Hi,
I need feedback. I'm in urgent need of a full hysterectomy (removal of uterus, fallopian tubes, ovaries, scraping of tissue from outside uterus, removal of cervix and part of vagina). With two other added issues that I don't quite understand - colon resection apparently to be done at the same time and bladder / ureter stents done as part of it. I have no idea why, this has not been explained.
I am allegedly on a 4 week urgent pathway and have already 'passed' my pre-assessment. I want this done as I'm in chronic pain, daily non stop bleeding and recurring kidney infections.
However I'm so completely confused and baffled as to the strange antics of my consultant surgeon and her point blank refusal to sit and meet with me in her pre-booked appointments (her evasion tactics have been truly laughable). Suffice to say I've only ever had maximum of four minutes of conversation with her over the space of months. I've completely lost confidence. She's given me no description of the surgery or how it will be done or what the implications are or the recovery time or needs. And she refuses to write down her diagnosis and recommendations. Saying 'she doesn't write'.
Well I can't decide if she's an eccentric genius, autistic, profoundly mentally unwell, burnt out, overworked and underpaid or losing the plot. She looks tired and her behaviour is Whack!
The hospital admin team are even worse and told me today that I'm booked for an outpatient laparoscopic hysterectomy at a hospital quite far out of London (I'm central) instead of my local hospital. I feel fobbed off and it's all about the cost cutting again. I asked for confirmation that the Cons Surgeon will be the one doing it and they said they can't say. It's all so obscure and unclear and I'm literally scared for my life now.
I was taking all this in my stride but now I can't take it a minute longer AIBU to pull out of a scheduled surgery as I don't feel any trust for any of the medics invovled? The admin is bizarre, I'm not getting any information. I've already been injured in one botched procedure, I'm not walking straight into another. I'm getting red flag after red flag. AIBU or over anxious or taking self too seriously is my worry?