by my own family.

You don’t feel judged reading the ableist threads on mn? Seeing how many people view your dc and attribute any difficulties to your parenting? You must have very different experiences of schools and the health service than I do, too!

Morph22010 · 18/07/2024 10:46

lovelysunshine22 · 18/07/2024 10:38

@Morph22010 yes the people for DLA and EHCP have to be convinced separately but you have a far greater chance of convincing them if you have a diagnosis than if you don't have one!

Dla was fairly straightforward for us as I didn’t apply till after we had the ehcp. The whole ehcp was really difficult, stressful and soul destroying and I have a child who is very obviously autistic and school agreed with us. I don’t know how many hours of my life I’ve spent on ehcp and becoming proficient in Sen law in order that my child can access an education which is what most other people take for granted. If he didn’t need the ehcp I could have spent that time doing something else, it’s certainly something I would not choose to be doing if I didn’t have to and defiantly not an easy way to anything. When you say “faking” do you mean people know their child is not autistic and are genuinely faking or do you include people who genuinely think their child is Autistic but you don’t?

lovelysunshine22 · 18/07/2024 10:46

@Againlosinghope @Periwinkl3 you are simply living in denial that this happens! You carry on with your denial because it makes no difference to me! However it does make a massive difference to waiting lists for your children when they are clogged up with children and parents who don't need to be there! I honestly don't understand why so many parents of children with a disability have such a blinkered mentality!

Morph22010 · 18/07/2024 10:47

lovelysunshine22 · 18/07/2024 10:42

@Alwaystired94 well as a parent of two ND children i can't say ive ever felt judged 🤷‍♀️.

Luckily you don’t have to meet yourself

lovelysunshine22 · 18/07/2024 10:47

@WaitingForMojo No i don't feel judged! Everyone is entitled to their opinion and i don't define myself or my children by their disability.

WaitingForMojo · 18/07/2024 10:48

The exclamation marks are so silly that they’re making me doubt this is a genuine poster.

circular2478 · 18/07/2024 10:49

@lovelysunshine22
Luckily things have changed. As a private clinic we have very close links to NHS. In fact we are given nhs contracts that are tendered for. It's a rigorous process.

WaitingForMojo · 18/07/2024 10:50

lovelysunshine22 · 18/07/2024 10:47

@WaitingForMojo No i don't feel judged! Everyone is entitled to their opinion and i don't define myself or my children by their disability.

Well, I do define myself and them that way, and feel it would be detrimental to them not to. I am an autistic person, and that is my identity. And for me, it’s impossible to separate that from any part of who I am.

lovelysunshine22 · 18/07/2024 10:50

circular2478 · 18/07/2024 10:49

@lovelysunshine22
Luckily things have changed. As a private clinic we have very close links to NHS. In fact we are given nhs contracts that are tendered for. It's a rigorous process.

And thats a good thing! However not all private practice is as professional as you will know!

lovelysunshine22 · 18/07/2024 10:51

WaitingForMojo · 18/07/2024 10:48

The exclamation marks are so silly that they’re making me doubt this is a genuine poster.

Ah yes i must be troll because i disagree with you 🙄