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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Slept til 5pm today and so angry at myself

49 replies

Sleepingallthetime · 30/04/2024 19:55

For the past year I’ve been really struggling with sleeping all the time. At one point it got really bad and I tried to get help from the doctor who said I could have sleep apnea but I haven’t got a machine.

I’m 28.

It did get better for a while where I could wake up by 10am, but it’s just getting worse.

Today I slept 11pm last night to 5pm today. I literally cannot be properly waked by my partner. I usually wake up briefly for 10 minutes, try to
stay up but end up sleeping. When I do manage to wake up early, I can fall asleep at my coffee and spill it all over myself!

I am so mortified and angry at myself for today. I’ve missed work (self employed) and the day is already gone. I’m so embarrassed about this but I think they think I’m overreacting.

Any advice? This is ruining my life :(

OP posts:
Minimili · 01/05/2024 01:52

Do you have an Apple Watch?

I have terrible sleep patterns and I sleep eat, sleep walk and wake up randomly and can’t get back to sleep for hours.

My GP wasn’t that helpful and just gave me a chat about good sleep hygiene and suggested things like avoiding screens, exercising, having a milky drink before bed etc…
I try to avoid screens but sometimes when I’ve been awake for hours I end up scrolling, I swim for an hour every night, I tried lavender and a diffuser with aromatherapy oils and herbal sleeping tablets.

I recorded my sleep with my Apple Watch which shows a detailed record of the nights sleep with oxygen levels, heart rate, sleep stages etc…
I showed my GP and she realised how bad it was, I’ve now got a referral to a sleep clinic, I’ve had bloods taken and I was prescribed short term sleeping tablets to try to reset my body.
I was the same and sleeping till 5pm - or even later because when I finally fell asleep I couldn’t wake up.

Sometimes it helps to have solid proof and the Apple Watch might pick up sleep apnea.
You could even try a fit bit if the Apple Watch is too pricey, my friend has sleep issues so she got the Fitbit and pays for premium to get accurate readings.

I know how upsetting and frustrating it is to sleep the day away and the feeling of not being able to wake up. It’s especially hard in nice weather when you miss out on sunny days. I worked nights for nearly 20 years and it’s not so bad in winter being asleep when it’s cold and miserable outside, it’s a horrible feeling in summer though.

oakleaffy · 01/05/2024 05:04

jennylamb1 · 30/04/2024 20:18

Do you have symptoms for an underactive thyroid? Weight gain, brain fog, taking a long time to heal, getting colds a lot?

THIS ...I was falling asleep {but much older than you, @Sleepingallthetime }
I could be in a pub with friends, and just fall asleep. {I don't drink}, or would fall asleep just sitting down.

They used to say ''Whoops....she's going.....''

Underactive thyroid.

Cantbebotheredwithausername · 01/05/2024 05:34

Narcolepsy is another option.

I'll join the choir: See a doctor. It's not your fault, and not due to laziness. Pursue a diagnosis, and don't let them fob you off.

Ace56 · 01/05/2024 05:41

I don’t really understand why you’re angry with yourself about it - it’s obviously not your fault and you have something seriously wrong. Sleeping for 18 hours is not normal at all and most people will not do that even once in their lifetime. I would be more worried than angry - get back to the doctor asap.

parababe · 01/05/2024 06:36

Definitely see your GP - They should do something called an Epworth Sleepiness Scale which will give you a number/score I think out of 25 - Contact GP and tell them your Epworth score as this is one of the first things they will do. They should also arrange blood tests for you (Vit levels, thyroid etc) - If you are regularly managing to sleep that much I would suggest there would be a medical reason behind it! Good Luck!

Gleepbleepable · 01/05/2024 08:03

Sleepingallthetime · 30/04/2024 19:55

For the past year I’ve been really struggling with sleeping all the time. At one point it got really bad and I tried to get help from the doctor who said I could have sleep apnea but I haven’t got a machine.

I’m 28.

It did get better for a while where I could wake up by 10am, but it’s just getting worse.

