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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Anyone else noticing the uptick in open hostility towards people with ASD?

949 replies

FFSakeDrinkSake · 17/07/2024 03:05

As the title says. It feels like it's open season recently. In the last few weeks alone I've seen many threads questioning the validity of Asd, the credentials of those diagnosing the condition, the 'explosion' of diagnosis', the 'fact' that you qualify for extra benefits if you are autistic and/or have ADHD, the apparent drain on resources kids with ASD have on the educational sector depriving others and most recently the idea that someone (self diagnosed) can 'outgrow' autism. Most of which contain the worst misinformation about what we're trying to deal with on a daily basis and making it sound like we're just trying to .. i dont even know tbh.. scam our way through life?

Disclaimer NATAAT.

OP posts:
Thread gallery
17
QuitChewingMyPlectrum · 17/07/2024 23:11

Atethehalloweenchocs · 17/07/2024 22:38

Like a lot of things (anxiety disorders for one), the piss takers have spoiled it for everyone.

  1. I think there are people self diagnosing or going to the mills that give out ASD/ADHD diagnosis to anyone who pays, and it devalues the diagnosis.
  2. Some of the rationale I hear for people claiming ASD are normal behaviours, they just dont want to do things that they dont want to do.
  3. Related to the first point, the piss takers then ask for all kinds of adjustments. It is right people have adjustments if they need them. But for example, I got really pissed off when trying to park, get my mothers wheelchair out and manage her into the shops while all the bloody disabled spaces were taken up. I think those spaces should be reserved for mobility related disability.

If you had a kid that was a flight risk, or was completely overwhelmed by new places and would have to leave double quick to avoid them hurting themselves or others I'm not sure you'd be saying one disability requires a parking space more than another

Againlosinghope · 17/07/2024 23:12

Perzival · 17/07/2024 23:00

No I joke about situations. Eg wanting to put a cattle prod on the front of ds' wheelchair to stop people standing right infront of him or if he gets out of his wheelchair and runs wanting to shout "it's a miracle, thank the lord" to onlookers who don't understand that some people who use wheelchairs can not only walk but run at times. Him using his aac device to describe a hippo when a large lady got in an elevator with us (he didn't do this deliberately or in a hurtful manner).

Some situations although very serious do need to be laughed at or we'd all go crazy.

So whilst you understand that some wheelchair users are also able to walk at times you don't understand that some autistic people can appear NT in some situations event if this causes consequences later
In your view they must be fake autistic not masking. But your son walking around isn't fake wheelchair user is he?

No33 · 17/07/2024 23:13

Wow, the thread perfectly shows the ops point.

Bravo Mumsnet.

Perzival · 17/07/2024 23:14

Againlosinghope · 17/07/2024 23:12

So whilst you understand that some wheelchair users are also able to walk at times you don't understand that some autistic people can appear NT in some situations event if this causes consequences later
In your view they must be fake autistic not masking. But your son walking around isn't fake wheelchair user is he?

That's a bit of a stretch and not at all near to what I've said.

Againlosinghope · 17/07/2024 23:15

Onemoreterm · 17/07/2024 23:07

we had to hire extra invigilators to cover all the extra needs - lot of anxiety/mental health issues and all the kids have the right paperwork. Then it’s not just extra-timers and/or laptop use or scribes but we also had a couple this year who needed rest breaks.

funnily enough over half of our psychology students had ‘needs’ by the exam dates.

parents are more than happy to pay for assessments. Slow-processing seemed a popular route

Oh my god I would love for my child to not have slow processing disorder, unfortunately they do and it impacts their learning. They won't do any exams because the education support has been dire

No33 · 17/07/2024 23:16

Shinyandnew1 · 17/07/2024 06:59

It clearly varies by area. In my area, a diagnosis of ADHD or ASD is only given by a paediatrician.

In my area there are various routes, it's so baffling

My son was diagnosed by a paediatrician, however my nephew went the cahms route. Both live in the same small town!

Atethehalloweenchocs · 17/07/2024 23:17

QuitChewingMyPlectrum · 17/07/2024 23:11

If you had a kid that was a flight risk, or was completely overwhelmed by new places and would have to leave double quick to avoid them hurting themselves or others I'm not sure you'd be saying one disability requires a parking space more than another

Yes, maybe so. But it was really difficult to be struggling with my poor elderly mum when people were pulling up into disabled spaces with their sporty little jobbies, and strolling off into the store. There needs to be more balance in terms of what is offered. I am not saying no ASD should qualify. But there are way too many people with disable badges at the moment.

