AIBU that there should be more support or access to things in children’s ward.

[myreason25]

I know a lot of people will say that it is not a hotel and medical intervention is the only important factor but many don’t live in the situation where they spend more time in hospital than at home.

I have a dc who spends months at a time in a hospital cubicle. She spends less than 40 percent of her time at school.

for years to watch the movies on the telly it’s been 6.50 ish a day.
but the Wi-Fi was free.
this year they have started charging 5.50 a day for Wi-Fi. Using data isn’t an option as the signal is not the best at all.
to access her school classes / zoom / to see her friends at school, access to Google classroom is now costing us 5.50 a day
parking 10.00 a day.
food a ridiculous amount a day.
1 month in hospital is
400 odd a month in just being able to access school work and parking.
we can’t do it anymore and she is now so isolated / bored / lonely and frustrated
it doesn’t help their recovery at all and there is 0 holistic care anymore.

I’m always think it shows a real lack of understanding when people suggest using a child’s DLA for this kind of situation. My DCS disability has required me to give up work to care for them full time. The DLA has to go on essential household expenditure. The rest of the household can’t be plunged in to darkness because my disabled child is in hospital! The DLA is being spent on what my child needs, ie ME available to them 24/7, but that does mean I’m not earning elsewhere so have to use the DLA to cover the shortfall.

I was given breakfast and cups of tea when I to stay overnight with DD but it was a ward that wasn't usually open overnight so not sure if that's why.

They used to stop DLA when a child was in hospital for an extended period too. A double whammy of raised costs and loss of income