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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To report to social services?

56 replies

Unknown18 · 17/01/2024 01:42

Boy is just turned 18. Has low level autism and a physical condition. Seeing him recently, he is very very skinny. He has progressively gotten skinnier over the past few months but is now definitely underweight. His mum goes away often leaving him at home with his siblings, one a year older, two younger. Would you report?

OP posts:
Trinity65 · 17/01/2024 10:20

Polgarahairstreak · 17/01/2024 10:01

Please try, my son died of diabetic ketoacidosis as he was unable to manage his condition due to his mental health. He had late onset type 1 diagnosed at 26 and dead at 27...I tried so hard to be listened to he was losing weight (he was a skinny bugger all his life) I knew he wasn't taking his insulin or antidepressants as I wasn't getting his prescriptions and I could count...he would always say he had even tho he knew I knew he wasn't and just get shouty and then hide away (I obviously couldn't make him) I called GP who suggested I remind him to take meds (I was obviously doing this) I called the diabetic team at the hospital and emailed they rang him he said no no weight loss that was that, I called mental health team who said it's a medical issue. I spoke to hospital doctors, he was admitted 4 times in 6 months they said it was a mental health issue. I called adult social services who said he had capacity and then he died and everyone said sorry

Oh God, that is awfully sad.

🌹for You and a UnMN (((hug)))

ToffeeCrumble · 17/01/2024 10:21

Polgarahairstreak · 17/01/2024 10:01

Please try, my son died of diabetic ketoacidosis as he was unable to manage his condition due to his mental health. He had late onset type 1 diagnosed at 26 and dead at 27...I tried so hard to be listened to he was losing weight (he was a skinny bugger all his life) I knew he wasn't taking his insulin or antidepressants as I wasn't getting his prescriptions and I could count...he would always say he had even tho he knew I knew he wasn't and just get shouty and then hide away (I obviously couldn't make him) I called GP who suggested I remind him to take meds (I was obviously doing this) I called the diabetic team at the hospital and emailed they rang him he said no no weight loss that was that, I called mental health team who said it's a medical issue. I spoke to hospital doctors, he was admitted 4 times in 6 months they said it was a mental health issue. I called adult social services who said he had capacity and then he died and everyone said sorry

💐

Polgarahairstreak · 17/01/2024 10:55

Trinity65 · 17/01/2024 10:20

Oh God, that is awfully sad.

🌹for You and a UnMN (((hug)))

Thank you this happened 3 years ago and it's been so hard..I've been on Mumsnet for 15 years this is only the 2nd time I've posted but I couldn't just read and run as it really is so serious

Mia45 · 17/01/2024 11:08

Have you spoken to his mother, he’s an adult so she’s not ‘responsible’ for him as such but sounds like he could do with some help, maybe you could discuss your concerns and signpost her to where she can get more support for him?

x2boys · 17/01/2024 11:50

Polgarahairstreak · 17/01/2024 10:01

Please try, my son died of diabetic ketoacidosis as he was unable to manage his condition due to his mental health. He had late onset type 1 diagnosed at 26 and dead at 27...I tried so hard to be listened to he was losing weight (he was a skinny bugger all his life) I knew he wasn't taking his insulin or antidepressants as I wasn't getting his prescriptions and I could count...he would always say he had even tho he knew I knew he wasn't and just get shouty and then hide away (I obviously couldn't make him) I called GP who suggested I remind him to take meds (I was obviously doing this) I called the diabetic team at the hospital and emailed they rang him he said no no weight loss that was that, I called mental health team who said it's a medical issue. I spoke to hospital doctors, he was admitted 4 times in 6 months they said it was a mental health issue. I called adult social services who said he had capacity and then he died and everyone said sorry

Im.so.sorry for your loss my son was in severe DKA on diagnosis he very nearly didn't make it ,such a complex condition.

Dotjones · 17/01/2024 11:57

If in doubt, don't report. He's an adult so social services won't care. They might be interested in the younger children but to take them away they'd need to believe they weren't safe there. You say there's also another adult child living there, do they seem capable of looking after the younger ones? Above all, are the younger children who are actually legally still children seemingly ok? That's the crucial thing. IF you think the younger kids are in danger, report, otherwise I'd stay out of it.

