To just want to cry after seeing doctor

[Soubriquet]

I’ve been in constant pain since August. I’ve been to A&E 3 times last year to try and get a handle on it.

I have symptoms 3 pages long. I’ve had numerous blood and urine tests. I’ve had an ultrasound, I’ve had a CT scan, I’ve had an MRI and it’s all clear.

I’ve been waiting since September for an endoscopy. I was supposed to be on the urgent list..heads nothing yet. He’s told me to ring them and push for it to be done quicker. Not sure what my word will do but fine I’ll do it.

I went to the doctors today (first time this year) because the pain had increased noticeably and the medications I have weren’t working.

He did his mumble bumble, gave me more blood tests to do, more urine tests to do, and then prescribed me….sunshine.

He even asked me if the wheelchair I was in, which I have a blue badge for, was necessary!

Im just so frustrated. I can’t walk properly. Literally stumble to the toilet and that’s it. I can’t do stairs. I can’t stand and cook. I have to rely on my husband as a carer.

I can’t be a mum to my kids because I’m having to be stuck in bed as it’s the only place where I get some form of comfort

I’m just stuck.

He asked me what I think it could be, and I mentioned MS and fibromyalgia.

Got told it’s extremely unlikely to be MS as no one else in my family has it, and there’s no point diagnosing fibro as the it’s a waste of my time and doesn’t benefit me.

I just want to cry now

Have they tested you for H-Pylori love I was just like you a few years ago and they said at first it was cancer then a month later and loads of tests ct scan, cameras ect they did loads more bloods and it was H pylori hope you feel better soon and that you get to the bottom of it all x

Have a read or listen to a book by Gabor Mate called "When the body says no"

Its enlightening around pain in the body and auto immune conditions.

awww I didn’t read the thread and just saw the post above mine! So glad to see others getting the word out @Rochyella84 😄😄😄

@Soubriquet that’s interesting.. I’m seeing the pain clinic next week so I will ask them and try to report back!
(Also.. sorry for jumping on your thread! You are definitely not being unreasonable to be upset.. chronic pain sucks.. I did too much today and now I’m stuck on the couch feeling rubbish. I really hope you get some answers soon. x)

I have been under a pain clinic for many years for different but concurrent problems (endometriosis, torn hip tendons that refuse to mend, lower back pain, and end-stage post-traumatic arthritis in my ankle - need a replacement). Every doctor I have seen recommends a combination of meds for severe pain - an opiate, pregabalin/gabapentin for nerve pain, paracetamol and an anti-inflammatory if you can't get by without it). So the above sounds like dubious advice to me.

I saw a new doctor recently who sceptically asked me who prescribed my crutches

Well, taking a high dose of vitamin D might be worth trying. (Not from the sun. We don't get enough reliable sun for that). Once I was really deficient in vitamin D and I had fatigue and pretty bad pain the bones of all my limbs. I had no idea it could do that. I was half wondering if I had cancer or something. Once I'd been on a high dose of vitamin D for a couple of months it went away.

Start taking b12 OP.
if you're low in B12 it can have lots of your symptoms.
Have a Google about it.

Don't quit gluten before your blood tests he's got coeliac on there and you need to be eating gluten

I'm also on both...

Just wondered if you’d been checked for Lyme disease at all? Not sure it would explain the stomach symptoms, but the Fibro / neuro type ones could be similar. Chronic pain is miserable, sucking the joy out of everything. I hope you eventually get to the bottom of it.

Oh, also maybe I can ask here, with co-codomol do you need to take a PPI with it to protect the stomach?

Maybe that doctor got his stuff mixed up, cos I felt so much better when I could take ibuprofen

This has been a family member. He finally say rheumatology after agonising months and has an autoimmune arthritis.

I think you need a new GP. Lots of love to you

We literally posted at the same time! I’m so happy for you that you found the work too! X

No advice but that really is a lot you are dealing with. Sympathy!

We literally posted at the same time! I’m so happy for you that you found this sort of work too! X

My mum has MS and there was no history of it in the family. She thinks she got it from a blow to the head as a young adult, and there’s some evidence to suggest a head injury can cause it.

How long have you been taking omeprazole?

Omeprazole stops you producing stomach acid which if you genuinely are producing too much, is great... but few people actually are. The symptoms of insufficient stomach acid are damn near the same, ditto a hiatus hernia.

Not enough stomach acid means food has not started to digest as it should, by the time it reaches your guts, and this can cause lots of abdominal discomfort/pain as your gut has to work far harder to process and shift what you've eaten.

In your shoes I would be weaning off various things to see what symptoms are actually being caused by the medication you're on, and what is actually illness.

It's not fun taking a huge bunch of pills every day (10 for breakfast 7 for dinner here plus patches, stabs and other pills as and when) and unfortunately whilst you should be able to rely on medics to tell you when something is probably a side effect not a symptom, you really can't.

I would push for referral to Rheumatology, wean off omeprazole and find out if you are producing enough stomach acid (too long on it and you won't be!) the baking soda test will tell you, and if you are producing too much you can restart omeprazole.

Have a look at functional neurological disorder, it can cause widespread pain and mobility as well as a lot more things, it has similar symptoms to ms

Ring your local private hospital and ask how much a consultation is with a specialist. I lived years in chronic pain. Never thought I could go private, finally called and it was only £120! Still a lot of money but nowhere near what I was expecting and they diagnosed me there and then and sent me back to the nhs for ongoing treatment…which took ages of course but at least I knew what was wrong!

No that’s only when you take an NSAID such as ibuprofen or Naproxen x

You need to be tested for a range of auto immune diseases. I had similar symptoms and finally saw a great GP who had me tested for a huge number of things. My tests came back with high ANA speckled, a sign of a major autoimmune disease. Since taking targeted medication, hydroxychloroquine and levothyroxine, I am much healthier. Fibromyalgia can also be a symptom of autoimmune.

On my blue badge application, I just had to give my PIP letter showing enhanced mobility component.

Hi OP, I'm disabled following my 3rd covid vaccine, I have similar symptoms and use a wheelchair most of the time. I was investigated for MS and Fibromyalgia amongst various other things, but everyone is stumped. I've also been told I should get some sun, eat more fruit, and try to worry less!
Have your symptoms coincided with a vaccine? For most people the symptoms start around a week afterwards. If so, I can recommend a great support group.
Either way, things that have helped me so far are Fexofenadine Hydrochloride (antihistamine) and Amitriptyline for the pain.

I have seropositive rheumatoid arthritis and osteoporosis, pain killers never helped me, anti inflammatories help. I’m now on biologic treatment which has been a life changer, I’m also on vitamin D and calcium amongst other meds. I don’t recognise the symptoms that you describe, sometimes it’s more difficult to get a diagnosis than the correct treatment. Ask your GP to refer you for pain management as you’re struggling with the pain.
I hope you get a diagnosis soon so that you can start some treatment that will help you.