My beautiful lovely son is severely disabled autistic with learning disabilities ,hes doubly incontinent and is completly non verbal, has next to no real understanding of anything, requires 24 hour care.hes 12 now and despite being awarded a 30 day a year respite package two years ago,ive barely been able to use the days as the closest centre to us took him twice overnight and he returned with injuries they couldn't explain and also denied.
Hes now been sourced another place a year later but weve been told if anything goes wrong thats it,there's nothing else, felt very much like put up and shut up situation. The people have came out and met him,they didnt inspire confidence, quite the opposite, they took no notes and said hed be restrained if needed, this is despite me saying he was a mild mannered child.
im so worried what will happen to us, will we be forgotten if this doesn't work.life is so so hard looking after him full time, o thought when he was young it would get easier and id get more help,my dream of a supported living facility once he turns 16/18 seems a dream too as the social worker said that was getting harder too,said the care sector has been near impossible to recruit for since pandemic and services that were reduced were never reinstated.
I cant just give him up to care, theres nowhere qualified experienced for a child like mine,plus despite all the hardship hes mine and i live him with my all.,i shudder to think where and in what state hed end up.at this rate im going to have to find a way to live forever.
Ps @mumsnet dont remove my message to sen