Does anyone else with multiple illnesses or disabilities ever feel their health is like a house of cards?

[BarrellingAlong]

It's a whole precarious balancing act to keep everything relatively ok - and then if one thing fucks up, it effects everything and reduces your ability to function?

I've had a difficult week managing my chronic conditions with an unpleasant medical curve ball, thankfully coming out of it now since yesterday in terms of energy levels. My word though it depletes so much energy overall and is such a timesuck!

I don't work. I'm sure everyone thinks I'm so lazy but weeks like the last one really dent my already terrible confidence. But currently trying to start a very small business so I can manage my own hours.

How do you manage everything if you have a lot going on health wise?

I feel like this.
I've just had an operation to try and help one problem and another 2 problems have now flared up again! It's like an endless cycle of juggling.
I have a notebook that I keep all appointments, bullet points about what has been discussed in appointments and what the next plan is, I try and pace/prioritise as much as possible and try and make sure I get at least half a day at the weekend to catch up on sleep (I haven't got children yet!)
I hope your health improves soon.

I have several chronic conditions, one of which is life-limiting. Sometimes it seems all I do are hospital visits and trips to the chemist’s to pick up the endless drugs. It’s the drugs to keep me alive that actually make me feel the most ill at the moment. I work full time and care for DH, who is terminally ill. I’m on annual leave at the moment and am sitting on the sofa a lot, trying to get some rest while thinking about pushing the vacuum cleaner round.

I get this, hence my username.
Feel a bit guilty at the moment as it's the summer holidays and I have a child to keep happy but I feel exhausted, it's easier during term time because he's tired out at school and I get to rest in the day. A lack of routine really affects my energy levels, doing lots one day and then nothing the next is really bad for me but I don't know how else to live during the summer with a child at home. I have to burn myself out to take him out and give him good experiences, then the next day I'll need to recover and he's on the PlayStation!
Keep going