Has anyone suffered PCOS psychosis?

[Shatandfattered]

Posting here for traffic. Just curious if anyone has suffered psychosis and extreme mental health issues and has pcos? Just looking for answers on what a doctor will do to control it I'm at my wits end

I have PCOS and was on antidepressants for years. Personally, I decided this wasn’t working for me and 1. Tried to improve PCOS through lifestyle changes and taking the right vitamins (generally worked well with cycles coming down from around 90 days to 35 days) 2. Went to therapy to work through depressive thoughts.

I think I’m going to have to battle mental health my whole life and whilst I think my depression has lifted somewhat I have awful anxiety.

PCOS is really sh** and I don’t think gp’s have enough of an understanding just how much it impacts life and mental health. I’ve been in floods of tears at some things doctors have said.

There is a link between PCOS and autism, worth exploring

Ive started taking inositol powder which helps regulate periods (which it has for me)
But it apparently helps with the mental side of things too, but too early for me to say

@YourTruthorMine do you have any article links for this? I’d be interested to have a read

@YourTruthorMine I have two boys with ASD!! Why has no one ever told me this. I've took inisotol etc previously but to be honest I am crap at sticking things out but I'm going to lose my kids and possibly my life if I don't get a handle on it!

I take it the pill hasn't helped? I had my ovaries removed due to very large cysts and felt so.much more normal afterwards. However, I still suffer from depression and am on venlafaxine which is brilliant. Helps with my ADS too.

Stopped hormonal contraception and I massively improved. Realised j was autistic and I was cured because I know why I struggle and can adapt so I don't have to

I am not on any contraception, I found they made me worse and for a long while they were getting the blame of my irregular cycles. It wasn't until I struggled to conceive my third I had investigations that confirmed pcos. The escalations in my mental state are beyond any stretch of the imagination though

@YourTruthorMine thank you for commenting on my post yesterday. I've done some reading the past hour and the amount of signs that correspond to me are quite alarming. Learning for the sake of it, autoimmune disorders being more common (pcos, psoriasis flares, ibs symptoms), I have extreme emotions hence the post, multiple diagnoses of mental health issues without a clear pinpoint, needing vast amounts of time to recharge, always getting ill physically from stress, highly empathetic, turbulent relationships feeling like I'm always the root cause of problems, sensory issues.... I don't understand how I could be so blindsighted having had 2 sons who have ASD on opposite ends of the spectrum.

Not that I'm self-diagnosing of course but it's glaringly obvious all of a sudden and I'm not sure how to feel. Pcos hormones being the problem felt so much more easier to digest as there is supplements and medication to throw at it. But autism feels so overwhelming and hard to "unlearn" my behaviours.

Gosh, I'm really pleased to have pointed you in the right direction, not that I would wish autism on anyone, but it's better to be aware. I radomly read about the link between PCOS and autism years ago, I am currently down my own rabbit hole researching the link between autoimmune conditions and autism (I am diagnosed with severe ADHD, autistic traits and have several autoimmune conditions and also PCOS) Check out Kimberly Kitzerow on Tiktok and Insta. she is a researcher on the subject. Autistic herself with an autistic daugher

I have PCOS and have struggled with anxiety for years. I had no idea there might be a link.

I'm absolutely amazed at how many aspects of my health and mind are all interlinked it's like putting a jigsaw puzzle together!

Honestly if you are autistic once you work that out it's like this big weight has lifted. You are not broken and don't need to do better... you are different and need to do different.

You list needing to recharge. That was the main thing for me. I always tried to fight through it it's not normal to need time to recover from 'fun' social stuff etc etc. Once I realised that's autism and won't change I plan in time to recharge and it's massively improved my mental health.

Same with the sensory stuff. Pay attention to what bothers you and avoid it where you can. I now won't do crowds or public transport. If I get too hot I know I get snappy and irritable. Non of this I really knew was autism I used to think it's anxiety and something to get over.

It's true you can't treat autism but trying to force yourself to get on with life in a NT way is what makes you ill. Being autistic and knowing your needs limits and strengths is empowering I've found.

Lots of newly diagnosed adults work on unmasking and there is a lot of support online from people you will find have similar experiences. And many of us had our own autistic kids before we realised we ourselves were autistic. It was learning about autism for my son that dropped the penny for me. There are some good Facebook groups search out autistic women uk. Although personally I've not worked on unmaking out of my home and if you are being judged for your mental health I would not advise it. The times I've acted autistic out of home I get treated appallingly there is the assumption you have learning difficulties or are very stupid when other learn about it. So I do mask for everyone except my family for me it's a balance I can manage.

Thank you for your reply @PurpleBugz I appreciate you taking the time to give me your perspective. I believe finding answers will give me a more even footing going forward regardless because right now I'm like cat in a bath trying to manage daily life! It's exhausting being so bloody horrible and unmanageable, I don't much like myself never mind other people dealing with it! I need to find coping mechanisms asap