Today I slept 11pm last night to 5pm today. I literally cannot be properly waked by my partner. I usually wake up briefly for 10 minutes, try to
stay up but end up sleeping. When I do manage to wake up early, I can fall asleep at my coffee and spill it all over myself!

I am so mortified and angry at myself for today. I’ve missed work (self employed) and the day is already gone. I’m so embarrassed about this but I think they think I’m overreacting.

Any advice? This is ruining my life :(

I've been going through a similar thing, not quite as extreme, but have gone from 6hrs sleep being enough to being permanently fatigued no matter how much sleep I get. I've put it down to my last covid infection, which was relatively mild compared to the previous two. Could it be post viral?

Misthios · 01/05/2024 08:07

Definitely GP. Full blood screen as a starting point, especially thyroid levels.

ruffler45 · 01/05/2024 08:07

Dont worry about it it is just your body catching up. Discuss with GP but sleep when you are tired until your body gets back into a regular pattern. Gettng 10 mins here and there will help.

blueandgreenandyellow · 01/05/2024 08:14

poor you
I had crashing fatigue once and for a year would go back to bed in the day.
in my case the peri menopause (fluctuating oestrogen£ exacerbated my other underlying conditions which also cause tiredness and which were;

  • hashimotos / under active thyroid
you should ask for a thyroid test. Do you have any other symptoms? Low mood, hair loss, slow weight gain. Felt tired all the time. Under active thyroid is like slow creep sloth but it's easy to treat.
  • anaemia - this can really slow you down.
get your iron levels checked and your iron reserves.
  • Mild sleep problems pre apnea (made me tired but not exhausted) - now sleep propped up and with nose strips).

Go back to gp - go to another one in the practice - and ask for a full blood count. Ask also for your thyroid to be tested. If they thinks it could be sleep apnea the doctor can refer you to a sleep clinic. If you can't wait you can order a sleep test yourself and bring the results to to the gp - but it costs. There's a private company online that rents out the sleep monitor and gives your results - about 175.
re thyroid - the English range of normal is quite broad and I was symptomatic at the high end of normal.

other things that helped: routine, exercise every day, not drinking before bed

Crystallizedring · 01/05/2024 08:19

You should be angry with your GP, not yourself. I can't believe they thought it was sleep apnea and didn't refer you to hospital for a sleep study.
Tbh it doesn't sound like it is that (although I only know two people who have been diagnosed so you might just have a more severe case) and agree with the everyone else. See a GP, if there is only one GP ask for a second opinion, there must be a way to get one. At an absolute minimum they should be doing blood tests.

DoAWheelie · 01/05/2024 08:20

I have struggled with similar sleep issues over the years, it goes in phases where I can hold down a normal routine for a while and then goes tits up when I can't wake up no matter what it means I miss.

There is no point in getting angry at yourself. You wouldn't beat yourself up for not being able to walk on a broken leg.

It is time to go back to the GP though. I'd ask for a blood test for your thyroid, b12, folic acid, vitamin D, and iron levels. My tests showed major issues with all of them and getting my levels more normal made things a lot better.

Also see if your sleepy episodes match up with your monthly cycle - I've found I have one or two days where I'm utterly zonked and need 18 hours sleep around ovulation time each month.

Imustgoforarun · 01/05/2024 08:27

That is not normal OP.
even my teenagers who party etc don’t sleep that long. Ignore the posts saying it’s ok - it’s not.

Get back to your GP and as someone has already said, wrote it down, be polite but assertive. It’s not normal you need tests done etc etc.

Member984815 · 01/05/2024 08:33

As above , back to gp and insist you get bloods done and really emphasise the huge impact it is having on your life , that is not normal. And keep going back to the gp until you get answers or a referral. You can't go on like this

determinedtomakethiswork · 01/05/2024 08:43

Do you have a Fitbit or an Apple Watch?

hobocock · 01/05/2024 08:46

Please do not be angry at yourself. It is not your fault. It is your body's way of telling you that something is wrong. You would not sleep that long if there wasn't an issue.
You need to go back to your GP ASAP.
Have you had a full blood work up? They should be checking thyroid, iron levels, vitamin D, everything basically.
Also how old are you? Hormone checks to establish perimenopause/menopause.
If the GP suspects sleep apnea you should be referred to a sleep clinic.

