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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to think that CDP/DLA should be higher...

13 replies

Msplace · 11/07/2023 23:32

  • Where the benefit applies if the parent/carer is on a low income/cant work
  • the amount is on an individual basis to realistically reflect the actual costs it would take to cover the particular disabled child's needs and give them a reasonably comfortable life.

This would be the ideal. If you don't agree I would be interested to hear why.
This thread is off the back of being bitter that I can't give myself and my disabled child a reasonably comfortable life.

OP posts:
Nervouswreck25 · 11/07/2023 23:37

What is CDP

i think the issue with DLA is there is not enough Diff types of elements.
I as apart of the DLA group and everyone wants high rate and fight for it.
I don’t think high rate is low tbh
i think they should Separate health and sen though.

sparkiesparkle · 11/07/2023 23:54

Yes. My life has been destroyed by becoming a career to my two disabled sons. It's awful to admit it, but it's true. My ex, their father, lives a normal life with holidays etc. and no caring responsibilities. I am going to bed, yet again, knowing I will be up in the night, have to be up ear
Y and have another shit day tomorrow. Right now my whole right side is injured from my shoulder down to toes, so it's even harder. I have no family, and no chance of normal life.

BonnieGlasses · 12/07/2023 00:06

the amount is on an individual basis to realistically reflect the actual costs it would take to cover the particular disabled child's needs and give them a reasonably comfortable life.

There are already three different rates. They can't tailor the amount to each individual, it would be far too much administration which would cost money and make the process of getting the benefit longer. It would also be unfair, everyone has different ideas about what they want to use the money for and you could end up with two children with the exact same needs getting vastly different amounts because Jack's parents have written a longer list than Amy's.

Willyoujustbequiet · 12/07/2023 00:47

sparkiesparkle · 11/07/2023 23:54

Yes. My life has been destroyed by becoming a career to my two disabled sons. It's awful to admit it, but it's true. My ex, their father, lives a normal life with holidays etc. and no caring responsibilities. I am going to bed, yet again, knowing I will be up in the night, have to be up ear
Y and have another shit day tomorrow. Right now my whole right side is injured from my shoulder down to toes, so it's even harder. I have no family, and no chance of normal life.

This is me too so you have my heartfelt sympathy.

I don't understand why anyone would vote yabu OP. Until you've lived it they don't have a bloody clue

Willyoujustbequiet · 12/07/2023 00:49

Nervouswreck25 · 11/07/2023 23:37

What is CDP

i think the issue with DLA is there is not enough Diff types of elements.
I as apart of the DLA group and everyone wants high rate and fight for it.
I don’t think high rate is low tbh
i think they should Separate health and sen though.

I don't understand your health and SEN comment? SEN such as ADHD can be relentless and have a huge impact on physical health.

AutumnCrow · 12/07/2023 01:55

CDP is Child Disability Payment in Scotland which replaced DLA there.

ADP replaced PIP for adults. We're starting to hear though that it's becoming nearly as hard to get as PIP, which is concerning.

Meanwhile the National Audit Office has confirmed that the DWP underpaid benefits by over £3billion last financial year, through errors.

pocketshelled · 12/07/2023 02:06

sparkiesparkle · 11/07/2023 23:54

Yes. My life has been destroyed by becoming a career to my two disabled sons. It's awful to admit it, but it's true. My ex, their father, lives a normal life with holidays etc. and no caring responsibilities. I am going to bed, yet again, knowing I will be up in the night, have to be up ear
Y and have another shit day tomorrow. Right now my whole right side is injured from my shoulder down to toes, so it's even harder. I have no family, and no chance of normal life.

Same.

It isn't enough money. It never has been and the constant fostering of resentment by the government among the public tips a crap situation into an unhuman one.

I don't agree with making any disability related benefits means tested because we have seen the vicious shambles that has resulted in elsewhere in the system. Child cap, savings cap, single parent tax, carers earning cap, sanctions, oh and now DWP can appoint themselves untrained police and arrest you etc. Madness. Means testing doesn't keep up with real living costs and is simply employed as a stick to beat people with and keep them trapped. Disability benefits are so often a gateway to other services that are otherwise completely out of reach, that can't be taken away.

