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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Being my brother’s carer has ruined my life

330 replies

SimpsonWave · 22/06/2023 17:28

I just need to rant I suppose. I’m 27, my brother is 29, he has autism and his mental age is around 8 or 9 years old. Our parents had us older, in their 40s, and we lost both of them to cancer in 2016 and 2021 respectively.

When I was 18 and my parents were still well I did a gap year working abroad in Canada and fell in love with the place. I wanted to make a long-term plan to emigrate after university, but then I remembered my brother and that I couldn’t just leave him.

I’m now a qualified healthcare professional, I’ve never managed to buy, but I rent and my brother lives with me since 2021. I don’t earn enough for decent supported accommodation for him and I don’t want to either, I’d feel absolutely awful. My job is also working full-time with people like my brother, so I feel like I’m the best person to care for him. I am lucky in the sense that whilst he is mentally immature for his age, he washes, toilets and dresses himself and isn’t violent, so I am grateful for that and I know other carers have it harder. But I feel like my life revolves around him - the few months after mum died were absolutely horrific because mum was his absolute everything. It was so traumatic watching him trying to cope with that. I didn’t get chance to grieve either of my parents.

I live in the same area I grew up in, and other than that year in Canada, I’ve never really been anywhere or done anything. I have never had a relationship, I had short flings when I was younger but they never went anywhere. Since being my brother’s carer, I’ve tried dating but they all run a mile when they see I live with my brother and care for him, with no prospect of this ever changing. I don’t blame them. All I do is work and then in the evening drive my brother out to areas involving his special interests (at the moment it’s a canal a few towns over, every single fucking day) or he wouldn’t go out at all. He literally doesn’t speak to anybody other than me, he can’t. We don’t really have any other family in the UK, it’s just me and my brother.

I see women my age with partners and kids and makes me so depressed. A friend who I qualified with has recently told me she’s emigrating to Canada next year, as she will earn 3x there what she earns in the UK. She already has a rental and visa arranged in the city. It’s not one of Canada’s expensive cities, but I spent some time there myself and the quality of life is generally very nice, you’re able to get a big home for much cheaper than in the UK and you have mountains on your doorstep. Her partner is going with her, she is able to sponsor him or something I believe and they plan to settle and have kids there in a couple of years.

That would’ve been exactly my plan for my life had I not got my brother to worry about. I’ve checked several times if there’s anyway I could go on a working visa and bring my brother along but it just isn’t possible as he’ll never work. I completely understand it from Canada’s perspective as to why they wouldn’t want an immigrant who will never contribute and will cost them resources, I really do understand. It just makes me so sad and upset because if it wasn’t for my brother I could go and live that life and probably meet somebody and have a family. I wish they could at least let me bring him on the condition that he isn’t entitled to any benefits and that it would be up to me to support him. I could cope with that.

I know somebody will say “You’re life with your brother would be the same even if you did both go.” I’m well aware my situation as his carer wouldn’t change and that it’d be a massive adjustment for him. But he would settle eventually and at least I’d still have been able to do my life’s dream, just with him beside me. We’d be able to rent a house with a garden (rather than a pokey flat) in that particular city, and there’s so much beauty around there that I could take him to which would really enrich his life. We also have an auntie (on my mum’s side, she emigrated in the 90s) and cousins in a Canada-bordering US state who I keep in touch with, and we’d be just that bit closer to her to perhaps make connections with for things like Christmas etc. But it’s not going to happen.

If it weren’t for my brother, I’d be in a perfect situation to emigrate to Canada. Young, single, with a skilled medical profession. But I am tethered here with my brother. I feel really bitter and I hate myself for it because my brother is so lovely really.

I know I need to give up on Canada, because I’d have to dump my brother in supported accommodation and then fuck off leaving him with nobody and I’d kill myself before I ever did that. But I do want us to have a better life. I am thinking perhaps we could look at moving within the UK to somewhere it’d be fulfilling for me to live in. We’re currently in a drab, rough city in the Midlands and I really am so beyond sick of it. I do wonder if moving to the coast or somewhere beautiful like Buxton/The Lakes would be more fulfilling for me and my brother, or will my life be shit wherever we are? One plus is that my job is the type of job I can get anywhere as I can work in schools, hospitals, in the community.

OP posts:
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naffusername · 25/06/2023 00:11

I'm chiming in here as a Canadian.

Our social support services are overburdened, slow, and vary from province to province.

Housing is hard to find and basically the health service is falling apart (I work in healthcare so I know of what I speak).

We don't subsidize or fund half the things the UK does.

Once an autistic child turns 18 (legal age of an adult in province), the parent has to go to court to become their child's guardian. There is then very limited financial support.

Our DIL's brother is autistic, still lives at home and her father told our son that financial arrangements are in place so our son doesn't have to take him into their home. Frankly our DIL has had enough of her Mother's babying care of her brother, (refuses respite, doesnt let him work outside the home, limits his social inter actions).

Despite all the media and the "we're desperate for nurses" shouts it's not that easy to get a job. The jobs that are available are the jobs that local nurses don't want. Also, you have to be general trained, we don't recognize disability nurses or the UK's version of pediatric nurses.

I can't move back to the UK and work because my Canadian credentials aren't recognized.

The grass is always greener on the other side.

Lolalady · 25/06/2023 10:50

I really feel for you. However I have had a lot of battles with the NHS and social services and sadly if they can get out of doing anything they will! They are underfunded and overstretched. I have a very good friend in exactly the same situation as you in as much as she has a sister with the mental age of a nine year old. Both parents passed away many years ago. However the sister is in residential care in a lovely place where she is very happy and well looked after. My friend visits her and takes her out for trips. I can truly understand why you would feel bad about giving up caring for your brother but you are entitled to your own life too. All the time you are willing to sacrifice yourself for your brother social services will happily let you. Do try and seek some help which will make life happier for you both

KisstheTeapot14 · 27/06/2023 17:18

@SimpsonWave have you had any thoughts on your situation?

Really hope you can make a plan which brings the best for you and your brother.

It has been really interesting to read the experiences of people here. A dear friend here has a brother in his 50's who lives in a shared house with some care. Her mum and dad also built a little annex so he can come to stay and he is always involved in family events. Best of both worlds for all of them.

KarmaStar · 27/06/2023 18:24

Hi op 💐
You are an amazing person.
I don't have all the answers but I know your life will change when you least expect it.
Take the opportunity when it comes,rushed it may be but in the months preceding the scene will quietly be set for you to live your dream.
Do remember you are never alone,ask for help and you will be heard.
You may find that Canada is your dream,or not,but that's part of the experience of life.
Take care of yourself.This will not be your life forever.

ouse · 17/07/2023 16:11

How are you, OP?

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