ComtesseDeSpair · 17/01/2024 12:05

If you’re a friend of the family then surely the first step is to speak with his parents about your concerns. He may well have a disability social worker or be receiving support with his health already. Equally, he may be choosing not to engage - and it’s very difficult when somebody is legally an adult for either their parents or health services to intervene if somebody is choosing not to engage. You indicated earlier that you have tried to educate him on taking care of himself and he isn’t interested, so this is clearly a complex situation which “reporting” to social services is unlikely to solve. It’s going to need engagement of his family above anything else.

x2boys · 17/01/2024 12:08

Dotjones · 17/01/2024 11:57

If in doubt, don't report. He's an adult so social services won't care. They might be interested in the younger children but to take them away they'd need to believe they weren't safe there. You say there's also another adult child living there, do they seem capable of looking after the younger ones? Above all, are the younger children who are actually legally still children seemingly ok? That's the crucial thing. IF you think the younger kids are in danger, report, otherwise I'd stay out of it.

Social.services are not just for children
They will.care if he is a vulnerable adult

MrsSlocombesCat · 17/01/2024 12:25

Polgarahairstreak · 17/01/2024 10:01

Please try, my son died of diabetic ketoacidosis as he was unable to manage his condition due to his mental health. He had late onset type 1 diagnosed at 26 and dead at 27...I tried so hard to be listened to he was losing weight (he was a skinny bugger all his life) I knew he wasn't taking his insulin or antidepressants as I wasn't getting his prescriptions and I could count...he would always say he had even tho he knew I knew he wasn't and just get shouty and then hide away (I obviously couldn't make him) I called GP who suggested I remind him to take meds (I was obviously doing this) I called the diabetic team at the hospital and emailed they rang him he said no no weight loss that was that, I called mental health team who said it's a medical issue. I spoke to hospital doctors, he was admitted 4 times in 6 months they said it was a mental health issue. I called adult social services who said he had capacity and then he died and everyone said sorry

That’s terrible. He should have been sectioned as a danger to himself.

Notimefor · 17/01/2024 12:29

Really? How is that going to help. One problem with autism is that it can cause eating problems due to taste, textures and gastric problems - I speak from experience, my daughter is autistic and is underweight m. This is not due to not having access to food, it’s a big problem that I try to mitigate everyday. I think you are making assumptions that she is neglecting him.

MujeresLibres · 17/01/2024 12:29

Not sure if anyone's already mentioned, but there is a specific eating disorder associated with type 1 diabetes, diabulimia. This is when diabetics either take too little insulin or none, which causes weight loss in the short term (and serious complications in the medium and long term). Early adulthood is often a turbulent time for young diabetics anyway - wanting to ignore the condition, fit in with peers, perhaps get drunk or take drugs.

MeMyBooksAndMyCats · 17/01/2024 12:30

If he's getting skinny and diabetic I'd be worried he may be in DKA or slowly going into DKA.
What's his blood sugars like? Can you take him into your care?

x2boys · 17/01/2024 12:37

Notimefor · 17/01/2024 12:29

Really? How is that going to help. One problem with autism is that it can cause eating problems due to taste, textures and gastric problems - I speak from experience, my daughter is autistic and is underweight m. This is not due to not having access to food, it’s a big problem that I try to mitigate everyday. I think you are making assumptions that she is neglecting him.

Autism is a huge spectrum if you have met one person with autism you have met one person with autism etc you only have experience of your daughter and how her autism impacts her.
Also i assume your daughter is not also Diabetic?

alltootired · 17/01/2024 12:52

OP ignore those saying do not report.
You are not in any position to assess why this is happening.
Just report to social services for a vulnerable adult. They may do little.
But when I reported for a vulnerable adult with depression who was not eating they were brilliant. Visited her and had carers round twice a day making sure she was eating until she got well enough to look after herself.
Just contact them. You can do it online or by phone.

Polgarahairstreak · 17/01/2024 12:52

x2boys · 17/01/2024 11:50

Im.so.sorry for your loss my son was in severe DKA on diagnosis he very nearly didn't make it ,such a complex condition.

Thank you that's how he was originally diagnosed and then was hospitalised a further 8 times in the 11 months following so it was clear to everyone there was problem

Polgarahairstreak · 17/01/2024 12:56

MrsSlocombesCat · 17/01/2024 12:25

That’s terrible. He should have been sectioned as a danger to himself.

