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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To just live with this cough?

41 replies

PattyCakePattyCake · 28/01/2024 20:06

Had a cough for four months now. Wheezing etc. I’ve been to the GPs and they said ‘here’s some antibiotics’. Got worse, had chest pains and shortness of breath. Went to local hospital )not A&E before anyone scolds me). Got checked out (including stay) and they said ‘Chest infection and inflammation of the lung, here’s some antibiotics and an inhaler’.

A month later and it’s still here, still the same. No chest pains (presume that was pulled muscle) but shortness of breath remains. DH wants me to go back to the doctors but what’s the point? I’m just wasting their time. Antibiotics isn’t going to fix it, they looked at my lungs and they’re healthy as was the breathing test I did. This just a really drawn out cough right and I’ve just got to keep waiting for it to go away, right?

And before people say ‘why ask on MN we’re not qualified’ I want perspective because I struggle to know what to go to the doctors for these days to be honest.

OP posts:
Flopsythebunny · 29/01/2024 17:18

equinoxprocess · 28/01/2024 20:24

Unless you go back they don't know that the antibiotics didn't fix it.

Have you had a tuberculosis test?

It's more common than most people realise and you can catch it even if you were vaccinated in childhood.

TB would show up on an xray

DuckDuck1234 · 29/01/2024 18:09

My sister had a lingering cough like you describe, but when she moved flat it cleared up. Was probably due to mold. Any signs of that where you live?

equinoxprocess · 29/01/2024 18:33

Flopsythebunny · 29/01/2024 17:18

TB would show up on an xray

Not necessarily.

CoraPirbright · 29/01/2024 18:40

I have had a cough since mid-October! Horrible trying to catch my breath in between bouts of coughing. Am thinking it’s whooping aka 100-day cough. Bloody annoying! No one has caught it from me but apparently there’s lots of it about.

Meredusoleil · 29/01/2024 19:14

My dd1 is only 15 and was last vaccinated against whooping cough before she started school, so aged 4. I think I read online that the vaccine only lasts 10 years!

PattyCakePattyCake · 29/01/2024 19:20

eurochick · 29/01/2024 17:07

Is there any mould in your house? I developed similar symptoms during Covid. We had been due to have a small leak fixed in March 2020 but everything got cancelled during lockdown. A couple of months later I was coughing a wheezing and went to the dr who gave me an asthma inhaler (never had asthma) but couldn't find the cause. Eventually we moved some furniture and it turned out there was mould behind it. We cleared it off, got the cause solved once builder started working again and after a few days of airing the house I was fine.

We moved and it started again. This time we looked for the mould and sure enough found some. Again, once it was removed and the house aired I was fine.

With the wet winter plus current heating costs a lot more people have some mould in their house at the moment than before. It's worth checking.

See this crossed my mind because we live in a 18th century thatched cottage but I’ve searched everywhere for mould - under the bath, behind the radiators, in the attic, everywhere I can think of - and no sign of anything. I know you can get people to come out and detect but money is really tight and I couldn’t afford it and I wouldn’t know where else they could even look?

OP posts:
PattyCakePattyCake · 29/01/2024 19:22

AlwaysAuntie · 29/01/2024 16:59

I've had a cough with breathlessness for about a year now, though it wasn't until my ankles swelled up that I went to doctors. I've had all possible blood tests, x-ray and inhaler. Medically they just don't know what's wrong. I am on water tablets which has reduced swelling, and has helped me lose weight. There has been talk of long covid.

I have an appointment for a lung function test in a couple weeks. And they're also looking into potential heart issues, which is kinda scary to think about.

But to get to this point I was going to doctors every other week, unfortunately these days you do have to keep advocating for yourself to get looked at.

I’m frightened about heart issues. Before the cough started I had dizzy spells, so this plus the breathlessness has made me consider heart disease. They did an ECG and then said all looked fine so dropped that line of enquiry and eventually decided it was a chest infection and lung inflammation. But I’m wary.

OP posts:
AlwaysAuntie · 29/01/2024 19:35

I initially had ECG done at Dr's, then just before Christmas I got a call from Cardiology who wanted to do another scan, on 18th I have to go back and have Cardiac monitor fitted for a couple of days.

It is very scary, I don't want it to be my heart, but at same time if it is I wanna get it dealt with as soon as possible.

Another thing for me is possibly COPD, my dad had it, my brother has it and although I don't smoke I was raised in a home full of smokers, so it's a small chance. To be honest I'm grasping at straws.

Dr went down the infection route first, then said asthma, then they were just stumped.

Initially I had to almost fight to get Dr to look beyond my weight, because that's what they wanted to put it down to. I know I'm overweight, but these symptoms were new and I been big for a few years.

Keep on at your Dr, they'll probably make you jump through hoops, but keep going until you feel satisfied that they've done all they can, at which point they may refer you to respiratory specialist at hospital.

