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Share your dilemmas and get honest opinions from other Mumsnetters.

Refuse C-section at 34weeks and revoke my consent to a sterilisation

172 replies

Twigsnroses · 07/02/2024 18:01

Hi everyone

im currently 30+0 and today my consultant said she would schedule my delivery for 1st March. I’ll be 34+2. I am so scared of having a being unwell when I’ll be poorly too. The consultant repeatedly said baby while be fine, will be in special care 1 or 2 days. But this isn’t always the case obviously.

I have complete placenta previa and placenta accreta with possible bowel interference. So 34 weeks is for my benefit.
50% chance of hysterectomy, bladder repair, catheter in for 2 weeks, stents in urether, a sterilisation in the event that I keep my uterus, haemorrhage.
The section will be under GA due to all the work they need to do. So baby will come out poorly in terms of breathing anyway due to GA.

In the appointment today I didn’t object to the day even though I really would like to go to 35+2 which is just the following week. I did not object to a sterilisation if i was to keep my uterus even my partner would get a vasectomy or would be sure to not fall pregnant again. i even signed a consent form. Now I feel so stupid for just saying yes to these things.

Would it be silly to phone to question these again, revoke my consent for a sterilisation? And explore moving C-section to allow baby to bake more?
The consultant did mention that the entire team availability is also important, but i just feel that the outcome for me is grim and same anyway so I’d rather have her stay in longer.

im also shocked and disappointed at myself that i just nodded to everything. Absolutely everything.

OP posts:
Flubadubba · 08/02/2024 03:18

I always find BRAIN helpful to male decisions in these situations:

Benefits- what are they?
Risks- what are they?
Alternatives- are there any? If so, what are they? Eg in this case, what would happen if you delay?
Intuition- what is your gut saying?
Nothing- what happens if you do nothing? (You have your answer for this already, I suspect)

Was definitely a useful acronym to remember when giving birth, even when high on gas and air, and can be adapted to most medical situations to give you a better understanding if used as a template.

PumpkinSoup21 · 08/02/2024 03:36

Sorry - this is so tough OP. I haven’t been able to read the full thread (monitoring sicky toddler!) but have you heard of the BRAIN acronym for asking questions about a medical decision.
What are the Benefits of x decision?
What are the Risks?
What are the Alternatives?
What is my Intuition telling me?
What would happen if we did Nothing?

Obvs you are not going to do nothing at all but you can apply this to parts of your decision - so what if we did nothing about sterilisation now? What would that mean for me?

There’s a good explanation of this approach here and RCOG have some stuff on it too. https://www.liverpoolwomens.nhs.uk/our-services/maternity/your-antenatal-care/brain/#:~:text=Benefits%20%2D%20What%20are%20the%20benefits,Intuition%20%2D%20How%20do%20I%20feel%3F

BRAIN

https://www.liverpoolwomens.nhs.uk/our-services/maternity/your-antenatal-care/brain/#:~:text=Benefits%20%2D%20What%20are%20the%20benefits,Intuition%20%2D%20How%20do%20I%20feel%3F

TwoShades1 · 08/02/2024 04:19

It certainly sounds like you need more information to be making a well informed decision. I think it’s best to ask a lot of question and then make a decision that seems right for you.

Lougle · 08/02/2024 05:34

@Twigsnroses I think, ultimately, you have to think about worst case scenarios. Placenta Accreta is rare. With bowel involvement is really rare. If you haemorrhage it will be severe.

Yes, ask the questions. Of course. But be really clear about what the comparative risk is of leaving that extra day. For context, my baby stopped growing inside me and I had one doctor saying to just watch and wait, but she couldn't tell me DD would be ok. I said I wanted her out (35+2) and the Consultant said that both approaches were reasonable, so I was induced the next day.

Orangelemonclemon · 08/02/2024 06:14

SockQueen · 07/02/2024 22:46

I would be extremely surprised if there is a private obstetric facility in this country which would accept a placenta accreta case. Most NHS hospitals would refer to a specialist centre in their region.

Queen Charlotte and Chelsea hospital has a private wing. It has a level 3 NICU and is a specialist centre for complicated pregnancies.

I read your update op and that sounds like a good plan. What you are going through is a lot to take in so go back with more questions as many times as you need.

