T1 Diabetes

[LeCirqueFouFurieux]

Not an AIBU (well it sort of is as I'm unsure if I should go to A and E). I've been having some tests recently and not got the results - one was for T1 diabetes, I've just googled the symptoms and I have every single one on the list (but I forgot to tell the GP this when I saw her as I was focusing on one particularly symptom).

I have an appointment tomorrow to get the results. One of the things I forgot to tell her (and I mean I really did only speak about two symptoms (weight loss and fatigue)) is that I've been fainting pretty regularly; this is the part I'm unsure of - I've fainted (full on fainting from standing) three times this morning (usually it's just once every few days).

Is there anything I can do at home or is this something I should seek 111 or A and E advice from, or is it OK to wait until tomorrow and speak to the GP?

I have no idea about diabetes at all so any help or advice would be really useful from those that have experienced it?

I'm staying in, I've been told I have both T1 and Addisson's disease, they've started some drips and I've some injections as well.

I really hope I do feel better soon, thank you for all the advice, it was definitely the right advice to come into the hospital (they've said this repeatedly as well)

I'm going to try and think of the questions I need to ask tomorrow so if there's any people can think of please let me know.

Glad you're in the right place. When you've got time look into the Addison's Self Help Group website. Very good advice on there.

A double whammy, OP. That receptionist screwed up badly! But I think Addison’s is also quite manageable in most cases so it is fantastic that yours is now being dealt with.

Hope you manage some sleep tonight.

Oh darling. That's a lot to take in.
Luckily both those conditions can be treated well nowadays.
I'm so glad you went to hospital today.

Sorry to hear this, hopefully things will be better now.

I was diagnosed T1 at 35 with exact same symptoms, and years later when having genetic testing for other autoimmune issues, they pointed out on my results the specific gene for Adult Onset Type 1
The good news is that you’ve got a diagnosis now, you’ll soon start to feel much better. It will seem like a lot to get to grips with all at once, just take it one step at a time

Glad you’ve got your diagnosis OP. Hopefully they’ll soon have you home, diabetes treatments have come a long way in the last few years.

I should think that the diabetes is secondary to the Addisons disease.

Aww poor you OP.

BUT - you'll feel much better soon and then you'll be OK going forward.

Are your animals alright?

So sorry. I have this combination too (and thyroid disease). It's hard to manage as the steroids for Addisons make you insulin resistant. But all the technology makes it easier these days.

You MUST make a complaint against GP receptionist. She put your life in serious danger

That's a bit harsh on the receptionist, presumably the gp had reviewed the results and directed how urgent to make the appointment.

Just read these posts and wanted to wish you well. Hope you feel much better soon x

I’m a doctor. I work in diabetes & endocrinology. Complain about you Gp if they didn’t send you in, if not managed addisons can be fatal and they can’t drop the ball on important bloods and need to learn from their error. Now you’ve got proper treatment it can be well managed so don’t worry.

Both are autoimmune diseases and it’s not that uncommon to have them together. I hope they’re looking after you well, I’m sure it’s a shock but people so really well on the correct treatment. You will be referred to the “medics” so medical doctors for admission. You can ask to be seen by the endocrine registrar or consultant tomorrow. This is their specialty and their should be someone that covers referrals plus they’ll probably think you’re interesting and be happy to say hi!

Have you managed to sort out care for your dogs?

This is not true. You can get LADA which is T1. There's lots of people diagnosed later in life. Unusual yes but not impossible.

T2 progressing to T1 is usually misdiagnosed T1 because doctors don't believe you can get T1 as an adult and try to treat T2. And as many people are in the honeymoon period where there is some insulin secretion, this works until it doesn't which is when they get rediagnosed as T1.

Ask about what insulin you're on and how to pre-bolus for that fast acting insulin.
They all work differently, fiasp is the best if you want to sit down and eat your food pretty quickly.

I'd also ask about dosing for fats & proteins not just carbs, as it's a headache to learn. (Took us 7 months and we had to research it ourselves!)

Hope you're starting to feel better now you're on insluin.

Really sorry to hear this and at least glad you’re in the right place. I hope you’ve got cover for things at home.

tests for T1 really shouldn’t take this long. It can be a killer untreated and you’ve been left really poorly. am cross on your behalf.

once you get going with the treatment you’ll start to feel better. It might be a bit of a roller coaster at first but you will lift.

my son has t1. He manages it well with an insulin pump and sensors.

sending you an unmn hug. X

Get yourself on T1 subred, there's a lot of support there. Best of luck to you OP!

Or another type like MODY, LADA, type 3c, or steroid induced.

My son was diagnosed with type 3 c in February this year he's only 16 he was.in DKA and his pancreas was necrotic hence the type 3c diagnosis but on all his letters from professional, s it says type 3c /type1 unfortunately most people including medical staff don't really know about the rarer forms of Diabetes my sons treated as type 1_as in he has to inject insulin 4x+, day at least but he also has to take creon,with every meal.as his pancreas doesn't work at al!and the creon helps digest his food.

The zoo is being cared for at home, by a friend... the feathered member of the zoo as seemingly been singing the Fck You, Fuck You very much song loudly on repeat for most of the night which I have no idea where it has come from but she does it when she's upset... I fell asleep so early so I've just seen his texts and I have just realised her cage cover is in the tumble drier so I suspect he's had a long, long sleepless night.

I am seeing an endocrinology team today, they spoke to them and they spoke to the on call person from my oncology team as well (I skipped that due it being identifiable; I'll change my username shortly) - it's not related to the cancer though thankfully.

My head feels more clear and I actually feel like I've had a decent sleep rather than waking up feeling exhausted.

I know mumsnet can be quite a difficult place at times but I really am very thankful for the advice and support on this thread.

@BananaHamster thank you for the questions to ask.

Also on the GP think the nurse said that it was said to "come in urgently" so if that's the message that was passed to the receptionist I can see why she booked me an urgent appointment with the GP. I am also unsure who reviewed the bloods; I know it wasn't my usual GP as she doesn't work on Friday, I'll ask them what happened more as a lessons learnt rather than a complaint though I suspect they will be all over it like a hot rash today when everyone is in; they are very, very good as a surgery (and I am a nightmare patient with a lot going on at the moment so I am insanely grateful for their care).

Hope you're feeling better soon OP. It sounds like there's a lot going on x

Very inaccurate. Db was diagnosed at 27.

My head feels more clear and I actually feel like I've had a decent sleep rather than waking up feeling exhausted.

That sounds like you are stabilising. I'm glad that you're in good hands now. It must feel like a lot happening to you right now but it all will become second nature. If or when you can, look into using a pump for the T1 with a cgm. It's such a game changer.