If it’s people like me, we’re not ‘not grateful’. We’d just like the problems to be sorted out so we can trust in good, timely care.
I’m sure you’d feel that way too if your husband could no longer walk effectively and your child had damaged kidneys all down to the lack of timely care where issues are well communicated and you, as a patient, are properly assessed and listened to.
My child, who was failed in his first year of life and nearly died, is now on a waiting list for ADHD assessment that takes over 5 years. We’ve been told private assessments risk him being removed from the NHS waiting list. I spend two mornings a week for 7 weeks on courses that teach me nothing because I’ve already put the techniques in place to help, then I have to catch up on my work in evenings and weekends reducing my time with him. There was no way to bypass the courses, even though the course leaders, his school and the GP didn’t feel I needed them - I have to do them in order to have him assessed. I can’t not work as my employees rely on me to keep the business going to provide their jobs and we’re a small team. My son can’t sleep and it’s making his anxiety worse. The GP won’t prescribe him melatonin without a diagnosis. The whole thing is a nightmare.
Im on a 10 year waiting list for Ehlers Danlos assessment. 10 years.
These stories aren’t rare, they’re more and more commonplace. I’m not ‘not grateful’ and no one wants the American system in the UK (or no one I’ve ever spoken to), but I do want a government that doesn’t systematically tear the NHS apart. I do want to be able to help my son without everyone telling me their hands are tied. I want safe care that doesn’t cause delays and trauma from being left. I want to explain to a psychiatrist how I parent and not lose two mornings a week for 3 months relearning techniques I already use and then lose any time with my children later to try and squeeze in the work. I want a system that diagnoses strokes and rehabilitates in a timely manner, so a 30yo isn’t left permanently disabled for no real reason (NHS missed the window of recovery so now it’s a nightmare battle and we still haven’t received nhs rehab - only private physio). It’s an all round situation - the staff need a better workplace and we, as patients, need better care.