Salacia · 08/02/2024 09:02

There seem to be a few comments on this thread suggesting that the team availability is a convenience measure for staff rather than a patient safety measure so I just wanted to reassure the OP that that’s highly unlikely to be the case.

As the OP is clearly aware this isn’t your usual straightforward c-section that could be done by anyone at any point (eg many of your ‘standard’ EMCS that can and are safely performed by an obs registrar and an anaesthetic reg at 3am) it’s much more equivalent to a very high risk c-section plus a major cancer-style operation to managed the intersection between the placenta and bowel, bladder etc. Both of these operations are very serious and you really want the best possible team around.

To have the best possible outcome you want a very experienced obstetrician, a colorectal surgeon, an experienced obstetric anaesthetist, potentially a urologist, potentially an interventional radiologist. You want haematology and blood bank to know so they’re prepared for a haemorrhage and have enough of the right blood in stock (or potentially specialist equipment for blood salvage). You also want all the other associated theatre staff (the ODPs etc). From the baby point of view you want a paediatrician in the room (potentially a team including nursing support if needed). You want to know there are beds available on ITU/HDU post-op for you and that there’s a bed available for baby (ideally one that doesn’t mean they’d end up transferring to a different hospital). It’s possible that some of these surgeons etc may not be needed or only needed for a small window but you want them there ready to step in asap rather than having to call them in from home/clinic/ward round/another list etc. There are a huge amount of moving parts to get into place to organise this sort of procedure.

I believe an anaesthetist has already commented up thread about how scary it is to try and manage this sort of surgery out of hours without all this set up to go (you’d probably have an obs consultant but not necessarily one with any experience in your condition (and they’d also be covering the rest of the ward whereas in a planned operation you’d be their only patient)), the paediatrics team might only be a registrar and SHO, the general surgeon may only be a registrar (and also in theatre for emergency cases overnight already), paediatric consultants and surgical consultants may will be on call from home but you don’t really want the delay. I’m not saying this to be dismissive of registrars (I am one and I’m married to an obs reg) but this is a case where you want somebody experienced in hand who is not distracted by having to take another emergency to theatre asap or the patient they’ve just had to leave on the ward/A&E etc to come to emergency theatre. No obstetrician wants the first time they’ve performed such a delicate and high stakes operation to be at 2am with limited support unless they absolutely have to.

There may be an element of schedule planning but nobody wants to deliver babies early if they don’t have to so it’s much more likely to be a ‘let’s do Monday afternoon rather than Tuesday morning as Dr X has his cancer list on Tuesdays’ rather than a matter of weeks early for the sake of it.

You’ve mentioned that it feels strange as the intervention of for you not baby but it truly is for both of you. It’s not my area of expertise so I won’t give too much comment but I’d be interested to know what the difference is in outcome between 34, 35 and 36 weeks (as that’s your realistic delivery timeframe - comparing with term isn’t going to be helpful for you). You also need to know and understand the risk of haemorrhage and how that increases in the same time frame and the risk to yourself/baby in that scenario (I have a hunch that the risk to baby from a major haemorrhage at 34-36 weeks is much higher than the risk of delivery but as I say I’m not an expert so this is something to ask your team).

I completely get how scary and overwhelming it is. It’s very common not to be able to take everything in or feel like you’ve made the wrong decision. We’re doctors but we’re also humans and have likely been there to some degree themselves. I certainly have! I’ve walked out of consultations about fertility treatment, miscarriage etc and had no idea of what was said or why I’d agreed to something or realised I’d forgotten to ask something and then felt daft. When I lost a baby I had literally no idea as to the risks/benefits of surgical or medical management etc. I know that they were explained to me but I just couldn’t engage, I couldn’t even remember my medical training. It’s a very human response to a high stress situation. It doesn’t necessarily mean that your consultant is wrong, has bulldozed you as somebody said upthread or that they’ve not communicated well but communication is a two way thing. I don’t mean this as an insult, as I say I’ve been there myself, but it’s difficult to have that conversation when your brain has just received a lot of new information and gone into panic mode. It doesn’t necessarily mean things weren’t discussed - I’ve had patients swear I did/didn’t tell them things when I know I had, it’s just the brain’s failure to absorb when stressed.

