Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Advice on (possibly private) health investigations for dd16 - hormones

5 replies

EmeraldDreams73 · 05/06/2024 12:35

Hi, sorry if this is wrong place to post.

My dd (nearly 16, mid exams) suffers horribly with period pain. She's on the pill, we've changed it a few times, any improvements are shortlived. Been advised by GP to take 3 packs consecutively so she only has a bleed once every 9 weeks. Done that for probably 18 months now, so well established cycle.

She is very overweight (5'8, size 18) despite being extremely active and submitting food diaries etc. She eats half what her skinny friends do and is getting more and more upset. GPs can only suggest no carbs which as a dancer makes her feel faint etc. I'm very conscious of contributing to an eating disorder too but no sign of that, just upset about her weight. Obvs it's about her general health mainly but appearance is bothering her too.

She's now getting severe pain a week before the last pill of the third packet, so that lasts about 2 weeks before she even starts bleeding, then pain continues through that of course. After a couple of days of bleeding she starts the next pack of pills. 5 days later, bleeding and pain eventually stop and she's fine again.

She's also been having random bowel issues as well for 3 months ish. I put it down to exam stress and got her a food sensitivity test just in case. We've worked on cutting down/out anything that came up which has helped quite a bit but is restrictive.

She has had a Myoovi tens machine for a year or so, uses it loads and loves it - but even with max doses of painkillers and that on full blast, she's in so much pain. It's heartbreaking and I'm desperate to get to the bottom of it for her.

GP is now referring her for a laparotomy (?) to look for endometriosis and possible ablation if they find any. She doesn't think PCOS is consistent with symptoms. They have suggested a Mirena coil which dd is very anti (won't even use tampons). I'm concerned that it won't help and will just be traumatic for her, docs obvs just say it might help which to her mind isn't a good reason to go through that if not sure.

Does anyone have any advice? I'm happy to borrow the money to have some investigations privately. Just feel I'm banging my head against a brick wall with different GP every time and getting nowhere. In the meantime, she's sitting exams in severe pain, drugged up to the eyeballs and with her tens machine on.

Any ideas also gratefully received on how to go about getting some help privately, if GP referral is likely to take forever?

Thanks for reading.

OP posts:
jellyfrizz · 05/06/2024 12:53

An underactive thyroid can cause weight gain, heavy periods and constipation.

Take a look at the symptoms and see if they tally:
https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/symptoms/
If so ask the GP to test thyroid levels.

Hope you get to the bottom of it.

nhs.uk

Underactive thyroid (hypothyroidism) - Symptoms

Read about the symptoms of an underactive thyroid (hypothyroidism), including tiredness, weight gain, depression and increased sensitivity to cold.

https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/symptoms

kitteninabasket · 05/06/2024 12:58

Have they said why they're doing a laparotomy instead of a laparoscopy? A laparotomy is much more invasive.

It does sound like it could be endometriosis. A private doctor is likely to recommend a lap too so not sure what going private will achieve other than getting the procedure done more quickly. There aren't a lot of treatment options besides contraceptives and a lap and ablation/excision (excision is often recommended over ablation). A lap can provide a lot of relief. You can request that she is referred to an endometriosis clinic on the NHS to ask for a second opinion.

If you do want to go private then look at the gynae profiles and make sure you choose an endometriosis specialist. Have a look on the Bupa or Nuffield websites.

EmeraldDreams73 · 05/06/2024 17:47

jellyfrizz · 05/06/2024 12:53

An underactive thyroid can cause weight gain, heavy periods and constipation.

Take a look at the symptoms and see if they tally:
https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/symptoms/
If so ask the GP to test thyroid levels.

Hope you get to the bottom of it.

Thank you, yes she has been tested for thryoid issues but bloods came back OK. About a year ago. Might be worth asking again, not sure.

OP posts:
EmeraldDreams73 · 05/06/2024 17:54

kitteninabasket · 05/06/2024 12:58

Have they said why they're doing a laparotomy instead of a laparoscopy? A laparotomy is much more invasive.

It does sound like it could be endometriosis. A private doctor is likely to recommend a lap too so not sure what going private will achieve other than getting the procedure done more quickly. There aren't a lot of treatment options besides contraceptives and a lap and ablation/excision (excision is often recommended over ablation). A lap can provide a lot of relief. You can request that she is referred to an endometriosis clinic on the NHS to ask for a second opinion.

If you do want to go private then look at the gynae profiles and make sure you choose an endometriosis specialist. Have a look on the Bupa or Nuffield websites.

Thank you so much. Tbh I think it was a laparoscopy they mentioned, that's me being thick - I need to google the difference. I'd prefer not to go private if I can help it as we really can't afford it, so I'll try to find out the likely waiting time and go from there.

OP posts:
kitteninabasket · 05/06/2024 19:34

Not thick at all - the terminology is confusing! A laparotomy is where they make a large cut to see inside, whereas a laparoscopy is usually three very small incisions, one of which they feed a camera through.

Endometriosis UK is a really good resource. Here’s some info on the process of getting diagnosed and laparoscopies:

https://www.endometriosis-uk.org/sites/default/files/2022-09/Getting%20Diagnosed.pdf

https://www.endometriosis-uk.org/sites/default/files/2022-09/Laparoscopic%20Surgery%20%28002%29.pdf

Plus an FAQ:

https://www.endometriosis-uk.org/faqs

https://www.endometriosis-uk.org/sites/default/files/2022-09/Getting%20Diagnosed.pdf

New posts on this thread. Refresh page