Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Failed peristalsis

4 replies

WaferThinIce · 16/12/2023 14:01

Apologies for posting in AIBU but despite my online searching I’m struggling if to find any information and am hoping the hive mind can help me.
I’ve had various issues with eating and swallowing over the past few years and had oesophageal dialation last year which gave me three months of worry free eating. That was lovely. But since then it’s all crept back. I have difficulty swallowing, pain, spasms and at times the only way to easy the agony is to vomit up the food that’s stuck. Meat, fruit and vegetables are a no go.
a few days ago I was given a diagnosis but very little in the way of answers so I’m hoping one of you knows something or can signpost me.

I’ve been told I have ‘failed peristalsis’ in the lower half of my oseophagus. Hence the pain and food getting stuck. Apparently this will spread over time to all of my oesophagus and the doc didn’t know if that would be just food or whether it will involve liquids too. Unlike some achalsis hr didn’t think Botox or gnt spray would help and further oesopghus stretching is limited.
so I’m trying to find some information on this horrible thing, to better understand whet it is, the prognosis, whether it will spread to my stomach and bowel, how I will get nutrition, what happens to my saliva when I can no longer swallow and lots of other questions.. I do have a number of autoimmune disorders, is this linked to them? Any help would be hugely appreciated. Annoyingly I didn’t think of most of my questions until after my appointment as I was a little thrown by the diagnosis. Thanks

OP posts:
Axolotlrulestheworld · 16/12/2023 15:23

WaferThinIce · 16/12/2023 14:01

Apologies for posting in AIBU but despite my online searching I’m struggling if to find any information and am hoping the hive mind can help me.
I’ve had various issues with eating and swallowing over the past few years and had oesophageal dialation last year which gave me three months of worry free eating. That was lovely. But since then it’s all crept back. I have difficulty swallowing, pain, spasms and at times the only way to easy the agony is to vomit up the food that’s stuck. Meat, fruit and vegetables are a no go.
a few days ago I was given a diagnosis but very little in the way of answers so I’m hoping one of you knows something or can signpost me.

I’ve been told I have ‘failed peristalsis’ in the lower half of my oseophagus. Hence the pain and food getting stuck. Apparently this will spread over time to all of my oesophagus and the doc didn’t know if that would be just food or whether it will involve liquids too. Unlike some achalsis hr didn’t think Botox or gnt spray would help and further oesopghus stretching is limited.
so I’m trying to find some information on this horrible thing, to better understand whet it is, the prognosis, whether it will spread to my stomach and bowel, how I will get nutrition, what happens to my saliva when I can no longer swallow and lots of other questions.. I do have a number of autoimmune disorders, is this linked to them? Any help would be hugely appreciated. Annoyingly I didn’t think of most of my questions until after my appointment as I was a little thrown by the diagnosis. Thanks

Hi Op I feel for you, that must be awful and the uncertainty will make things worse. I have no answers to give but didn't want to read and leave again without saying anything xx

Technonan · 16/12/2023 15:25

This sounds really tough. Again, no help to offer as I don't know anything about this, but I just wanted to express my sympathy. Has your GP been any help?

Axolotlrulestheworld · 16/12/2023 15:26

Sorry posted too soon. I hope you have someone with you to support you sending you a hugFlowers

WaferThinIce · 18/12/2023 11:04

Thank you for your support. I haven't seen my GP, come to think of it I haven't seen a GP in years. Remarkably with my autoimmune conditions I just see various hospital consultants. Other thank work I'm not out and about very much so (luckily) have avoided most illnesses except for covid multiple times. I have an appointment with a consultant in mid-January but that seem a long way away at the moment. I have managed to find some online info but it seems to be on differentiating between that various achalasia types and is geared towards medics diagnosing them rather than giving information on how it will progress and ways to slow/manage it. Other than my other half I haven't told anyone as yet. They're used to me not being able to eat at times so don't ask questions now. One of the current things I have is pain at the very top of my stomach, just below my sternum after I eat. It can last several hours. I don't know if that's linked and I should avoid food or what. I hate not knowing, I deal so much better with things when I have as much information as possible.

OP posts:
New posts on this thread. Refresh page
Swipe left for the next trending thread