It’s really important that you have faith in your team so I’d really encourage you to ask for another appointment and take somebody with you. I’d be very surprised if they weren’t able and happy to facilitate this. It seems like you have two main concerns - the choice of timing and the choice re sterilisation so focus there. I find it helpful to draft questions - the acronym people have been posting is really helpful. I’d also see what support is available, it varies by hospital/region but people have mentioned psychologists etc so see if that’s an option where you are. When I’ve worked in neonatal units we’ve had women come to look around ahead of planned early gestation deliveries which if possible removed some of the mystery of NICU and allowed them to ask questions of the staff - perhaps that is an option?

I wouldn’t jump straight to getting a second opinion, certainly not from a private provider (I’d have serious reservations about any private surgeon who would perform this surgery without being able to replicate the level of multidisciplinary input this case clearly requires - just being near an NHS ITU/NICU isn’t going to cut it) before you’ve given your team chance to explain and hopefully put your mind at ease. If after you’ve spoken to them again you’re still uncomfortable then certainly see what the local process is for seeking a second opinion (you’re well within your rights) but I’d start with the team who knows you first.

EdithStourton · 08/02/2024 09:29

Salacia · 08/02/2024 09:02

There seem to be a few comments on this thread suggesting that the team availability is a convenience measure for staff rather than a patient safety measure so I just wanted to reassure the OP that that’s highly unlikely to be the case.

As the OP is clearly aware this isn’t your usual straightforward c-section that could be done by anyone at any point (eg many of your ‘standard’ EMCS that can and are safely performed by an obs registrar and an anaesthetic reg at 3am) it’s much more equivalent to a very high risk c-section plus a major cancer-style operation to managed the intersection between the placenta and bowel, bladder etc. Both of these operations are very serious and you really want the best possible team around.

To have the best possible outcome you want a very experienced obstetrician, a colorectal surgeon, an experienced obstetric anaesthetist, potentially a urologist, potentially an interventional radiologist. You want haematology and blood bank to know so they’re prepared for a haemorrhage and have enough of the right blood in stock (or potentially specialist equipment for blood salvage). You also want all the other associated theatre staff (the ODPs etc). From the baby point of view you want a paediatrician in the room (potentially a team including nursing support if needed). You want to know there are beds available on ITU/HDU post-op for you and that there’s a bed available for baby (ideally one that doesn’t mean they’d end up transferring to a different hospital). It’s possible that some of these surgeons etc may not be needed or only needed for a small window but you want them there ready to step in asap rather than having to call them in from home/clinic/ward round/another list etc. There are a huge amount of moving parts to get into place to organise this sort of procedure.

I believe an anaesthetist has already commented up thread about how scary it is to try and manage this sort of surgery out of hours without all this set up to go (you’d probably have an obs consultant but not necessarily one with any experience in your condition (and they’d also be covering the rest of the ward whereas in a planned operation you’d be their only patient)), the paediatrics team might only be a registrar and SHO, the general surgeon may only be a registrar (and also in theatre for emergency cases overnight already), paediatric consultants and surgical consultants may will be on call from home but you don’t really want the delay. I’m not saying this to be dismissive of registrars (I am one and I’m married to an obs reg) but this is a case where you want somebody experienced in hand who is not distracted by having to take another emergency to theatre asap or the patient they’ve just had to leave on the ward/A&E etc to come to emergency theatre. No obstetrician wants the first time they’ve performed such a delicate and high stakes operation to be at 2am with limited support unless they absolutely have to.

There may be an element of schedule planning but nobody wants to deliver babies early if they don’t have to so it’s much more likely to be a ‘let’s do Monday afternoon rather than Tuesday morning as Dr X has his cancer list on Tuesdays’ rather than a matter of weeks early for the sake of it.

You’ve mentioned that it feels strange as the intervention of for you not baby but it truly is for both of you. It’s not my area of expertise so I won’t give too much comment but I’d be interested to know what the difference is in outcome between 34, 35 and 36 weeks (as that’s your realistic delivery timeframe - comparing with term isn’t going to be helpful for you). You also need to know and understand the risk of haemorrhage and how that increases in the same time frame and the risk to yourself/baby in that scenario (I have a hunch that the risk to baby from a major haemorrhage at 34-36 weeks is much higher than the risk of delivery but as I say I’m not an expert so this is something to ask your team).

