Worried about my toddler after reading about kawswaki

[Fightingtobepositive]

Posting for traffic. I’m so sorry but I’ve been at my whitsend after reading about kawswaki disease.

my toddler spiked a fever of 40 on Thursday wasn’t eating and had red eyes so went to a&e he was checked over said it was conjunctivitis and swollen tonsils probably viral, monitored for a bit then we came home. They told us to keep on top of rotating nuro and calpol. So we have it’s been helping although the fever still doesn’t get under 37 and not under 37.7 for long. So since then I’ve noticed his neck feels swollen slightly and after dr Google I’ve seen kawswaki and now can’t get it out of my head. He was really lethargic grumpy and tired yesterday eat hardly nothing and today he seems brighter and playful and has eaten a little more. Still having the temps but seems generally better than he has been… am I being completely unreasonable in worrying about KD I just can’t get it out of my head. Between the red eyes which have now gone and the swollen neck (could this be glands) I’m an absolute rack. I suffer with anxiety anyway but when it comes to my little one I get obsessed.

Did they give him an ECHO?
https://www.societi.org.uk/kssg/about-us/ I would contact Sue, she really helped when my son received a late KD diagnosis.

If you are on Facebook she has a group on there.

@DeerWatch yes they did. The jelly scan with the little thingys attached? She was very thourough but couldn’t completely rule it out so it’s just making me so anxious. How late was you son diagnosed? Was KD mentioned when he was first looked at? How did they eventually realise it was KD?

He was 2 when he became ill whilst we were on holiday. A really high temp lasting more than a week, rash, cracked bright red lips and strawberry tongue and didn't want to be held.A young doctor in the A & E department suggested KD but it was dismissed by senior medical staff as he did not have all 5 symptoms they went by in 2003. A few years later it was changed to 3 I believe.
When he was 8 a heart murmur was picked up and he had an ECHO. The cardiologist who did that at a major heart centre picked up a bulky coronary artery and immediately asked if he had had KD in past as there was no other reason for it. They then got his records back and he was diagnosed retrospectively.

You are welcome to message me.

Could it be mesenteric adenitis?
my son had this. No strawberry tongue but cracked lips. Agonising tummy. Temperature. Just run down, exhausted ? Hands peeling skin. It’s been awful. Only calpol and nirofen but we used another medication to settle his stomach which we were advised against and it helped.

@Letsbekindplease oh bless him. I’ve not heard of this? So I don’t know. How is your little one doing now? X

Exhausted. Better but he’s so run down and pale.

it’s swollen lymph nodes/glands in the stomach after a virus. I used mumsnet as I usually do to search for symptoms and this is then what the dr diagnosed him
with. Nothing really helps. Buscopan helped his tummy however they advised against it. I’m glad I didn’t listen because it did help him