Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Electrode test eyes, help needed

9 replies

TearsForFears24 · 27/11/2023 21:35

Shameless posting for traffic as in a tailspin. Long story short, I went for a routine eye test/scan a couple of months ago. The scan observed a thin optic nerve and I missed spots in the visual field exam. No pattern to the spots I missed. Was referred by the optician to the glaucoma clinic. Repeated the visual field last week and saw the consultant today who done another scan. He said I was still missing spots on the visual field, and the scan showed a change in the colour of the optic disc. Apparently it should be pink but mine has parts where it is yellow. He didn't seem massively concerned and stated it's not gluacoma but is referring me to a different clinic where they use electrodes to test the optic nerve. He wasn't very forthcoming about potential diagnoses but said it wasn't anything to worry about. When asked what could cause changes to the nerve he kind of shrugged and said something about excess alcohol, head injury, drug use etc. None of which apply to me.
I'm utterly terrified and sick to my stomach about the possibility of progressive vision loss. Unsure how he is confident it's "nothing serious" when there's clearly something going on. It's basically a love long phobia of mine to go blind so I'm really in a tizz. If anyone who has been in a similar situation could share their story that would be greatly appreciated. Or if there's any optometrists/opthalmologists that could advise?

OP posts:
TearsForFears24 · 28/11/2023 05:31

Hopeful bump

OP posts:
TigerRag · 28/11/2023 07:12

I've had those tests done. In my case my consultant (and everyone else seen since 2009) can see something wrong but no one can decide what.

The electrode tests are uncomfortable but not painful.

TearsForFears24 · 28/11/2023 07:44

Thank you so much for the reply @TigerRag. Did they mention anything about your optic nerves or what could be the possible causes of abnormalities? Do you have any vision issues?

OP posts:
TigerRag · 28/11/2023 10:17

I have a condition called Nystagmus which means my eyes shake. I was told at 19 (I was born with it) that it was optic atrophy.

They now think there's a neurological cause

underneaththeash · 28/11/2023 10:24

This is a fairly comprehensive list:

Conditions that can be mistaken for glaucoma include compressive or infiltrative lesions of the optic nerve, previous ischemic optic neuropathy (both arteritic and non-arteritic), congenital and hereditary optic neuropathies, post-traumatic optic neuropathy and inflammatory and demyelinating optic neuritis. Most cases in the compressive category—intracranial mass lesions that cause optic nerve or chiasmal compression—will be pituitary adenomas, craniopharyngiomas, suprasellar aneurysms or meningiomas.

So, it's quite a big list! Which is why the consultant was being non-committal, it might be something, but equally might not be. They're doing exactly the right thing. Hope you get some answers soon.

TearsForFears24 · 28/11/2023 11:00

Thank you for the reply @underneaththeash . Is it possible that this is an incidental find and it is my physiological baseline? Most of the things in that list seem quite scary! My biggest fear is that it's something that can't be treated

OP posts:
underneaththeash · 28/11/2023 11:04

TearsForFears24 · 28/11/2023 11:00

Thank you for the reply @underneaththeash . Is it possible that this is an incidental find and it is my physiological baseline? Most of the things in that list seem quite scary! My biggest fear is that it's something that can't be treated

Absolutely!
Now that our testing equipment has become a lot more advanced, we pick up stuff that wasn’t noticed previously.

PurpleJam2234 · 26/02/2024 11:12

@TearsForFears24 I am in an eye tailspin as well. What was the outcome for you? Hope you are ok xx

TearsForFears24 · 26/02/2024 11:31

Hey @PurpleJam2234, I've sent you a pm

OP posts:
New posts on this thread. Refresh page