I completely get how scary and overwhelming it is. It’s very common not to be able to take everything in or feel like you’ve made the wrong decision. We’re doctors but we’re also humans and have likely been there to some degree themselves. I certainly have! I’ve walked out of consultations about fertility treatment, miscarriage etc and had no idea of what was said or why I’d agreed to something or realised I’d forgotten to ask something and then felt daft. When I lost a baby I had literally no idea as to the risks/benefits of surgical or medical management etc. I know that they were explained to me but I just couldn’t engage, I couldn’t even remember my medical training. It’s a very human response to a high stress situation. It doesn’t necessarily mean that your consultant is wrong, has bulldozed you as somebody said upthread or that they’ve not communicated well but communication is a two way thing. I don’t mean this as an insult, as I say I’ve been there myself, but it’s difficult to have that conversation when your brain has just received a lot of new information and gone into panic mode. It doesn’t necessarily mean things weren’t discussed - I’ve had patients swear I did/didn’t tell them things when I know I had, it’s just the brain’s failure to absorb when stressed.

It’s really important that you have faith in your team so I’d really encourage you to ask for another appointment and take somebody with you. I’d be very surprised if they weren’t able and happy to facilitate this. It seems like you have two main concerns - the choice of timing and the choice re sterilisation so focus there. I find it helpful to draft questions - the acronym people have been posting is really helpful. I’d also see what support is available, it varies by hospital/region but people have mentioned psychologists etc so see if that’s an option where you are. When I’ve worked in neonatal units we’ve had women come to look around ahead of planned early gestation deliveries which if possible removed some of the mystery of NICU and allowed them to ask questions of the staff - perhaps that is an option?

I wouldn’t jump straight to getting a second opinion, certainly not from a private provider (I’d have serious reservations about any private surgeon who would perform this surgery without being able to replicate the level of multidisciplinary input this case clearly requires - just being near an NHS ITU/NICU isn’t going to cut it) before you’ve given your team chance to explain and hopefully put your mind at ease. If after you’ve spoken to them again you’re still uncomfortable then certainly see what the local process is for seeking a second opinion (you’re well within your rights) but I’d start with the team who knows you first.

From my limited knowledge of this scenario, that all looks like very sound advice.

A friend of mine had placenta accreta, and ended up as an emergency. It was very scary for all concerned. The baby was fine.

Wishing you well, OP - it's a horrible situation to be in.

EdithStourton · 08/02/2024 09:31

PS Should add, friend was fine too, but she had quite a long recovery.

Orangelemonclemon · 08/02/2024 09:40

@Salaciai totally agree with all you say except the comments on private birth. I used QCCH as my example, if you are a private patient there you literally give birth in the NHS hospital and recover on a private wing. Thats how they all work unless you are in a completely private hospital. Most private consultants also work for the NHS. I only suggested seeing a private consultant though because when i had placenta previa it was very difficult for me to see or contact my nhs consultant. I had a meeting as you describe where i was not bulldozed but i was dumbfounded inside about what was going to happen to me. I signed up for an early c section under GA and signed the waiver that they may need to perform a hysterectomy as well as some other risks. When i got home i was terrified. I tried calling the hospital to speak to the consultant or get another appt and i was never able to get through. The whole thing was a nightmare. It didnt help that i lived rurally and was over an hr to the hospital which was part of the consultants thinking in taking me early for the section incase i went into labour at home as an ambulance would have been unlikely to get to me in time and take me to hospital. I contacted a private consultant because i was scared. She reassured me on all counts. When i decided to move my entire care private, i was met with sneers from my midwife and the hospital that i was originally booked into telling me that private was not as good but im so glad i stuck to my guns as its total rubbish. I wanted to go to the Portland for the fancy afternoon tea and goodie bag but my private consultant explained the risks of being in a purely private hospital (she worked across three hospitals in London including portland). She recommended i go for QCCH which is a specialist hospital for complex births. She herself specialises in delivering complex births and obviously has a team and access to all the specialists in the hospital who are arranged as required. By all means dont go private and op has never once asked for opinions on private or not but it is totally wrong to suggest that private health in the uk cannot meet the same standard as nhs. Its hospitals like qcch that have the private recovery wings that are able to provide such modern and high tech facilities for the nhs to use because they provide additional funding to the nhs trust for being there. I had complete placenta previa and along the course of my pregnancy, felt totally unsupported by the nhs.