Triple the amounts.
Return all benefits processes to civil service and stop outsourcing to criminal organisations - there has been enough whistle blowing.
Backdate the covid £20 uplift for everyone on the old system who have yet to be transferred to UC (mostly disabled and carers) and stop fannying about trying to remove payment protection via weaselry. No disabled person should be worrying they will get less on a new system after years on a fixed income.
Legislate so councils etc are not allowed to refuse services to those still on the old system because their latest qualifier for assistance with equipment etc is UC despite the roll out being incomplete.
Make carer's allowance recipients government employees on living wage with proper holiday pay etc... publicly recognise in real terms the billions this army saves the nation.
Scrap the earnings cap.
Legislate maintenance in favour of children.
Scrap the age limit for carers.
Stop hounding the poorest and weakest.
Legislate charities so money reaches those it is meant for.
Legislate company pay structures so top earners are restricted to a set multiple of lowest earner and ensure tax is properly paid here to contribute to the society the money was earned from, stop letting them cut and run with all the profit - nobody below the 1% line gets to do that!
Legislate immediate resident parent access to trust funds for the disabled children of age but unable to advocate for themselves due to disability - years this has been coming and the government are still pratting about ignoring it and sanctioning disabled children removing benefits because of the savings cap including (despite inaccessible) these government started trust funds that are locked away at 18. Every healthy 18yo gets their savings, severely disabled 18yos (who probably need the money most of all) do not - how utterly disgusting and disablist. You could not make up this stuff up.

Oh and for the uninitiated - carer's are not allowed to earn more than the cost of a single physio session (because the NHS is postcode lotto) in income per week whilst on the princely sum of £76.75 carer's allowance (that's less than a pound an hour for me). For comparison job seeker's allowance is £84.80 per week, a discrepancy being addressed by the scottish government but not the UK. oh and the UK government count carers among the working not the unemployed because that makes the unemployment figures look better. When you reach pension age you lose carer's allowance regardless of carer status.

Make politician's salaries link up as a multiple of the income of people who have no choice but to depend on the state, stop allowing them to other those they are in post to represent. The more they earn, the more they must provide for their constituents - no improvement = no salary increase. In fact how about sanctions for politicians who don't deliver or who are found to have broken the law etc...

AutumnCrow · 12/07/2023 02:23

That's one of the best posts I've ever read on here, @pocketshelled

pocketshelled · 12/07/2023 02:25

I've had a long time to think about this.

vauti · 12/07/2023 05:38

Are you not getting extra money for a disabled child under UC OP? Personally I found the different rates of DLA work pretty well, and there is a premium on means-tested benefits where there is a disabled child in the family, so overall benefit income is certainly increased for families on a low income. I don't know how it works with UC but my DS is an adult now and we were on tax credits. When he got the high rate of DLA awarded our overall benefit income tripled. It was a significant increase, and I had my own PIP awarded too so our household was as good as a normal wage. It worked out for us because even though we have high care/mobility needs, it translated into certain needs which required lots of time and support but not necessarily money.

I would have hated payments on an individual basis, it would be even more intrusive than the current process, and you'd have to be justifying your spending. With PIP and DLA families need to feel free to spend the funding how they see fit, as they know their own family needs best.

And the DLA admin system is on its knees as it is, application times are longer than ever. Adding further assessment to cover individual costs would be unrealistic.

ZZpop · 12/07/2023 06:32

DLA should remain based on the child's needs and should not take parental income into account. Any extra required money should come through the UC system.
I don't understand the health/Sen comment made by a PP. They don't separate out like that.

SouthCountryGirl · 12/07/2023 07:13

And where would the extra money / staff come from?

Not all of us have the costs each week. Would I have to tell DWP how much each week I expect to spend?

x2boys · 12/07/2023 07:14

Its already quite complex my son gets the highest rates on both care and mobility
It will never be enough but I'm on various DLA Facebook groups and they do.frustrate me with people boasting they got DLA with zero evidence and then others saying they have sent tons of evidence in and being refused there seems to be no rhyme or reason .

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