To wonder what's the point in going down the Long COVID/ME diagnosis pathway

[QuitChewingMyPlectrum]

From what I have worked out so far, happy to be corrected on this, there is no treatment. Apparently if it’s Long Covid, they may refer you to a group of people that you talk about how crap it is. If it's ME they don't really do anything either.

My doctor discussed the possibility a couple of months ago that if I didn't feel any better by now, I may well go down that pathway.

I'm so tired I don't really think there's any point to it is there?

If anybody has any insight into this please let me know.

Currently sleeping around about 12 to 14 hours a day and not able to work very well. Brain fog and exhaustion, getting everything that is going around, switching between ear infections and throat infections.
It's bloody miserable, but I'm just wondering what the point is of going for a diagnosis?

AIBU to not bother?

If it is ME there’s a very established patient community with various charities who have loads of info, helplines etc. and depending where you are, some areas have patient support groups, some of which are very active.

I’d just sound a note of caution if you go to an ME clinic. In the past they recommended that people do graded exercise i.e exercising and increasing exercise even if you have symptoms. This was because it was believed that the illness was primarily due to deconditioning. It’s a contentious issue but a lot of ME sufferers felt that this approach made them worse, not better. If exercise is recommended to you - and it may be recommended for long Covid as well, I’m not sure - just be aware that if you don’t feel it’s right, you’re not alone and you might want to get advice from the relevant charities. I think the guidelines now say that it shouldn’t be offered or only if very strictly monitored. But there’s considerable disagreement among doctors about it.

The two supplements that I never run out of are Vit D and CoQ10.