I’ve had a couple of general query type (medication/injuries etc) epilepsy threads over the last few months and quite a few people have replied and also to to talk about their own experiences. I wondered if a more general longer running support Epilepsy thread may be helpful to us? I’ve posted this in AIBU for traffic but if it does get going we could move it into Health or ND? I could bump this original occasionally (anyone remember the poster PuzzleRocks 
? ) I’ll see if I can go back and @ people on previous threads.
I’m just so fed up at the moment of everything. (Pity party incoming)
I am fed up with the sezuires, I am BEYOND fed up of injuries and medication etc etc. My seizures have ramped up, I’m on 4 AEDs plus have other conditions and I just feel like a different person, dependent and incompetent. I am sick of the occasions when I have to ask someone to help me - the other day I had to wake an (adult) DC early to help tie my shoes for me FFS which made me feel stupid and shit. I hate asking anyone for help in general. My DC worry about me and check me and I just feel it’s all the wrong way round. I’ve bitten off more than I can chew with some studying I think which is a thread on it’s own- but on top of everything else, has made me cry at least twice every single day this week.
My DH is the kindest most generous person I know and does absolutely anything he can to help but I know he is worried, he’s probably understandably feeling a bit heart-sinky (IYSWIM) as I’m upset so much recently. He juggles work as well as picking up all my pieces. Honestly, I think in his shoes I’d be secretly (and very guiltily) a bit pissed off with it all. I’ve tried to talk about to make sure he’s OK but he’s not going to say no , 
he doesn’t want to add to my sadness. In stressy times we would usually book a weekend away or day out but we can’t do that atm due to my issues and haven’t for a while and obviously we are both missing it. I just miss my own old independence too.
God that was a big old moan (and took bloody ages to type with audio thing as well as a couple of my fingers are fucked and my voice affected due to meds) Would anyone else like to vent?
(I’ve NCed for this as I don’t want it linked to my usual MN name)