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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask for help re adhd meds

41 replies

Behappyandbehave · 20/06/2024 08:26

My dd (20) has just being diagnosed through right to choose on nhs. Unfortunately this was with a private clinic that doesn't include titration. So for her to start meds we need to pay privately. Or wait for a never ending nhs appointment for diagnosis to come through.
It seems to be a minefield of which medication will suit her. I know they are the experts and will suggest what they think suits her but I'm still worried about negative side effects.
She has in the past suffered migraines and all meds say headaches can occur.
She's just come off sertraline and is fairly settled now without it but has previously had anxiety and depression.
She's also overweight and unmotivated to do anything about despite this being the main thing that upsets her.
She won't be in a relationship with anyone and ignores calls/texts from friends alot.
She is impulsive and takes risks, talks too much etc etc.
Really unsure whether she needs stimulants or non stimulants.
Would really appreciate any advice and other's experiences. Just want to get this right for her and help her improve her life. Not to mention the fact that each appointment is going to be around £250 and meds and prescription all extra!

OP posts:
nearlysummerhooray · 21/06/2024 13:42

BonifaceBonanza · 21/06/2024 13:38

It’s not really relevant whether there are any doctors on the team? An ordinary doctor is completely unable to diagnose adhd, whereas according to the nhs, a specialist nurse can

It is if you want other people e.g. the GP to accept the diagnosis. Many will disagree that a nurse can diagnose, and if the diagnoser isn't a prescriber then they're asking the GP to prescribe something that they can't do themself.

BonifaceBonanza · 21/06/2024 13:42

Behappyandbehave · 21/06/2024 13:32

Yes the GP will accept shared care once she is settled on meds and if it's a psychiatrist report. Not a nurse. But we will have to pay for titration privately (or wait for nhs diagnosis)

This isn’t a bad deal at all, you just need to pay for titration and meds til they are stable.

BonifaceBonanza · 21/06/2024 13:45

nearlysummerhooray · 21/06/2024 13:42

It is if you want other people e.g. the GP to accept the diagnosis. Many will disagree that a nurse can diagnose, and if the diagnoser isn't a prescriber then they're asking the GP to prescribe something that they can't do themself.

Edited

Yes as I said in my post above, this doesn’t prevent NHS/GP from accepting the diagnosis, since the organisations using specialist nurses are commissioned by the NHS for provision of ADHD diagnosis services therefore NHS finds this acceptable.

If you check the NICE guidelines you will see clearly that a doctor or psychiatrist is not a requirement

5237red · 21/06/2024 13:45

BonifaceBonanza · 21/06/2024 13:38

It’s not really relevant whether there are any doctors on the team? An ordinary doctor is completely unable to diagnose adhd, whereas according to the nhs, a specialist nurse can

I've seen multiple ADHD360 diagnostic reports from pharmacists. I would agree to avoid, particularly if you have a complex history.

nearlysummerhooray · 21/06/2024 13:48

BonifaceBonanza · 21/06/2024 13:45

Yes as I said in my post above, this doesn’t prevent NHS/GP from accepting the diagnosis, since the organisations using specialist nurses are commissioned by the NHS for provision of ADHD diagnosis services therefore NHS finds this acceptable.

If you check the NICE guidelines you will see clearly that a doctor or psychiatrist is not a requirement

If you want to maximise the chances that your GP will accept the diagnosis, get it made by a psychiatrist.

LondonPapa · 21/06/2024 13:49

If she has just come off anti-depressants, she should wait up to 6-months before starting ADHD medication - source: my titration but everyone is different. Nearly all come with a risk of increased depressive or anxiety moods.

That said, if she’s still low moods and no motivation, why has she come off anti-depressants? Why is she not doing therapy? She would be better off tackling her depression first and then the ADHD as while the two go hand in hand, depression is harder to medicate away.

Brendabigbaps · 21/06/2024 13:49

amusedbush · 20/06/2024 14:12

You're right about it not being typical but I was allowed to choose which meds I started on (NHS titration). The standard procedure for stimulants is to start everyone on Concerta and see how they get on before exploring other options.