Thankfully, it doesnt seem like this is the case for the op and if she is able to go back to the consultant with questions and have more of a chat she might feel in a more comfortable place.

quisensoucie · 08/02/2024 09:48

TBH, they key here is the availability of the multidisciplinary team. It won't just be the obstetrician - there will be a urology specialist at least, and others.
Then they will be organising blood stock availability - it's a big op
Baby will not suffer with you having a GA - they are whipped out so quickly it barely crosses the placenta

Salacia · 08/02/2024 10:24

@Orangelemonclemon - I’m sorry you had such a bad experience with the NHS, it’s not good enough to leave people without support or answers. This is always going to be a scary situation no matter what but good communication makes all the difference.

My hesitation re private care in this situation as the OP states that there are bowel concerns, they’re looking at stents etc which implies they’ll need multiple experienced consultants on hand - I don’t have experience in the private sector but I struggle to see how this could be achieved to the same level of the NHS and the company still make a profit without charging an astronomic amount. If it were me in this situation I’d want access to a gynae oncologist, colorectal surgeon, interventional radiologist and urologist to have been considered (plus all the support staff I’ve already mentioned). A placenta previa is scary but OP has at least placenta accreta if not more advanced (based on the bowel comment) - it’s a higher lever of risk.

Perhaps I’m being unfair though as my experience with private care naturally skews negative (as the patients who had a great experience and went home weren’t coming in with complications to the general surgical ward I was working on).

Daydreambeliever55 · 08/02/2024 10:26

Salacia · 08/02/2024 09:02

There seem to be a few comments on this thread suggesting that the team availability is a convenience measure for staff rather than a patient safety measure so I just wanted to reassure the OP that that’s highly unlikely to be the case.

As the OP is clearly aware this isn’t your usual straightforward c-section that could be done by anyone at any point (eg many of your ‘standard’ EMCS that can and are safely performed by an obs registrar and an anaesthetic reg at 3am) it’s much more equivalent to a very high risk c-section plus a major cancer-style operation to managed the intersection between the placenta and bowel, bladder etc. Both of these operations are very serious and you really want the best possible team around.

To have the best possible outcome you want a very experienced obstetrician, a colorectal surgeon, an experienced obstetric anaesthetist, potentially a urologist, potentially an interventional radiologist. You want haematology and blood bank to know so they’re prepared for a haemorrhage and have enough of the right blood in stock (or potentially specialist equipment for blood salvage). You also want all the other associated theatre staff (the ODPs etc). From the baby point of view you want a paediatrician in the room (potentially a team including nursing support if needed). You want to know there are beds available on ITU/HDU post-op for you and that there’s a bed available for baby (ideally one that doesn’t mean they’d end up transferring to a different hospital). It’s possible that some of these surgeons etc may not be needed or only needed for a small window but you want them there ready to step in asap rather than having to call them in from home/clinic/ward round/another list etc. There are a huge amount of moving parts to get into place to organise this sort of procedure.

I believe an anaesthetist has already commented up thread about how scary it is to try and manage this sort of surgery out of hours without all this set up to go (you’d probably have an obs consultant but not necessarily one with any experience in your condition (and they’d also be covering the rest of the ward whereas in a planned operation you’d be their only patient)), the paediatrics team might only be a registrar and SHO, the general surgeon may only be a registrar (and also in theatre for emergency cases overnight already), paediatric consultants and surgical consultants may will be on call from home but you don’t really want the delay. I’m not saying this to be dismissive of registrars (I am one and I’m married to an obs reg) but this is a case where you want somebody experienced in hand who is not distracted by having to take another emergency to theatre asap or the patient they’ve just had to leave on the ward/A&E etc to come to emergency theatre. No obstetrician wants the first time they’ve performed such a delicate and high stakes operation to be at 2am with limited support unless they absolutely have to.

There may be an element of schedule planning but nobody wants to deliver babies early if they don’t have to so it’s much more likely to be a ‘let’s do Monday afternoon rather than Tuesday morning as Dr X has his cancer list on Tuesdays’ rather than a matter of weeks early for the sake of it.

