To be terrified my cervix won't support a pregnancy

[Lagoony]

A couple of years ago I had an abnormal smear test with low grade cell changes picked up. I went to colostomy where they identified one small area of change which they biopsies. This came back with CIN2 'moderate' changes and when I returned to hospital it was strongly advised that I have the LLETZ procedure (where they remove some cells with a heated blade thing). The other option was 'watch and wait' which my gut instinct made me lean towards as the LLETZ increases risk of miscarriage and orwterm birth but as the consultant recommended the procedure I took her advice and wrnt ahead with it.
Anyway, this part of my cervix which was removed was further looked at in a lab and it was determined that there were only CIN1 changes after all so the procedure wasn't necessary. Not only this, but when I tetuned 6 months later for the 'test of cure' smear I still had HPV. So the procedure was:

1. Unecessary

And

1. Did not cure the problem, even after the consultant said it was almost certainly to totally resolve the issue.

Now I'm left wondering if my ability to have a full term pregnancy has been compromised due to the failure of the health system to properly identify/ treat the issue conservatively. Not only that, but there's a chance I'll need further removal of cells and therefore a further increased chance of problems in pregnancy.

I honestly want to be told that I'm being a reasonable, as I'm so worried about what this could mean for my future. I haven't had children yet (I'm currently 31).

If you've had a LLETZ procedure and are deemed at a slightly higher risk (I think it depends what amount of cells were removed??? Could be wrong....) You will be put under a care pathway that includes measuring the cervix via ultrasound to look for any changes during the second trimester. If the cervix starts to show signs of weakening/opening there are things they can do to stop that happening, so it's all pretty safe 🙂

Problems aren't that common, but it will be monitored. So don't worry too much.

Sorry you had to go through it for no good reason.

That's worrying, I had that same procedure after 2 healthy pregnancies and then several miscarriages after it, didn't realise that could be the cause. I'm 16 weeks now, maybe I need to talk to my midwife.

Tbh yea can and will measure the length of your cervix and take steps if necessary to protect your pregnancy.

I have had 3 LLETZ procedures and carcinoma in situ and a cone biopsy that removed it all. I was monitored with cervix length scans through pregnancy.

No problems were noted and I had an uneventful pregnancy. Scans stopped at 30 weeks.

I actually had the opposite problem in that when I went into labour the scar tissue had caused issues and basically welded part of my cervix shut so I had a very nasty cervical tear on giving birth and a PPH.

With just one LLETZ I think you will be fine and I would rather have had the treatment in your shoes than it being left and getting worse. You will be monitored.

Speak to her tomorrow if possible as the first cervix scan is usually performed at 16 weeks (maybe depending on which hospital trust you're at?) so if it needs doing (which it might not), it'll need doing asap.

Thank you for sharing your experiences/ knowledge. I have heard they do monitor it if deemed necessary but honestly, having this procedure could potentially have all kinds of consequences they don't even know about because it isn't really very researched. I actually feel violated by the health service and the memory of what happened makes me feel sick.