Hi @Worryworry84 - I was diagnosed with MND last year and came across your post.
I’m glad your DH has a Nerve Conduction Test booked, but do you know if they’re doing an EMG at the same time? That is the gold standard test for MND (as much as there is one), and can also help diagnose other conditions.
If they haven’t booked an EMG, I’d ask them if they can do it at the same visit. They often are done concurrently (They were for me).
There many (much more likely) things that could cause your husband’s symptoms. Everyone jumps to MND because (a) it’s frightening and (b) all the other mimicking conditions are much less well known, and have neurological names which are difficult to pronounce 😄
I was only 40 years old when diagnosed, with a young family, so I know what you’re going through. Try not to worry too much, as you’re doing all the right things and everything else is outside your control.
MND is a tough diagnosis to get, but there is still life and joy to be had after getting such bad news. All you see in the media is people at the end of their MND journey, but the truth is there’s plenty of good times to celebrate before that, when your function is still good. Everyone at my support group is still talking, eating, and pretty up beat about it all.
Wishing you all the best - don’t hesitate to contact me if you need any more advice.
Simon