You’ve mentioned that it feels strange as the intervention of for you not baby but it truly is for both of you. It’s not my area of expertise so I won’t give too much comment but I’d be interested to know what the difference is in outcome between 34, 35 and 36 weeks (as that’s your realistic delivery timeframe - comparing with term isn’t going to be helpful for you). You also need to know and understand the risk of haemorrhage and how that increases in the same time frame and the risk to yourself/baby in that scenario (I have a hunch that the risk to baby from a major haemorrhage at 34-36 weeks is much higher than the risk of delivery but as I say I’m not an expert so this is something to ask your team).

I completely get how scary and overwhelming it is. It’s very common not to be able to take everything in or feel like you’ve made the wrong decision. We’re doctors but we’re also humans and have likely been there to some degree themselves. I certainly have! I’ve walked out of consultations about fertility treatment, miscarriage etc and had no idea of what was said or why I’d agreed to something or realised I’d forgotten to ask something and then felt daft. When I lost a baby I had literally no idea as to the risks/benefits of surgical or medical management etc. I know that they were explained to me but I just couldn’t engage, I couldn’t even remember my medical training. It’s a very human response to a high stress situation. It doesn’t necessarily mean that your consultant is wrong, has bulldozed you as somebody said upthread or that they’ve not communicated well but communication is a two way thing. I don’t mean this as an insult, as I say I’ve been there myself, but it’s difficult to have that conversation when your brain has just received a lot of new information and gone into panic mode. It doesn’t necessarily mean things weren’t discussed - I’ve had patients swear I did/didn’t tell them things when I know I had, it’s just the brain’s failure to absorb when stressed.

It’s really important that you have faith in your team so I’d really encourage you to ask for another appointment and take somebody with you. I’d be very surprised if they weren’t able and happy to facilitate this. It seems like you have two main concerns - the choice of timing and the choice re sterilisation so focus there. I find it helpful to draft questions - the acronym people have been posting is really helpful. I’d also see what support is available, it varies by hospital/region but people have mentioned psychologists etc so see if that’s an option where you are. When I’ve worked in neonatal units we’ve had women come to look around ahead of planned early gestation deliveries which if possible removed some of the mystery of NICU and allowed them to ask questions of the staff - perhaps that is an option?

I wouldn’t jump straight to getting a second opinion, certainly not from a private provider (I’d have serious reservations about any private surgeon who would perform this surgery without being able to replicate the level of multidisciplinary input this case clearly requires - just being near an NHS ITU/NICU isn’t going to cut it) before you’ve given your team chance to explain and hopefully put your mind at ease. If after you’ve spoken to them again you’re still uncomfortable then certainly see what the local process is for seeking a second opinion (you’re well within your rights) but I’d start with the team who knows you first.

Completely agree with all this. As someone who has went through placenta precreta you sum up what I experienced and went through and even down to blood salvage. Ive all sorts of antibodies so blood was extremely hard to get for me, so they had to do blood salvage during my procedure.

I had a small bleed whilst in hospital and whole place including myself hit panic as they had been planning my delivery for weeks ensuring all the team they needed where all there to give me and my son the best chance. Luckily for us the bleed stopped and we managed to get to planned date. Full hysterectomy had to be done but they managed to save my bladder.

OrangeMarmaladeOnToast · 08/02/2024 10:57

Nxct · 07/02/2024 23:10

As a former HCP maybe you should be aware of spouting absolute falsehoods on the internet.
Nobody ever delivered a baby at 34 weeks for the sake of scheduling, it's because the OP's life is at risk of she starts haemorrhaging outside a theatre.
She should discuss her personal circumstances with her own team.

In any case, baby safety and staff availability aren't two mutually exclusive areas. The OP is giving birth in the NHS we have, not the one we wish we had.

That said, absolutely ask to talk it through again OP, get a second opinion, get answers. You should be enabled to fully understand the situation.

Salacia · 08/02/2024 11:16

Salacia · 08/02/2024 10:24

@Orangelemonclemon - I’m sorry you had such a bad experience with the NHS, it’s not good enough to leave people without support or answers. This is always going to be a scary situation no matter what but good communication makes all the difference.

