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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to ask about supported living for young adult?

3 replies

SupportedLivingHelp · 08/05/2023 21:13

Or rather would anyone with any knowledge or experience mind reading my thread in 'Mental Health'?

It's only been a couple of days since I posted, but I think it's quite a low-traffic area.

Thank you if you have a minute or two.

https://www.mumsnet.com/talk/feeling_depressed/4800627-supported-living-for-23-year-old-son?reply=126033133

Supported Living for 23 year old son | Mumsnet

Hello, I wonder if anyone has any advice - I have been around a while, but name changed for this. My son is 23, autism diagnosis along with anxiety/d...

https://www.mumsnet.com/talk/feeling_depressed/4800627-supported-living-for-23-year-old-son?reply=126033133

OP posts:
StillMedusa · 08/05/2023 21:25

I have a similar aged (nearly 26 yr old) son with autism, anxiety etc, and it is REALLY really difficult to get any support.
My son sounds less able than yours (was special schooled etc) but does have a little local job and lives with us and could not live independently without support.

The problem lies in being not 'disabled enough' to 'qualify' and not being able enough, or too velnerable, to live independently. My son has been on some mythical waiting listsince he was 20, and frankly I don't think it will ever happen.

Friends with similar adult children have found the same. Some (wealthier ones) have clubbed together to buy a property and place 4 adults with SN together, and then fight for funding for support/ use UC and HB to help pay for support. We arne't in that position unfortunately.

Has he had a needs assessment? I'm guessing that is the first step (adult SW team)... we did years ago but have dropped off the radar.

Does he have MH support/consultants/ anyone who he sees who may be able to back up requests for assessment and support?

I wish I had something helpful or positive to suggest, but frankly it's shit and you have to fight for ANYTHING.

Fernfossil · 08/05/2023 21:54

I think it depends very much on your local authority. First stop, and most important step, would be relevant social services dept to see what’s available and how to access provision - keep pushing. My adult child lives in a private house (owned by a parent) with others, all placed by ss and care provider chosen by landlord in conjunction with ss. It’s brilliant and we’re very lucky. Care provider also has houses that they own so local provision seems good. Feel free to dm if you want more details/help

SupportedLivingHelp · 09/05/2023 13:03

Thank you both.

It has all been complicated by the fact that a lot of the time he simply won't engage with anything as he doesn't feel he needs help. Then eventually he will spiral down, declare he's a big fat failure, and ask for my help. Generally then deciding he doesn't need help... and rinse and repeat.

But I'll try and contact Adult Social Care this time.

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