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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask you to help me diagnose my daughters stomach issues… I’m desperate!!

32 replies

AuntCrystal · 16/11/2023 18:32

I’ll give a quick summary of symptoms…

DD started suffering from nausea after eating nearly 2 years ago (when she was 8. She’s now 10). Initially, we all thought it was an anxiety thing as covid restrictions had meant we ended up in a long isolation around that time (we don’t live in the U.K.).

This persisted, despite support with her emotional well-being becoming a big focus for us. Other signs of anxiety dissipated, except the nausea. I went back and forth to the GP and they didn’t do much, until one GP suggested trying omeprazole. Finally, that helped! However, it didn’t get rid of the nausea completely. We had a referral for gastro, and they did a gastroscopy. She had to come off the medication for 4 weeks before that. This made her very unwell. She was barely eating at all and the nausea was causing her to spiral into panic attacks after eating, when she did try to eat. The gastroscopy showed esophagitis, gastritis and the valve that stops stomach acid coming up was open. We resumed the omeprazole, which does help to an extent, but the nausea still persisted. She then had a PH test, to check acidity levels over a 24 hour period. They did this test when she was on omeprazole to check if it was fully blocking the acid reflux. The test is come back that the acid reflux is under control. They have done bloods, and she had to do a lactose breath test and they have shown up nothing. They are saying there’s no more they can do to help her. They want to try to withdraw the omeprazole at the end of the year to see if she can now cope without it. I’m afraid for her. She doesn’t like going to friends houses, or school trips or anything like that. She will be sitting with her head in the toilet after 50% of the meals she eats. This has gone on too long now and I don’t know how to help her.

any advice much appreciated.

OP posts:
stayathomegardener · 16/11/2023 21:40

jamimmi · 16/11/2023 21:09

I could have written this 2 years ago . Dd crippling abdominal , pains horrendous reflux and continual nausea with frequent vomiting. Also.on omeprazole ( minimal.help)and constipation. She was seen by GP and fobbed off untill dh lost it with them peads saw and ran tests . She was tested for coeliac which came back borderline. She by that stage wasn't eating much at all. We had a week with no bread/ pasta by accident, she felt less symptomatic. We cut out wheat / gluten( don't do this unless she's been tested for coeliac) she is now completely fine no symptoms , off meds and more energy than I've ever known. Consultants think she is coeliac as her improvement followed.the pattern they would expect in a ceoliac going gluten free, but we can't confirm as the only way to do so is to restart gluten which she flatly refused to do and at 16 I can't make her.

Interesting @jamimmi DD now 24 won't touch gluten purely on a how it makes her feel.

No celiac diagnosis.

familyconflict · 16/11/2023 21:56

May not be the same but my child used to feel nauseous after eating. History of reflux & had Omeprazole for this but the nausea felt different to reflux. After many months, may even have been couple years of being told it was in thier head, and pushing to find answers, a second consultant did a test and diagnosed Gastroparesis where the stomach muscles were not working properly. Sorted with a 6 weeks course antibiotics (side effect makes the stomach muscle work) Needed a couple more times over 2 years but did fix itself eventually.

jamimmi · 17/11/2023 00:56

@stayathomegardener my daughter is the same the only time she has had a return of symptoms was when she was accidentally glutened on holiday. Que vomiting an hour post gluten and 24hrs of feeling very fatigued . Consultants have said just stick to GF diet but they would like a formal diagnosis as ceoliac does increase other risks. Sorry OP won't derail your thread , but I hope it helps to hear others have been in the same boat and you find the cause soon

LovelaceBiggWither · 17/11/2023 01:22

OP I am guessing you are in Australia? PM me if you are as I can suggest a dietician who is very good at this stuff--she does telehealth.

OrderOfTheKookaburra · 17/11/2023 01:32

Why the hell aren't my they repairing the valve? My nephew had that and they dawdled in repairing it and the delay caused so much damage to his oesophagus from all of the stomach acid.

JackRosenberg · 17/11/2023 01:44

Switching to a high ph bottled water and cutting out tap water can help with reflux nausea.

KnowledgeableMomma · 17/11/2023 01:52

Hmmmm...lots of options on diagnoses. Let's see if we can narrow it down. Any other symptoms? Any sharp stomach pains? Pale stools (poop)? Notice a difference in the nausea at a certain time of day? Any specific food type seem to make the nausea worse? Have they tried any kind of SSRI/anti anxiety med and if so, did it help any?

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