They said he couldn't be sectioned as he had capacity and knew the risks...the mental health partnership carried out a mortality review and they admit failures in his care (no risk assessment etc, failure to engage with me) but they stand by the decision not to section him

clpsmum · 17/01/2024 13:10

Could you not approach the mum first? Apologies not rtft so sorry if you've done this. but as the mother to a child with autism I'm sure her life is really difficult and an unwarranted (if that is the case) and unearned referral to social services could also affect her mental health in many ways. Please epleoach her or even his school/day centre etc first. The impact of a call from social services are huge

Unknown18 · 17/01/2024 13:21

Notimefor · 17/01/2024 12:29

Really? How is that going to help. One problem with autism is that it can cause eating problems due to taste, textures and gastric problems - I speak from experience, my daughter is autistic and is underweight m. This is not due to not having access to food, it’s a big problem that I try to mitigate everyday. I think you are making assumptions that she is neglecting him.

This isn’t the cause of it, it’s untreated diabetes. I’m not making assumptions I’m saying what I’m seeing

OP posts:
Diorama1 · 17/01/2024 13:27

@Polgarahairstreak I am so sorry for your loss, that is truly awful.

I have experience with working with vulnerable adults and have had cases where young people are committing very serious acts of self harm, multiple suicide attempts and we have tried to get them sectioned and have been told no as they have capacity. We were told they were entitled to make the decision to self harm/attempt suicide to that extent. There were clear MH issues that were causing the destructive behaviour but apparently that didnt meet the threshold as they werent diagnosed with a particular mental illness.

Polgarahairstreak · 17/01/2024 13:33

Diorama1 · 17/01/2024 13:27

@Polgarahairstreak I am so sorry for your loss, that is truly awful.

I have experience with working with vulnerable adults and have had cases where young people are committing very serious acts of self harm, multiple suicide attempts and we have tried to get them sectioned and have been told no as they have capacity. We were told they were entitled to make the decision to self harm/attempt suicide to that extent. There were clear MH issues that were causing the destructive behaviour but apparently that didnt meet the threshold as they werent diagnosed with a particular mental illness.

Thank you so very much for your reply...so many people don't have experience as to how high the thresholds have to be to be sectioned that sometimes I feel like I'm not believed or that I didn't try hard enough to save him, even though I do have it all in writing

Rachie1973 · 17/01/2024 13:38

MrsSlocombesCat · 17/01/2024 12:25

That’s terrible. He should have been sectioned as a danger to himself.

You can’t section someone with capacity! A bad choice is still a valid choice if they can make that choice for themselves and understand the consequences.

x2boys · 17/01/2024 14:06

Polgarahairstreak · 17/01/2024 13:33

Thank you so very much for your reply...so many people don't have experience as to how high the thresholds have to be to be sectioned that sometimes I feel like I'm not believed or that I didn't try hard enough to save him, even though I do have it all in writing

I used to be a mental health nurse unfortunately to section someone there has to be immediate concern for a persons safety or that of others
As I said my son is diabetic I understand how complex it's and how not keeping on top of insulin and monitoring blood sugars can lead to DKA ,sadly though unless there was immediate concern it would have been very hard for professionals to implement the mental health act and even if they had it would be even more difficult to force Someone to take insulin
I'm not saying more couldn't have been done and that services were not at fault it's just that section ing someone is a complex process
Its so tragic .

i

MatildaTheCat · 17/01/2024 14:12

Absolutely report. The young person appears to be very unwell and has a life threatening condition if not extremely well managed. There are also 2 younger siblings in the house and who knows who is looking out for them?

So potentially you could refer to adult social care and children’s services.

You won’t know the outcome but you’ll know you did your duty as a responsible adult. Many people don’t understand how deadly diabetes can be.

HumourReplacementTherapy · 17/01/2024 14:21

It's more likely to be T1 given his age. I know more and more you see younger people are being diagnosed with t2 but it's still quite rare for your pancreas to be fucked by diet @ 19.
Given that he's lost weight it's highly likely he is very ill, with extremely high blood glucose. He could go into DKA imminently. In short- he could die.
Is he T1 or T2?
It's a totally different disease and really important to find out!

Loopygodiva · 17/01/2024 14:22

Unknown18 · 17/01/2024 13:21

This isn’t the cause of it, it’s untreated diabetes. I’m not making assumptions I’m saying what I’m seeing

How do you know it’s untreated?