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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

DS tells me I have used sink or swim and I'm wrong

83 replies

ASDMumof2 · 20/08/2023 09:38

Background is both kids have ASD. They're 22 and 20 and at home. I'm on my own - DH died when kids were young.
I work more than full time running a business. I look after my 84yo mum one day a week and one evening - she is unable to fet out I dont visit dye to mobility issues and I'm pretty beaten up now.

The kids ASD means my house is a wreck. My DS and I had got it into some semblence of order before my DD moved back 9m ago. Now we have no lounge - it's full of my DDs stuff and has hence become a dumping ground.

My DS room is on the top floor - I rarely go up there, but it's a mess.

My DD has 2 rooms. Her bedroom is a mess. Her second room is full and her stuff is in the hallway.

My 2 rooms are now getting filled with stuff noone else can fit in their rooms.

The boiler pump went last year - we had no central heating last winter cos I couldn't get anyone cos of the state of the house. I've booked an appointment next Friday and left strict instructions to me DD to clear her floors so we can get into her rooms and sort them out.

I got back from my mums last night and my DD had done nothing. My DS talked to me - he's very intelligent. He mentioned I didn't get him up for work (in his words I did the dirty on him) and I said, I called you when I woke up. I'd set my alarm for 8am one day to get an extra hour sleep. I reminded him that I had until then got up every day early to Di his lunch and make him a coffee, but as he hadn't eaten his lunch from the day before, I decided I'd have an extra hours sleep am I wrong? He said OK I get that, but I couldn't go to work that day.

He then said his sister had said she feels unsupported. Her rooms need sorting but I'm either working or at grandma's.

I said well you're both adults, I can't do everything for you forever. You have to sort yourselves out. We talked. I said it's sink or swim. He told me I had chosen an unsafe learning method and how it's completely wrong to set someone up for potential failure (in fact, in the analogy, it's setting someone up for the risk of death). It really upset me because he's right. I just don't know what else I can actually do.

I bought my DD a physical alarm clock cos she uses her phone to help her sleep which means it's often dead in the morning so her alarm doesn't work, but she's not using it so often sleeps until 4pm or later - she has chronic fatigue. So if I don't get her up it's on me even if I have a full day or work or I'm at a clients site, there's an expectation I should get her up. The issue she's raising is that if she's not up she can't do anything. But it's crap. She was up when I left to go to my mums yesterday but still did nothing.

My DD is completely fd up. She has anxiety like you wouldn't believe the psychiatrist put her on meds but now they're not working. I've tried taking her for hypnotherapy. She expects me to note all her medical appointments and I can't always do that. She isn't putting them in her diary.

I hate my DH for leaving me with this life.

Noone at work would suspect anything. I get stuff done, I'm highly successful and I earn a decent income. In fact I give money to my DD as shes incapable of work - she was turned down for PIP but she needs it - and i give my DS money to supplement his income. He saves like noones business so I'm OK with that. My DD spends every penny she gets.

Am I wrong to use sink or swim? If I am and I think I am, what more can I do? I am not depressed, I am though getting to the end of my tether.

OP posts:
HoppyOne · 21/08/2023 22:54

Could you get someone in to organise the house?
I have one ND small child and everything is twice as hard x10, two adult ND DC, an elderly mum and no DH is so hard for you.

Stop topping up DS’s savings and spend the money on help around the house.

ASDMumof2 · 21/08/2023 23:03

@whathaveiforgottentoday I completely agree with your suggestion to get them ready to live on tgeur own.

My DS tells me he wants to live on his own but he's under no illusion he's still a kid and tgat anyone his age who thinks they're an adult are delusional. 🤣🤣🤣

My DD did live on her own, but she wants sone time st home with me. Her BF is still on the IoM, but will eventually come and live on the mainland, so I suspect that's when she'll move out. I'm OK with them here for now but I will stop working full-time in the next few years and I def need them to be fully independent by then.

I'm so sorry your DM hasn't had the freedom she needed because of your DB. It's really sad 😞 I hope things improve for them both 💕

OP posts:
SirVixofVixHall · 21/08/2023 23:06

SuffolkBargeWoman · 20/08/2023 09:44

@ASDMumof2
The issue here is not the analogy you used, it's the completely unsustainable situation you are in right now.
I don't have any practical advice, wise MNetters will be a long shortly, but I just wanted to offer an unMNetty hug and tell you to forget about sink or swim and start thinking about how you get out of this mess.

This. It sounds really tough and you have been doing your best for a long time, while also working to support you all.

ASDMumof2 · 21/08/2023 23:13

Hi @Singleandproud I recently took her to Benidorm for a few days. The hotel had tandem scooters for hire at just €20 a day. I offered to hire one and drive it every day but she wouldn't hear if it.
I took her into a motobility shop to look around, they had some great aids, but she utterly refused.

My DSis thinks she's in denial about her mobility. I think she knows she has a big problem, but it doesn't mean she's given up hope of overcoming it. Either way the result is sadly the same. She might be 84yo but she is fiesty and knows her own mind even if she is not helping herself!

OP posts:
ASDMumof2 · 21/08/2023 23:19

@SirVixofVixHall @SuffolkBargeWoman Thank you both for thinking of me and redirecting my focus. Its very much appreciated.

OP posts:
ASDMumof2 · 21/08/2023 23:24

HoppyOne · 21/08/2023 22:54

Could you get someone in to organise the house?
I have one ND small child and everything is twice as hard x10, two adult ND DC, an elderly mum and no DH is so hard for you.

Stop topping up DS’s savings and spend the money on help around the house.

I def plan to do this. I've got the contractors details loaded on my phone so once the wealth of work is done I'll call them in. I just couldn't face calling anyone in with the house the way is was. By the end of the week I'll be ready to get help to keep on top of things.

I've even bought a robot vaccum with floor wash to keep downstairs clean since it's all hard floored. I can't wait to set that up 😄

OP posts:
Singleandproud · 22/08/2023 16:29

@ArseInTheCoOpWindow my 90 year old grandmother was the same, we live by the beach and hired her a wheelchair when she came to visit so that she could get down to the Sea, she was absolutely horrified at the indignity of it... Until she had her toes in the surf which she hadn't done for many years. Then she didn't mind being pushed around so much.

viques · 22/08/2023 17:28

OP I live the way your posts have moved on this thread. You sounded so done in your first post, but now you seem a lot more cheerful and focussed. Well done to you , and your DD who seems to really be making an effort. I hope she senses that her life will be much calmer and easier when her stuff is manageable and organised.

Flowers And well deserved Wine or Brew

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