To think this leg issue MUST be period-related?

[user74847935875]

I've had pain radiating down my thighs during cramping ever since I started menstruating. I also have endometriosis.

For the past year or so it's been getting worse. When the cramps start, so do the leg issues. When the cramps are severe, my left hip and thigh go numb and weak. At one point I lost the ability to feel that side from the waist down and ended up dragging my leg behind me, so after an abnormal neurological examination the GP sent me to hospital in an ambulance with suspected stroke. A&E ruled out stroke and referred me to neurology with suspected MS. MRI ruled out MS and I was discharged with no follow up.

I haven't had an episode as severe as that since, but every month when I start cramping my leg goes numb and weak again. I discussed it with my gynaecologist (an endo specialist) who completely dismissed me and said it couldn't be endometriosis-related as she didn't see any endometriosis growing around my nerves, and spoke to me like I was an idiot.

This month the cramps have started and an additional issue has come up - a burning/icy sensation going down my hip and thigh along with the pain. When my period stops, the issues go away.

AIBU to think this must be period-related? Does anyone else get this? I'm sick of being fobbed off. Along with the cramps and severe PMS, I'm basically incapacitated for 10-14 days each month.

Yes I do think it’s linked, there’s such a thing as sciatic endometriosis. I have adenomyoisis (sp) and osteoarthritis in my left hip, this pain gets significantly worse in the week before my period and during, as soon as I finish my period the pain more or less goes! I mentioned it to my gynea and he laughed it off, I have had to be quite forceful with him and asked him if he said I was lying? He couldn’t answer that but didn’t have any answers!

I used to get bad period pain and it would often travel in waves down to my knees. I've had a contraceptive implant put in which has massively improved my period pains and I've not had any leg pains since. So I definitely think (in my case at least) that there's a link even though I'd never heard/read of it as a symptom.

Definitely get the leg pains down the fronts on my thighs. It's so odd. Haven't had the other pains you are experiencing, but they are surely related.

I get this. Not as bad as you, but severe cramps can radiate all the way down to my knees and make my legs a bit wobbly, and often a kind of painful gripping sensation that goes all the way from the front ovary area, around and over my hip to my lower back - like I've had a vice applied to my side. I also get a kind of weak feeling in my hip joints at the front.

It would help even just to be taken seriously. Currently sitting with cramps and burning and numbness in my left hip. There's such a thing as a neuropelveologist but there's only a couple in the country, so I can't see the NHS will even entertain referring me to one. I can't work full time because of all this, so I'm just watching my career and future slip away. I'm so fed up.