Againlosinghope · 17/07/2024 23:17

Perzival · 17/07/2024 23:14

That's a bit of a stretch and not at all near to what I've said.

Apologies, I thought you were saying that there were people faking autism

FFSakeDrinkSake · 17/07/2024 23:19

WaitingForMojo · 17/07/2024 22:45

Well, this thread certainly made your point well, didn’t it OP!!

It’s been an extremely distressing read, considerably worse than I thought it would be tbh.

OP posts:
No33 · 17/07/2024 23:23

FFSakeDrinkSake · 17/07/2024 23:19

It’s been an extremely distressing read, considerably worse than I thought it would be tbh.

I agree. It's really sad. I don't know what we can do about it, people aren't willing to change their preconceptions and would rather believe media hyperbole, than listen to those on the ground experiencing it.

I hope someday non visible disability will be viewed the same as physical. But I doubt that will be in my lifetime.

Thepottingshed · 17/07/2024 23:23

DrRuthGalloway · 17/07/2024 23:03

This is ridiculous conspiracy theorising. The local authority -an education service - does not hold the sway of influence on how the NHS foundation trust -an health service - decides to run its referral systems. Much more likely that the NHS wants to add a "layer of friction" to stem the rising tide of referrals; nothing to do with LA budgets.

Apart from the complex communication diagnostic service in our Borough is run by a CiC, commissioned by the Borough and NHS jointly (the 'joint' bit being to save them both money).

So it is LA money. Post 2012 LAs were able to run commissioning for lots of health services themselves; ours went all in for as much as they could. The paediatrician is not employed by the NHS, the SALT is LA, OT is LA. Etc.

Perzival · 17/07/2024 23:24

Againlosinghope · 17/07/2024 23:17

Apologies, I thought you were saying that there were people faking autism

No, I think some people are able to buy a dx if required/ wanted although highly doubt they'd go around every day doing so.

I believe people are impacted differently by autism. Some people have families and careers and others will require constant supervision and help with every detail of life. I think the dx should be separate so that there is a clearer meaning and understanding of what autism looks like for that person. I agree with the proposal to pull out and separate profound autism which has been floated around recently.

I believe autism is a disability even if those with a dx don't see it that way, as to get the dx you'd have to have decifeit in functioning.

I can't imagine why anyone would want to have autism let alone fake it. I have said if I could I'd cure my son in a heartbeat.

PoliteCritic · 17/07/2024 23:25

Atethehalloweenchocs · 17/07/2024 23:17

Yes, maybe so. But it was really difficult to be struggling with my poor elderly mum when people were pulling up into disabled spaces with their sporty little jobbies, and strolling off into the store. There needs to be more balance in terms of what is offered. I am not saying no ASD should qualify. But there are way too many people with disable badges at the moment.

I agree there is too much competition for disabled spaces at the moment. It makes life impossible for those who physically can not get out of the car without a larger space. My sister who is a permanent wheelchair user just parks over two parking spaces and appeals the inevitable tickets. But I know some people just go back home.

Laughingoverspiltmilk · 17/07/2024 23:26

Againlosinghope · 17/07/2024 23:15

Oh my god I would love for my child to not have slow processing disorder, unfortunately they do and it impacts their learning. They won't do any exams because the education support has been dire

Genuine question - I've always been told there's no specific disorder that is 'low processing disorder'. A child having low processing can be a factor in another diagnosis for the child, but it's not a standalone diagnosis. Is that wrong?

Not challenging your child's need for/right for adaptations, just looking to see if I've misunderstood the position myself!

PoliteCritic · 17/07/2024 23:28

@Perzival there are people who fake all sorts of illnesses and disabilities from cancer to epilepsy.

Laughingoverspiltmilk · 17/07/2024 23:29

Perzival · 17/07/2024 23:24

No, I think some people are able to buy a dx if required/ wanted although highly doubt they'd go around every day doing so.

I believe people are impacted differently by autism. Some people have families and careers and others will require constant supervision and help with every detail of life. I think the dx should be separate so that there is a clearer meaning and understanding of what autism looks like for that person. I agree with the proposal to pull out and separate profound autism which has been floated around recently.

I believe autism is a disability even if those with a dx don't see it that way, as to get the dx you'd have to have decifeit in functioning.

I can't imagine why anyone would want to have autism let alone fake it. I have said if I could I'd cure my son in a heartbeat.

For what it's worth I agree too. I just don't think that people should be talking about me and someone with profound autism as part of the same classification. Our needs are clearly different and (from my perspective) obviously the person with profound autism's needs should trump mine 99% of the time. It doesn't help anyone.

