Worst migraine ever

[migratethemigraine]

Been having excruciating headaches for the last few months. Been trying different drugs from the doctors and nothing has helped. He said it’s migraines and I have to find my own way to deal with it and it’s individual. But nothing is helping and it’s been the worst few months of my life. No pain relief helps when it starts. I just have to bear it until it eases off but it can be anything from hours to days. Sometimes it’s tolerable but other times I’m almost smacking my head off the wall with the pain. I just want relief but I can’t get it. I feel like I want to drill a hole into my brain to let out some pressure (obviously I’m not going to do that, but I feel like my head is like a shaken up can of pop and there’s so much pressure in it and it needs a way out.

its so sore tonight and I can’t even lie down to sleep because lying down makes it much, much worse. It feels like my head is going to burst. It’s one sided but feels like a LOT of pain and if I lie down it feels like that side of my brain is going to burst open, it’s too sore to lie down.

please, other migraine sufferers, does it get better over time? Do you have any advice of things I could try both long term and short term to stop this bloody migraine tonight? Im so miserable with this!

DD had this for nearly 6 months, and one was so bad she ended up at the GP's where she finally saw someone less dismissive. They sent her into assessment at the local hospital, and a few tests later she was diagnosed with intercranial hypertension. She said she literally felt like her brain was trying to push out of her skull.
https://www.nhs.uk/conditions/intracranial-hypertension/

Don't be fobbed off with migraines until you've had tests.

Sorry, posted too soon. She takes co-codamol with either an energy drink or normal coke as apparently the caffeine really helps - she was told this by the Consultant.

Sumatriptan the second I notice my vision blurring and developing into a blind spot that definitely isn't just a floater, before I see flashing zigzags. Then the only thing I can do is lie down in a dark room and wait :( It's hideous. The pain is unreal.

I've never taken painkillers plus sumatriptan, so thank you to the PPs who have suggested that.

Also a cold full-fat coke once the initial pain starts to go and I feel less nauseous is amazing (ideally a frozen coke). I normally hate coke.

My triggers are bright sunlight (difficult to avoid, in Australia - I wear sunglasses whenever I leave the house now, even just to put something in the bin on an overcast day etc), and like a PP, the relief of stress - often the day after a massive deadline, for example.

The caffeine speeds up the reaction rate of the medication you have taken. So it starts working quicker and if it’s in liquid form or as a spray agin they work quicker. As they get into your bloodstream quicker than if having to be broken down in tablet form in your stomach and then absorbed into blood stream

Aww OP. This used to be me. For about 3 years in a row I would get 2 to 3 migraines a week. They would b so excruciating that I too used to fantasise about drilling a hole in my head. I tried loads of things, from amitriptyline, to propranolol and loads of other things. Sumatriptan was the best thing and most effective. It would take a couple of hours to kick in, but when it did it definitely took the edge off and would stop the migraines building to a point where I'd otherwise be non stop vomiting.

On the plus side, I now only get a migraine once a month and they are also less severe when they do come. I don't know why they've significantly reduced in frequency and severity, but I am v v glad they have and hope yours do too.

It is an individual journey but there are a significant amont of drug combinations that can be perscribed including migraine specific ones passed be NICE in 2019.
You shouldn't accept being abandoned to fine your own solution although everything everyone has suggested should be tried as there is a lot of trial and error involved.
Along side that I would ask for a refaral to a hospital with a specialest pain clinic.

My son developed what I now know as chronic intractable migraines in his early teens also with cyclical vomiting . A migraine and cyclical vomiting could last for 5wks or more at a time and result in constant and lengthy hospital stays due to severity .
Too long a journey to tell all but once we reached the specialist pain clinic in GOSH we found a treatment that changed his life (Occipital nerve injections ).
It was suspected from the begining that it was all triggered by hormones . 3 years later and late teens he rarely needs treatment and is virtualy pain free. So in the end it was hormone related. Same treatment is still available to him but now at our local hosp as 18 now.
Getting to see a pain specialest is key , most GPs are shooting in the dark if its not there area of expertease.
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