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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think they should have told me?

4 replies

Calafragalistic · 31/08/2023 22:54

Just found out today I have endometriosis. It was diagnosed in 2019. At no point was I ever told they suspected it, that my symptoms matched it, or that I had been diagnosed with it. Unfortunately as I moved from NI to England last year, they don't have any further details.

I've also been diagnosed with a prolapse today by the first doctor who has actually done a proper examination in all that time.

I don't understand why for FOUR YEARS doctors would say to my face that there was nothing wrong with me or that I had anxiety when they had this diagnosis in front of them, or, when I specifically asked as it matched all my symptoms two years ago, that I couldn't possibly have a prolapse because I had a CS.

Where do I go from here? How do I stop feeling so angry that I could have been managing these conditions for almost half a decade and instead have lost thousands of pounds from being off sick from work, and had the embarrassment of having to buy and wear adult nappies in my thirties because no one would listen that I had incontinence, and all the agony of struggling to conceive for 7 years before we finally got DC1 and no fucker would look into what was wrong, and the ridiculous pain of my period every month that left me with a co-codamol addiction in my twenties, and the weird other pains down there that sometimes feel like my ovaries are being ripped out? Why would anyone leave someone like that?

Does anyone have any sage advice to help me get over this or any advice to actually manage these conditions? The GP spent 30 minutes on my 10 minute appointment today and has referred me for a scan and requested blood tests to be absolutely sure, and I felt so bad that she'd spent so much time on this and so anxious about the internal exam due to trauma that I didn't ask her if there was anything I could actually do about either thing.

OP posts:
Calafragalistic · 31/08/2023 22:54

I've NCd because of the subject matter but penis beaker, EMIN, yoni says noni etc. I'll probably not return until tomorrow evening if the replies are slow to come in as it's almost bedtime and I can't MN at work.

OP posts:
Nagado · 01/09/2023 11:37

I’m so sorry this has happened to you. I’ve no real advice but I think I’d start with PALS. They’ll be able to tell you who to contact to complain about treatment (or lack of) in NI.

And please don’t feel bad that the dr spent extra time with you today. It’s not your fault and hopefully this is the beginning of getting it all sorted out.

makeminealargeoneagain · 01/09/2023 11:40

So sorry OP that you were so badly treated. I'd start with raising a complaint with PALS. Good luck with getting some answers xx

Calafragalistic · 01/09/2023 21:11

Thank you. Unfortunately NI is out of the remit of PALS and they have nothing equivalent as far as I can see. I don't even know if it was the GP or the hospital where I had DC1 that would have made the diagnosis.

OP posts:
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