Perzival · 17/07/2024 23:30

PoliteCritic · 17/07/2024 23:28

@Perzival there are people who fake all sorts of illnesses and disabilities from cancer to epilepsy.

They must have mh needs surely. I do know someone who lied about having cancer, she definitely has unmet needs.

NineChickennuggets · 17/07/2024 23:32

"I think those spaces should be reserved for mobility related disability."

ASD can cause difficulties, sometimes severe difficulties, with mobility.

Atethehalloweenchocs · 17/07/2024 23:32

lovelysunshine22 · 17/07/2024 22:43

@SummerDays2020 no i didn't say that! I said that they think mental health issues are one of the things that the workshy brigade use to get signed off work and get benefits!

Completely agree with this- increasing numbers of people coming into a first session (I am a psychotherapist) demanding letters saying they cant work and shouldnt have to apply for jobs. They are often genuinely amazed (and really angry with me) when I tell them that I am certainly not going to say any such thing before they have undertaken a full course of treatment and made a genuine attempt to engage with it. It makes me so angry that there are people like this blocking up the system for people genuinely in need. And from being very liberal and supportive, it is pissing me off when people game the system by claiming MH. If the person is genuine, I will go to the end of the earth to support and advocate for them. But I have no time for the piss takers.

Perzival · 17/07/2024 23:33

@Laughingoverspiltmilk I don't think needs should be trumped although I understand what you're saying. I just think they're so vastly different that describing them by the same dx doesn't help anyone.

Barnabyby · 17/07/2024 23:34

Purplebiscuitwithsprinkles · 17/07/2024 05:38

A friend works in a Primary school and it appears every person and its dog wants a diagnosis for something. There is a huge shortage of Educational Psychologists and a lot of them won't do a diagnosis until children get to Secondary but parents still push and push.

My friend has decided that this is her final term as a SENDCO (going to start up her own business in nothing to do with Education) the stress has made her very ill. The behaviour of parents is abhorrent and the constant wanting EVERYTHING diagnosed and not understanding that things take time and in a lot of cases money the school doesn't have has broken her.

Parents have posted things about her online, have made vile comments whilst she's out and about (I have been witness to this) and in general just not stopped to think how else they can support their child. With some it's almost an obsession (seen this in other friends when their children display symptoms usually behavioural issues) as they believe once they have that diagnoses all will work out.

It's very worrying that genuine cases are being overshadowed by the behaviour of SOME parents and their inability to understand that not every child has ASD or another difficulty. I do hope that the Government invests more into SEND and the training of EPs.

I'm a teacher and I agree wholeheartedly with every word you've said here.
It is creating an obscene amount of work for us and we just don't have the time or money to deal with this demand.

In reality, a diagnosis doesn't really do anything. It might write a document listing all the things that can be done to support your child, but if there's no money or time to actually do any of these things, it's a pointless piece of paper.

So many parents as well expect their child to be given a 1:1 adult as a result of a diagnosis. It just isn't that simple unfortunately.

PoliteCritic · 17/07/2024 23:37

Perzival · 17/07/2024 23:30

They must have mh needs surely. I do know someone who lied about having cancer, she definitely has unmet needs.

It can be MH needs. People also lie for personal gain. To grift money, to get out of trouble at work or school or other reasons where they gain something. Most people would never dream of doing this, but a small minority do. I remember in a Disney facebook group a mother said she lied about her DC having ASD so the family got a DAS pass which cut queuing. It is because of people like this that most places ask for proof.

MidnightMeltdown · 17/07/2024 23:37

To be completely honest, I think that people who don't have direct experience of ASD often struggle to understand what it actually is (myself included). It seems to be an umbrella term which is used to cover an enormous range of different things. It can mean anything from very severe disability, where someone wears a nappy and is unable to speak, to someone who is high functioning with a successful career, who is just slightly neurodivergent.

I'm no expert, but to me, as a layperson, the definition of ASD is not meaningful or helpful. It would be easier if it was broken down into separate disorders or graded in some way. When something is described as a spectrum disorder I think it takes away from just how serious this condition can be for some people.

Perzival · 17/07/2024 23:43

PoliteCritic · 17/07/2024 23:37

It can be MH needs. People also lie for personal gain. To grift money, to get out of trouble at work or school or other reasons where they gain something. Most people would never dream of doing this, but a small minority do. I remember in a Disney facebook group a mother said she lied about her DC having ASD so the family got a DAS pass which cut queuing. It is because of people like this that most places ask for proof.

I agree and realise this. Like I said upthread I've seen this sort of thing in rap queues and there are Facebook pages advising on how to do it (theme parks).

I can't I.agine someone going around flapping or swimming etc or faking meltdown.