Why does everyone have an opinion on my personal medical problems?!

[UpUpUpU]

Just that.

Very recently diagnosed with Trigeminal Neuralgia after seeing 2 dentists and a brilliant GP.

Medication not yet working well so I’m in pain and grumpy. I’ve only told people who need to know but my son told his dad, my ex who has since it appears, spoken to everyone he knows! Ive had 3 separate texts (through my ex) of “advice” including, get a second opinion as it’s more like a tooth problem (from somebody who has never met me). One saying it can’t be TN as I’ve never had a facial injury (met this person once) and the worst, from a nurse (girlfriend of exes friend) who said my GP is talking nonsense and I need to go private for a scan.

My ex got both barrels around my confidentiality and the nurse got a reminder about the NMC Code and appropriateness of practice.

Just why does everyone become an expert!

That's really odd that they'd even be remotely interested

Well firstly, you poor thing, because I've heard that TN is the most hideous pain, so I hope your medication starts working soon!

Since you ate in pain and struggling, I think you're allowed to tell people to fuck off (you can always apologise later if you feel you should).

I'd just tell him thanks but no thanks and to stop discussing your personal matters with strangers. Weird.

Depending on what age your child is are you convinced they haven't misdecribed your condition? I personally would not tell a child that kind of detail if they were still of an age where they are under care of ex at times. It could seem like you wanted the news to reach your ex if you explained detail to DC.

You poor thing

I'm unfortunately used to this - I've been told many times by people without a clue to try things that are proven not to work. (Or because of other things I can't have)

I’d be really sarcastic and say you had no idea that they had such extensive medical knowledge.

I have lots of severe and complex health issues (lupus, Addisons, pituitary tumour, kidney issues all sorts). The amount of shit from other people I’ve had to put up with is unreal. Everyone wants to be an expert.

I mean why are they interested, unless they genuinely want to help?
I'm no medic but I have never heard of this condition until today so I surprised ex has 3 friends who have so much knowledge.

I'd be absolutely furious that he's handing your number out to all these people, how dare he!!

Hope the medication starts working soon OP.

The same way that everyone on MN is an expert on diagnosing autism.

How old is your son? Are you sure what he told his dad was accurate?

I have a chronic medical condition and get this free advice from randoms too. YANBU to be pissed off. Being in pain is difficult enough without having to deal with this nonsense.

I have a stock response 'I'm happy with the treatment I am receiving'. I say that and refuse to engage.

I mean why are they interested, unless they genuinely want to help?

Even if they genuinely want to help, that's not the way to do it.

I've had that condition, and the pain was awful. I had Amitriptyline. Your ex had no right at all to tell anyone (unless he thought he was trying to help in some way?)

Ouch, I really hope the medication kicks in soon. The worst thing I found when diagnosed with MS was other people. Everyone had an opinion on what I should do. And telling me horror stories of people they knew who'd had it and died etc.

I'm sorry you have this condition however why on earth do you feel the need to remind the nurse of the NMC code?? She hasn't broken any of it by giving some advice! It's not like she's accessing your medical records or anything... You should apologise as you have probably really stressed her out.

Everyone does it and it's so annoying
I'm allergic to heat and exercise. I've been told on here "allergic to exercise?! People will come up with any shit not to"

Then I've had "have you tried an antihistamine?"
No, never in the 27 years I've had it has anyone suggested that before including the urticaria specialist and I'm not already on 4 a day

Thankfully they found a drug that works but I wouldn't randomly inject myself monthly with a drug if I wasn't actually allergic to heat/exercise

I agree, so bizarre. OP why would you threaten someone's progressional life for saying you should ask for a scan. How would you feel if you were threatened to have your job taken away from you forever? To be honest you sound bitter and aggressive.

NMC code is irrelevant here. Agree your ex should have butted out though.