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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To wonder what 'normal' looks like?

1 reply

AnnonymousMum · 07/04/2024 09:44

It has been suggested that I look into applying for DLA for DD8 who is definitely neurodivergent, awaiting an autism assessment.

Looking at the guidance I need to say what care I provide that is outside of "normal" for her age. Now she would be the first to tell me there's no such thing as normal. I'm also ND (undiagnosed but pretty sure ADHD) as is her DH (diagnosed autistic). So how do we know what 'normal' looks like?

DD is very bright, physically able and can play unsupervised in a different room from us safely for example. She can get herself dressed and ready for school using a visual checklist we created. She struggles to get ready for things out of her routine and will often cry and scream if she doesn't know what to wear. She gets overwhelmed by choices easily and needs a lot of support to calm down and decide what to wear (she won't accept us choosing for her).

That's just one example, but everything is like this. Her ability fluctuates and the things she's mastered have taken time and resources to get to this point (e.g. buying many types of pants and shoes before finding ones that work for her sensory needs).

The biggest difference I'd say is time and thought behind how we explain things. She needs each situation explicitly taught as she doesn't really generalise what she's learnt to other situations.

There are some other extra expenses like sensory "chewellery" which regulate her, nappies and bed mats as she's still wet at night, books and resources etc.

I'm probably over thinking it but don't all children need support in different areas? I'm not sure how to work out what is extra and what is just parenting.

Thanks

OP posts:
WonderingWanda · 07/04/2024 09:51

I don't have direct experience but does all this extra explaining, preparing and time taken to calm her down impact normal routines so does it make you late for work? Make her late for school? Mean you have to regularly collect her from school in the middle of the day? Does she sleep at night or are you up all night and sleep deprived meaning you can't work the next day? Would she struggle to use public transport? Does she struggle to go into shops/ crowded places making it hard for you to shop for essentials etc. Those would be impacts on normal life I would think.

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