PattyCakePattyCake · 29/01/2024 19:39

AlwaysAuntie · 29/01/2024 19:35

I initially had ECG done at Dr's, then just before Christmas I got a call from Cardiology who wanted to do another scan, on 18th I have to go back and have Cardiac monitor fitted for a couple of days.

It is very scary, I don't want it to be my heart, but at same time if it is I wanna get it dealt with as soon as possible.

Another thing for me is possibly COPD, my dad had it, my brother has it and although I don't smoke I was raised in a home full of smokers, so it's a small chance. To be honest I'm grasping at straws.

Dr went down the infection route first, then said asthma, then they were just stumped.

Initially I had to almost fight to get Dr to look beyond my weight, because that's what they wanted to put it down to. I know I'm overweight, but these symptoms were new and I been big for a few years.

Keep on at your Dr, they'll probably make you jump through hoops, but keep going until you feel satisfied that they've done all they can, at which point they may refer you to respiratory specialist at hospital.

Fingers crossed for you, I hope it doesn’t turn out to be anything serious. I don’t trust the infection diagnosis because I feel like it would have gone by now, plus not a single other person has had this cough, not even DC, which makes me feel like it’s just not right.

It’s so hard and confusing and I do feel dismissed which is why I wanted opinions, I just don’t know what’s what anymore with medical stuff!

OP posts:
AlwaysAuntie · 29/01/2024 20:34

Thank you. I do hope you get some answers as it obviously very worrying for you.

I don't suppose you've thought maybe allergies, sorry I can't remember if it's already been suggested. It was one of the things my Dr suggested.

Good luck with your dr.

Onceuponaheartache · 29/01/2024 21:19

PattyCakePattyCake · 29/01/2024 19:39

Fingers crossed for you, I hope it doesn’t turn out to be anything serious. I don’t trust the infection diagnosis because I feel like it would have gone by now, plus not a single other person has had this cough, not even DC, which makes me feel like it’s just not right.

It’s so hard and confusing and I do feel dismissed which is why I wanted opinions, I just don’t know what’s what anymore with medical stuff!

My dd hasn't had it either and neither has dp.

Dd is on therapeutic chemo so has a significantly lower immunity sp I agree with you that if it was bacterial then she would have got it too.

Weirdly I have also had bouts of diziness with it. But I think they are mostly when I have had a lot of coughing fits and my oxygen levels drop.

I have certainly struggled to fight things off since I had covid. Was always fairly healthy before it!

Annemcc32 · 29/01/2024 23:25

You have long covid. Join the online Facebook groups. There are tens of thousands of people there. Many have exactly this, and worse. Chest pains are a standard long covid symptom.
The fact that you aren’t being told this, that there is no public health campaign, that our Drs are utterly useless is so depressing. Four years into this pandemic and we have learnt nothing.

Annemcc32 · 29/01/2024 23:26

The dizziness is called POTs most people with long covid have this.

Flensburg · 29/01/2024 23:28

I'm in similar position. Now waiting for spirometry test. You do need to keep going back.

OrigamiOwls · 29/01/2024 23:40

Onceuponaheartache · 28/01/2024 21:10

I would go back to the GP...all your symptoms are how my asthma presents.

However, that said I have had this poxy cough virus since the end of October and it is really pissing me off...been checked out, chest x Ray sputum tests etc. Antibiotics, steroids etc and the conclusion is 100 day cough.

That said I read somewhere that this 100 day cough is basically whooping cough but they just aren't calling it that for some reason.

Whooping cough is a notifiable disease (https://www.gov.uk/guidance/pertussis-clinical-and-public-health-management#:~:text=Whooping%20cough%20is%20a%20notifiable,the%20need%20for%20laboratory%20confirmation.) - if anyone is diagnosed with it then Public Health England have to be notified. A "100 day cough" isn't notifiable...cynical minds may suggest this is why no one is being diagnosed with whooping cough, but funnily enough lots of people have the 100 day cough 🤷🏻‍♀️

Pertussis: background information on prevention and management

Information for healthcare professionals on pertussis (whooping cough).

https://www.gov.uk/guidance/pertussis-clinical-and-public-health-management#:~:text=Whooping%20cough%20is%20a%20notifiable,the%20need%20for%20laboratory%20confirmation.)

Onceuponaheartache · 30/01/2024 12:45

OrigamiOwls · 29/01/2024 23:40

Whooping cough is a notifiable disease (https://www.gov.uk/guidance/pertussis-clinical-and-public-health-management#:~:text=Whooping%20cough%20is%20a%20notifiable,the%20need%20for%20laboratory%20confirmation.) - if anyone is diagnosed with it then Public Health England have to be notified. A "100 day cough" isn't notifiable...cynical minds may suggest this is why no one is being diagnosed with whooping cough, but funnily enough lots of people have the 100 day cough 🤷🏻‍♀️

The cynic in me agrees with you!!

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