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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To want to work and have a normal life.

3 replies

Feelingsuperfedup · 21/11/2023 21:23

I’m female and in my early 30’s. I was diagnosed as a teen with Autism. To cut a long story short my life has seemed to fall apart the older I have got.

I can’t make friends easily. Got involved with a boyfriend in my early to mid twenties who promised me the world, when in reality he was outright lying. Pulled offers twice on one property (he secretly didn’t want to buy a house for us.) wish he’d told me sooner so I hadn’t wasted 8 years of my life on him.

I’ve got an art degree which was a real struggle to achieve due to my difficulties relating to being on the ASD spectrum. Got a 2.2 due to being absolutely terrible at time management. I was so disappointed with the result and felt like it was a waste of 3 years.

I’m kind of lost as I’ve tried so many jobs, tried teaching and failed, (I really struggle with face to face contact, as well as organisation and planning) I’ve literally lost every single job via firing that I’ve tried catering, customer service, fundraising, retail you name it. All for either silly mistakes, or extreme emotional dysregulation.

My CV is non existent at 30 years of age. I am literally unemployable at this point. I tried applying to a job during the pandemic and was told that my CV looked like I’d been dismissed from all my positions, so they were unwilling to take my application any further.

My mum isn’t keen on the idea of me ever having to work again either due to my ‘difficulties.’ She feels it’s too much stress for me due to my autism. I’m constantly misunderstood in the workplace. But it’s going to drive me insane if I don’t as I’m bored sick and I’m not exactly a catch for anyone either if I can’t work.

I really hate having to rely on benefits just existing with no purpose. Having no routine, and living alone with nothing to look forward to is genuinely driving me up the wall. I’ve sought a private assessment for additional help, and it turns out that besides ASD, I’ve got severe combined ADHD and have gone my whole life up until now undiagnosed.

The doctor who did the assessment also thinks I may have epilepsy due to ‘brain zaps’ and is unwilling to prescribe me any ADHD medication until I’ve seen neurology, which might take another year. Another year of my life wasted I feel. They also said it was good I wasn’t working at this point (Is it really?) When I suggested I could do self employment maybe, the doctor just told me that comes with its own challenges, which they are likely right.

But I dream of having my own family, a partner and children to go home to, and that’s not likely to happen for me on benefits, as there’s so much stigma attached to it, people like me are portrayed by the media as scum. I’m also running out of time due to my age.

I don’t have any extended family, only immediate, or any genuine friends, so am at real risk of isolation if my parents or 2 siblings were to die before me. (My parents will) It’s very frightening.

I know some people probably have it far worse with these wars going on and other stuff, after all I’ve got a roof over my head and food to eat. But I just can’t help but feel very isolated and worried for my future. I don’t feel I can carry on not working or having no friends or my own family for another 50 years.

aaarrgghhh It just all feels like such a mess to me.

AIBU to just want to outright go and defy all the people who say I ‘can’t’ and just get out of this hole already and make something for myself?

Sorry for the long rant.

OP posts:
Lovemusic82 · 21/11/2023 21:39

Hi, I’m going through diagnosis at the moment and agree that things have got harder as I have got older. I’m currently not working as I am a carer for my youngest dd who is severely autistic, I would like to work one day but the thought of going through the process of getting a job scares the crap out of me. I’m petrified of the telephone and can only deal with one person at a time face to face (and often mess that up). I know a lot of people on the spectrum prefer to be self employed, maybe that’s something you could look into?

I am also single though obviously I have dc so haven’t always been single, my ex husband was also on the spectrum. I find relationships really hard and tend to be drawn to the wrong people so it’s safer for me to stay single.

Before having dc I had quite a few different jobs and didn’t really last long in any of them, I found most of them too stressful and had awful anxiety about letting people down. I am looking into becoming self employed doing something that I love but it does involve talking face to face with people, I’m hoping eventually I can overcome my lack of confidence and actually advertise my services too people doing the thing I love.

User65412 · 21/11/2023 22:00

Didn't want to read and run. Op you can anything you put your mind to and 30 is still young. Have you thought about training in coding or something like that? I work on statistics and we have a much larger than average number of autistic people on roll. My organisation is very inclusive and recognises situations some of them might find difficult and puts things in place to help.

user628468523532453 · 21/11/2023 22:14

I think those are very valid fears and feelings.

If you want something practical you can try, the National Autistic Society run pre-employment training webinars and I think have other services to support people into work.

Might be worth looking? Even if it's just signing up for a webinar it might give you a little more sense of control than you're feeling now?

https://www.autism.org.uk/what-we-do/employment/employment-webinar

Employment webinar

Series of webinars on employment and the workplace for both employers and autistic job seekers.

https://www.autism.org.uk/what-we-do/employment/employment-webinar

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