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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Help IBS is ruining my life

57 replies

Dreamhols · 19/09/2023 11:00

Post out of desperation of yet another Ibs flare up. I can’t control it, can’t identify any triggers. The flare up happens and it’s pain and huge bloating, im talking 5/10 Inches over my tummy, it’s like pure abdominal distension, like my muscles forget they are even there and my abdomen turns into a water bed.

ive been hospitalised with pain and raised inflammation markers 3 times, all 3 times they thought grumbling appendix. Stool test showed high cal protectin but negative FIT, nhs referral to gastro 2 years so paid private. Colonoscopy and samples were clear. Consultant said sometimes they reset and if not come back for endoscopy but he strongly thought ibs. Gynae issues have been ruled out also. Allergies have been ruled out. I will go back for endoscopy but where my pain isn’t consistent with where the small intestine is.

how the f does anyone manage ibs. I just can’t. Prior to colonoscopy I had a flare up that lasted 6 months, every day in pain, bloated up to 10 Inches and now I’m on day 3 again and I can’t live like this. It’s genuinely ruining my life, it impacts my work being in pain every day, my family life as I can barely play with my kids as bending and hunching over are very painful, can’t have any pressure on my tummy. I’m at the end of my tether. All the nhs guidance I’ve tried, all the buscopan and mebeverine, pepper mint oil, been prescribed lorazepam for it and citalopram and nothing not one thing works. Sometimes fasting gets rid of the pain, sometimes it makes it 10 times worse

has anyone who’s had similar found a way to deal with it?

OP posts:
SwiftieGrainger · 30/09/2023 19:40

Infact get some now and use them, you won't regret it.

Gettingbysomehow · 30/09/2023 19:50

Mine turned out to be coeliac diagnosed when I was 61. I've been in terrible pain all these years for nothing.
As soon as I gave up gluten I had no more pain or bloating.

londonrach · 30/09/2023 19:57

Finding the triggers...today not been great...lovely lunch but suspect the I thought safe bread hence urgent need for the toilet.... luckily no queue but I will say If a queue I'm sorry I IBS I've eaten something I need to toilet now....or use disabled as sadly my body does what it needs too...my triggers..bread, milk.... I reduced my diet over 20 years to chicken and rice for two weeks then bought a food in. If I reacted I didn't eat that food again...I know my safe foods usually.. there's a book called foods that heal or cure which really helped but op it can be hell but 90 ÷ of the time I'm ok. Today a bad day...my fault I didn't ask as it was raining and child hungry ... please anyone in a ladies queue if anyone rushes past saying they IBS....we seconds to get to the toilet...

Universalsnail · 30/09/2023 19:59

Have you done a full FODMAP elimination diet? I did this with a nutritionist and worked out my problem was onions.

londonrach · 30/09/2023 20:06

Response to the lady jumping over the toilet barrier at green park. ..Done that before....hope you ok. I found I don't care now I march into any shop, cafe, hotel I've IBS I need to use your toilet due to medical emergency. No one said no apart from nasty Chinese in Venice. I won't repeat that experience.... I've been taken to so many private toilet s in shops.. I'm vvv happy for staff to wait. It gets to that point. As I said before I will use disabled only when got flare up and will also use men's...I've minutes if that.. but 90÷ of time I'm ok now but I've been with someone who not..

Luckydog7 · 30/09/2023 20:09

My gut symptoms all but vanished on a low inflammation diet (keto) and this is something that lots on that diet report. It pairs really well with fasting generally.

I fell off the wagon a week ago. Felt ok for a day before symptoms all came rushing back.

So I'm back on it now abd already feeling slightly better.

Yants · 30/09/2023 21:31

The only thing I have established will result in an almost immediate flare up is if I eat "late" in the day, and by "late" I mean any later than about 4pm!

If I do eat at 4pm or later I can guarantee I'll be needing the toilet in the early hours and at least every hour there after, and the symptoms will then continue for most of the next day.

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