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Very high iron/low ferritin - advice?

2 replies

Sfex · 31/01/2024 17:40

Hi everyone,

Posting here for traffic. Before anybody says, I understand that this isn’t serious medical advice but just looking for some opinions/what more I need to do or ask the gp!

Long story short, I’ve been feeling crap for ages (pretty much since having my DD 18 months ago) but especially in the last few months.

Symptoms - absolutely exhausted, joint aches and pain, brain fog, dizziness, nausea. Just generally bleugh.

Finally had bloods done before Christmas, turns out my iron is through the roof but my ferritin is low-

Iron saturation 72% (should apparently be 15%), ferritin 18.

They’ve repeated them 4 times now as ‘they just don’t make sense’, and have been the same on all 4. They’re now testing for haemochromotosis, but not convinced that’s it as that’s genetic and nothing in family history.

The second test also showed low white blood cells and neutrophils, but the others normal.

They’ve been less than helpful so far to be honest with her basically accusing me at the last call of lying about taking supplements/having an iron transfusion (?!) as that’s apparently the only explanation 🤦🏻‍♀️

My question is, does anything else jump out in these results to anyone/anything I should be mentioning/questioning with the gp? Starting to get a little worried now!

FWIW, I’m 31, normally fit and active, good diet generally, don’t drink loads or smoke.

TIA x

Very high iron/low ferritin - advice?
Very high iron/low ferritin - advice?
Very high iron/low ferritin - advice?
OP posts:
Foxyaus · 31/01/2024 22:39

Haemochromatosis is one of the most common genetic issues in the western world, especially Celtic descent.
Also, you can apparently be a carrier, not necessarily obvious so medically unaware.
My iron levels did similar after years of being too low, but are normal now, no logical explanation, it just happened.
I'd advise you to find a better medical person, as it needs to be investigated and you don't deserve to be accused in that way.

Chloejane1986 · 12/09/2024 16:57

Sfex · 31/01/2024 17:40

Hi everyone,

Posting here for traffic. Before anybody says, I understand that this isn’t serious medical advice but just looking for some opinions/what more I need to do or ask the gp!

Long story short, I’ve been feeling crap for ages (pretty much since having my DD 18 months ago) but especially in the last few months.

Symptoms - absolutely exhausted, joint aches and pain, brain fog, dizziness, nausea. Just generally bleugh.

Finally had bloods done before Christmas, turns out my iron is through the roof but my ferritin is low-

Iron saturation 72% (should apparently be 15%), ferritin 18.

They’ve repeated them 4 times now as ‘they just don’t make sense’, and have been the same on all 4. They’re now testing for haemochromotosis, but not convinced that’s it as that’s genetic and nothing in family history.

The second test also showed low white blood cells and neutrophils, but the others normal.

They’ve been less than helpful so far to be honest with her basically accusing me at the last call of lying about taking supplements/having an iron transfusion (?!) as that’s apparently the only explanation 🤦🏻‍♀️

My question is, does anything else jump out in these results to anyone/anything I should be mentioning/questioning with the gp? Starting to get a little worried now!

FWIW, I’m 31, normally fit and active, good diet generally, don’t drink loads or smoke.

TIA x

Did you get to the bottom of this?
My ferritin hasn't budged from 14 since early in the year. I occasionally take an iron tablet but now my recent blood test results have shown that ferritin is still 14 but my serum iron is too high. It's jumped from 18 to 34 in about 5 months.
Do I need to be worried?

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