Have you had covid? I have a friend who suffered from long covid and since then she has narcolepsy. She can no longer work unfortunately because she sleeps excessive amounts of time and also drops off to sleep without warning. She also can't be woken up once she falls asleep.

Insist on more tests and investigations

Mellyisatwat · 01/05/2024 09:08

INeedToClingToSomething · 30/04/2024 20:26

"At one point it got really bad and I tried to get help from the doctor who said I could have sleep apnea but I haven’t got a machine. "

Sorry what?!? If they think you have sleep apnoea you should have her referred for a sleep study. They provide the machine for this. You aren't expected to sort it out yourself!

This could be lots of things though. I would keep going back to the GP until you get taken seriously and they start looking into it properly.

You may already be aware of this but I didn't understand this until I became chronically ill and stated to understand the system:

  • if you go to the GP they will likely initially run some blood tests as a first step. If these are negative but you are still experiencing symptoms THE GP WILL LEAVE IT WITH YOU TO GO BACK if you are still expecting symptoms. They will then try the next thing. They will only CALL YOU BACK if the results are concerning. You have to take the initiative and keep going back in. If you don't the GP will assume you don't need further investigations. (So you need to keep going back until they've looked into everything. The NHS like to check for nothing at a time, which can take a while. (Not shouting, caps for emphasis)
  • if you see one GP that fobs you off or you aren't happy with their responses. Go and see another. Find someone who listens to you, and doesn't fob you off.
  • when you go in to see a GP be very clear about your symptoms and what you are experiencing. If it helps you, write it down. They then have to stick this on your file and it makes it harder for a GP so inclined to fob you off. It also means there can be fewer misunderstandings about what you are saying.
  • If you have concerns about a specific condition, which you'd like to be ruled out, then say this. If you don't feel like you are getting anywhere and would like a referral to a specific specialty, then say this. Going in with a set of symptoms only doesn't always work, sometimes you need to direct things more.

So go back, and keep going back until you get some answers.

All of this.

Christ OP, I thought you were going to say you couldn’t sleep intil 6am and then were asleep all day.

11pm - 5pm and being difficult to rouse is worrying. I really hope you get the help you need soon. You do need to keep on at it though or you will just be fobbed off.

Bobbotgegrinch · 01/05/2024 09:16

Why on earth are you feeling angry about this OP instead of worried that theres something wrong? Get thee back to a doctor now!

Vampirelovebite · 01/05/2024 10:24

Anger is very pointless - you are clearly unwell. I hope you can get some help.

Mumofoneandone · 01/05/2024 10:44

Keep pestering your GP - I've had to do this and it's taken about 6 months to finally get a referral. My condition is completely dibilatating too....

nightmareXmas · 01/05/2024 10:45

This was me about 20 years ago and it went on for a couple of years. It turned out that there was nothing physically wrong with me and I was diagnosed with severe depression. A lot of people don't realise that depression can affect your sleep in this way. Whatever it is, it definitely needs checking out.

Goodwitch9 · 01/05/2024 14:01

PurpleCacao · 30/04/2024 20:03

I knew someone with narcolepsy and it sounded very similar to this.

I was just about to say the same thing.

Thatladdo · 01/05/2024 16:41

No referral to Respiratory physiology? GP should have sent you if they thought you had Sleep Apnea.
Ask for a referral!
Im going in 2 weeks, exiting times! 😆

CanaryMary · 01/05/2024 19:28

Oh wow that’s a crazy amount of sleep
not your fault though, sounds like you need some investigation and a sleep study to find out the cause! Obviously it’s not normal and isn’t fair that you’re missing out on so much

Charley50 · 01/05/2024 22:06

I hate to suggest this but could your partner be drugging you?

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