I had my own reasons for not wanting to try Concerta, which I explained at my first appointment, and I asked to start on Elvanse instead. The psychiatrist went off and did a bit of research, then agreed a couple of days later. Luckily Elvanse is a perfect fit for me so I completed titration and have been on 60mg for 2+ years.

Edited

Interesting, but not true.
the area I live start everyone on medikinet

nearlysummerhooray · 21/06/2024 13:53

Brendabigbaps · 21/06/2024 13:49

Interesting, but not true.
the area I live start everyone on medikinet

Things are a bit atypical at the moment because of shortages, they may be doing that as you can get medikinet more reliably than other preparations.

Brendabigbaps · 21/06/2024 14:01

nearlysummerhooray · 21/06/2024 13:53

Things are a bit atypical at the moment because of shortages, they may be doing that as you can get medikinet more reliably than other preparations.

no, this goes back at least 3 years ( when many of my family were titrated and I started working within adhd field)

IgnoranceNotOk · 21/06/2024 14:05

DB had a really awful experience with stimulant meds.
Since then he’s also now diagnosed with ASC and is hyper sensitive to any medication so is waiting to try non stimulants now.

The stimulants affected his bowels and from that he ended up with an eating disorder.
Obviously meds work differently for everyone but just remember these are drugs (even if the doctors say it’s not the same as illegal ones - seems no different if you react like he has).

Hopefully it’ll be a similar road for your DD.

amusedbush · 21/06/2024 14:26

Brendabigbaps · 21/06/2024 13:49

Interesting, but not true.
the area I live start everyone on medikinet

Okay, the standard procedure is to start everyone on methylphenidate. Is that better? Hmm

Everyone else I know who has been through titration privately or via the NHS has started on Concerta but Medikinet is still methylphenidate, just a different formulation/release speed.

My point stands. It's standard to start on (whatever brand of) methylphenidate before moving to alternatives, but I was allowed to start on lisdexamfetamine.

IgnoranceNotOk · 21/06/2024 14:27

IgnoranceNotOk · 21/06/2024 14:05

DB had a really awful experience with stimulant meds.
Since then he’s also now diagnosed with ASC and is hyper sensitive to any medication so is waiting to try non stimulants now.

The stimulants affected his bowels and from that he ended up with an eating disorder.
Obviously meds work differently for everyone but just remember these are drugs (even if the doctors say it’s not the same as illegal ones - seems no different if you react like he has).

Hopefully it’ll be a similar road for your DD.

Simpler* 🤦🏻‍♀️

Brendabigbaps · 21/06/2024 14:41

amusedbush · 21/06/2024 14:26

Okay, the standard procedure is to start everyone on methylphenidate. Is that better? Hmm

Everyone else I know who has been through titration privately or via the NHS has started on Concerta but Medikinet is still methylphenidate, just a different formulation/release speed.

My point stands. It's standard to start on (whatever brand of) methylphenidate before moving to alternatives, but I was allowed to start on lisdexamfetamine.

Much better yes thanks!

as an obviously adhd person you should probably know better than getting into an argument with another adhd person, we both want to be right.

amusedbush · 21/06/2024 14:52

Brendabigbaps · 21/06/2024 14:41

Much better yes thanks!

as an obviously adhd person you should probably know better than getting into an argument with another adhd person, we both want to be right.

That's very much an autistic trait so if you haven't already been diagnosed, you might want to look into that Grin

(Yes, I'm also autistic!)

Brendabigbaps · 21/06/2024 14:55

amusedbush · 21/06/2024 14:52

That's very much an autistic trait so if you haven't already been diagnosed, you might want to look into that Grin

(Yes, I'm also autistic!)

I’m already dual diagnosis but it’s actually a trait of both conditions 😛

amusedbush · 21/06/2024 14:58

Brendabigbaps · 21/06/2024 14:55

I’m already dual diagnosis but it’s actually a trait of both conditions 😛

Zero surprise from me - we can spot each other a mile away 😅

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