To have my childs tonsils and adenoids removed?

[boong121]

Hello all, my child just about to turn 3 and has been seen by an ENT- she is on the ASD pathway,non verbal, has super bad sleep with sleep apnoea, she breathes very heavily during the day I hear her from another room, she cant run more than 5metres she gets out of breath very quickly, struggles with breathing on hot days etc.

But getting them removed is such a major decision, if there is anyone with an experience or knows anyone who has had them removed as a child were they happy with that choice or did they regret it?

My dd had her tonsils and adenoids out a few weeks ago, her recovery was smooth - she was even eating crisps later the same day!
For me it was a no brainer that we’d do that as soon as the ENT doctor said it was an option - the other option was just to wait and see if it resolved itself by age 7. I’ve heard from so many how reluctant they are to take them out these days that my thinking was if they’re giving me the option it must be needed. I did still worry as the op date got closer that we’d made the wrong decision though and surgery was unnecessary but sleep has improved so much and I can sleep better knowing she’s breathing better.

We've found NHS to be very against it. Dd has huge adenoids, private appt said yes needs surgery but NHS ENT said it's not necessary and they won't operate on the NHS. It's very frustrating!

Our daughter had hers out in June, and she was also 3. Truly the best decision as she was so poorly with her tonsils since she got COVID at about 8 months old. Poor thing, it effected her sleep, eating, mood and ultimately her behaviour. I had to have mine out last year after a cancer scare. My recovery was horrific, 2 weeks of misery, so I was really worried for her. However we were assured it's a faster recovery for kids and she bounced back rapidly. All she had to control the pain was Calpol and Ibruprofin as we weren't keen on the opioids after doing our research and speaking with her consultant. A couple of rough moments but that's all it was. Most of the time it was like nothing had happened! So pleased we went ahead with it.

Had them out - adenoids and tonsils, but in separate operations - when I was primary school age - over 50 years ago now. I was getting constant bouts of tonsillitis and sinus trouble and it was a game changer.

Hi,

My ds had his adenoids taken out twice before the age of 3 and they grew back both times. In the end I figured out that the problem was driven by wheat and dairy and on removing those from his diet, his nose cleared and he was able to breathe easily. Shortly after that he started sleeping well.

I'm sorry to say that he developed crippling cPTSD from the surgeries and it is a real problem.

We tried reintroducing milk earlier this year and his nose has blocked again so we have cut it out again. He is 13 years old.

Sorry your situation is so difficult. I hope it get better.

My Dad had his removed when it was more common to do so, and was fine thereafter and is fine now many decades later. Don't know if the adenoids were removed too.

I had mine out aged 11, after years of bad tonsillitis and ear infections, and I've never had a problem since. If the ENT specialist recommends it then there's no reason not to have it done.