My hesitation re private care in this situation as the OP states that there are bowel concerns, they’re looking at stents etc which implies they’ll need multiple experienced consultants on hand - I don’t have experience in the private sector but I struggle to see how this could be achieved to the same level of the NHS and the company still make a profit without charging an astronomic amount. If it were me in this situation I’d want access to a gynae oncologist, colorectal surgeon, interventional radiologist and urologist to have been considered (plus all the support staff I’ve already mentioned). A placenta previa is scary but OP has at least placenta accreta if not more advanced (based on the bowel comment) - it’s a higher lever of risk.

Perhaps I’m being unfair though as my experience with private care naturally skews negative (as the patients who had a great experience and went home weren’t coming in with complications to the general surgical ward I was working on).

Just quoting my own post to clarify re my point on gynae oncology - don’t want to cause any panic that there’s a cancer present etc, just that they are incredibly experienced at removing things from the pelvis that shouldn’t be there in a way that minimises bleeding (the placenta in this case has acted a little like a tumour in how it invades) - in many places where I’ve worked the obstetrics team may well consult with them/ask for them to be present (I’ve had one on standby when I’ve had previous gynae/bowel surgery for a non- cancer reason).

underneaththeash · 08/02/2024 11:18

OP I don't know if anyone has posted this yet, or if you've read it, but it's a good overview of the issues you're facing.

https://www.ncbi.nlm.nih.gov/books/NBK563288/

Hope everything goes well

https://www.ncbi.nlm.nih.gov/books/NBK563288

Koalaslippers · 08/02/2024 11:37

How are you feeling about things today?

Remember that you can ask as many questions as you need to understand why these recommendations have been made. It can be incredibly overwhelming when you are in appointments and it's not uncommon to think of questions you would have liked to ask later.

As a mother our instincts are to protect the baby but the drs need to look at the bigger picture and ultimately you have priority. I found this really hard but I found focusing on my eldest child and thinking about needing to be there for them helped.

Bubble2024 · 08/02/2024 11:59

Twigsnroses · 08/02/2024 00:22

Again, thank you very much. It has all been really helpful and getting me to figure out what I needed at that appointment.

I didn’t anticipate any of the decisions I had to make on the spot which ended with needing to read through the consent form on the computer screen and scribble a signature with a mouse.

I know, absolutely know, how dangerous accreta is. Because I have read up since the diagnosis. However, thinking back I do feel like I was told what is going to happen - procedure wise- but nothing about my case as an individual was discussed. If that makes sense. It may have been due to my silence. The consultant did say “I usually do this between 34-36 weeks”. But did not say why I’m on the lower end. This is where I could have asked, if there is a reason I cannot get closer to 36w for example. Perhaps my case is severe? I don’t know. She didn’t say and I didn’t ask. I have had no bleeds either, but she didn’t ask if I had these yet.

i need to read up about early babies, so thanks for this Bliss and group recommendations. The consultant did say only need 1-2 days, and I just remembered that I did ask if that meant baby would go home ahead of me.. to which she said no no, the baby will have to wait for you to get better. Silly question

I appreciate the responses, really. I am going to seek another conversation where I’ll simply be more prepared with questions. As many have said, there are likely clinical reasons for an early delivery and what not. I just need to hear it. The current plan will likely stay in place.

Edited

Bowel involvement. The longer you go the worse the risk.

Bubble2024 · 08/02/2024 12:05

iamveryearlytoday · 07/02/2024 20:53

It sounds terrible for your soul and sleep, but could you ask to be admitted from 34+2 with the intention of getting to 35+ weeks? If you're already at the hospital and you have a premature labour then it can be dealt with then. An acquaintance had a similar issue about six months ago and was admitted. Not sure if she asked or the consultant recommended it, tbh.

Are there any indicators that baby might labour early?

Yes. Prévia and accreta. Do you understand that premature labour is medical emergency and that often results in death. Unless you know what the condition is don’t comment.

Bubble2024 · 08/02/2024 12:09

MixedCouple · 07/02/2024 22:45

As a former HCP consent is key and you can withdraw anytime.

Is 34 weeks due to everyones availability or based on medical urgency? Yes 1 weeks makes a massive difference for baby.

I would be sure to find out the rationale. Staff availability or baby safety.

Presumably not an HCP with any obstetric experience 🙄

iamveryearlytoday · 08/02/2024 12:20

Bubble2024 · 08/02/2024 12:05

Yes. Prévia and accreta. Do you understand that premature labour is medical emergency and that often results in death. Unless you know what the condition is don’t comment.

Ha! I never understand why some posters are so rude. It was just a suggestion to help keep the baby in a bit longer, which is what the OP wants. She's just going back to the consultant with some questions. Sure, I hadn't considered the availability of the team to perform the C-section and other surgeries. That's why it was a suggestion.

MrsSlocombesCat · 08/02/2024 12:31

Twigsnroses · 07/02/2024 18:45

Yes, steroids injections booked in for the 2 days before appointment. Will have two doses 24 hours apart. I hear these can be painful😃.

But they should massively help with the baby.

I had a steroid injection in the sole of my foot. I had seen footage of people screaming while it was being done so I was petrified. It really wasn’t that bad, I even had to ask the doctor if it was done!

Bubble2024 · 08/02/2024 13:41

iamveryearlytoday · 08/02/2024 12:20

Ha! I never understand why some posters are so rude. It was just a suggestion to help keep the baby in a bit longer, which is what the OP wants. She's just going back to the consultant with some questions. Sure, I hadn't considered the availability of the team to perform the C-section and other surgeries. That's why it was a suggestion.

And I never understand people with no understanding at all think they should be making suggestions in situations like this.

Moonpig82 · 08/02/2024 13:58

@MrsSlocombesCat i think those are different to the steroid injections for baby’s lung maturity! They’re usually in the upper thigh and really do hurt!

CarterBeatsTheDevil · 08/02/2024 13:58

Been thinking more about this overnight, OP. You said that it feels like it's a decision for you rather than for the baby and a lot of your worry seems to be that they are proposing that the baby is delivered early in order to benefit you at the baby's expense. I'm sure your team will be able to explain the whole of the picture and answer your questions, but I want to point out that babies really need their mothers. Your baby would much rather come out a little early than come out later, in an emergency, and find themselves with no mum or a very ill mum. Don't underestimate the immense significance and importance of you as your baby's mum in all this.

Twigsnroses · 09/02/2024 01:41

Thanks for all the responses.

I realised I typed bowel interference, wrong, I meant bladder interference. Equally troublesome anyway. So all the risk in the comments still stands. Just thought I’d correct my initial statement.

i have had a day since the appointment to try clear my head. I’m definitely going back in for another conversation as right now I have a lot of info gaps, likely due to panic induced brain fog at my other appointment. I need it. The conversation will provide me answers that’ll likely have me confident in the plan of care- which is important to me.

Luckily for me, I am already at right hospital for both me and baby.

Regarding sterilisation: It was more that I agreed and consent in that minute of being told/asked rather than it’s something I would not do. It’s more of being shocked with myself that I made the decision right away never having given it any thought before. I mean it is one of the decisions I didn’t need to make right at the minute, in that sense. There is a high likelihood of hysterectomy anyway.

The bottom line is I did not have adequate time to digest any of the info I was given and to make the decisions. I obviously didn’t ask for it, but I also think I didn’t need to do any consent forms in that appointment. If I had asked for it, no doubt it would have been extended to me.

With regards to private care, I had my first in another country where I had private care. I must say, I definitely felt more supported due continuity of care with a single team/person. I think a lot of it has to do with the ease of getting hold of your consultant and team. Whilst I had issues with that pregnancy, it was nothing of this magnitude.

I did spend the afternoon trying to get hold of someone to help me reschedule. The appointment team can’t do it because there is no order for it. So I am waiting for my midwife to call me back (I requested a call), I’ll relay my concerns and hopefully she’ll get one in for me.

I actually have cover here too that would cover birth, it’s just that I am aware that i need a multidisciplinary team and don’t want to be worrying myself with any shortfalls with different pay rate for consultants etc. As I haven’t done the leg work, would too stressful to do this now….My current hospital actually has a private maternity wing. My current consultant would actually be the lead if I went private and wanted to use the same hospital.

@Orangelemonclemon i think you suggested Pat O’Brien? He & my consultant were under the same research professor at some point(I read his profile on the hospital site). He’s recognised by my scheme and consultation would be covered if I were to seek a second opinion. The multidisciplinary team would likely be assembled the way due to the hospital he practices in.

i can’t thank you all enough for your inputs. I will be back to update everyone.

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