To take laughing toddler to A&E?

[Hogi]

I actually don't know if I'm being unreasonable here. I guess i'm just worried.

I can't remember when it started but my toddler would have random burst of uncontrollable laughter a few times a day for seemly no reason. Nothing was funny and it usually gets a bit worse when he's going to sleep or waking up but we just thought it was a quirk of his because he does have a genetic condition and probably is on the spectrum so we just kind of ignored it because laughing can't be bad?

Over the last 24 hours it's been relentless, it's happening more than it ever has and it kept him awake - it was short bursts of laughter for over an hour and he was getting really agitated.

I googled it and it's saying it maybe something called gelastic seizures - it's rare (but so is he's genetic condition) and the history and his symptoms seem to fit what's happening.

He's again having a few attacks this morning and obviously the doctors aren't open but I'm thinking if a 2 year old is potentially having seizures then maybe we should get him checked out?

I don't know really I don't think he can wait a few days with this going on as it's really affecting him (more than it usually does).

Hi OP, you’ve both been in my thoughts all day. I have a young family member who suffers with epilepsy, started off as absence seizures, fits of giggling, which were actually distressing but so hard to recognise at first, so please be kind to yourself.

Please consider reaching out to epilepsy action, they’re great and have many families who will share experiences and offer guidance and support xx

https://www.epilepsy.org.uk/

I'd take him. X

Not read the thread then?

@Ducatifan I did afterwards but just wanted to comment first, I don't know why you are so f ing concerned about what I have done, I never said anything Nasty and it not even your f ing thread to get that concerned about

how are you doing tonight?

We're back in hospital - he had another cluster back to back for 25 minutes.

They're stopping him sleeping or staying asleep. We can't carry on like this

@Hogi oh no sorry to hear that. However I'm glad your back in the right place. Have they got any plan for stopping them?

They're admitting him again and hoping to get an emergency EEG because until they know what's the cause of them, they can't do anything.

They've said that's more important than the MRI right now but after our neuro ped saw my video today he was concerned and requested the MRI.

It's all so worrying :(

My DH is going to stay with him tonight as I stayed last night (he prefers DH, little buggar haha)

Hope you get some answers soon

That's pretty tough, poor little boy, hard for you too.

Hopefully they'll get the tests done asap 🤞

@Hogi I'm glad you have someone to take turns with you- staying in the hospital is hard. I hope you manage to get some sleep at home

I'm sorry you've had a roller coaster of a day
He is in the right place and I'm sure they will carry out every test necessary for a diagnosis before you leave now
I hope you can get some rest tonight

Well he’s in the right place , hope you manage to get some rest and tomorrow brings some answers 💐

Hope you’re getting some sleep OP, what a worrying few days

It's rude and needs to be bannable offence. You don't have to read whole thread, just Op posts to get latest update

@Hogi It is really difficult when they have a rare disease
My family has GEFS+ which basically means complex febrile convulsions past the age of 5 on the mild end and Dravets syndrome at the extreme end.
My family has a history of this at least going back to my Grandmother born in 1912 but I have had doctors telling me my Mum and Sister couldn't possible have had febrile convulsions at 10. Thankfully someone finally discovered the genetics this century, so when DS had his last FC at 13 , he had another EEG (sleep deprived) and an MRI and we were given diagnosis of GEFS+
He is 27 now, with no further FC , he had over 20 and DD had 4 at the age of 3.
Hopefully they will get to the bottom of your DS problems.

@Hogi how was his night?

My husband finally got him to sleep at 2 and he's still fast asleep with no more episodes which is great but I'm hoping they can still get the emergency EEG because we can't keep going up to hospital every night.

I mean I will if we have to but we have another baby and it's all getting a bit difficult and he's not getting the rest he needs.

Since Monday morning I've taken 22 videos of separate episodes. We recorded him before bed over a 20 minute span and there's 4 minutes of him laughing (intermittently) which was preventing him going to sleep.

Somethings going on and I really hope they can help us today. It seems to be increasing whatever they are. We can't wait 2-3 weeks or we're gonna be in hospital everyday.

You must all be exhausted. I hope they come up with a plan this morning

I really hope they get to the bottom of this quickly and he gets the help he needs. Poor little guy.

You're in the right place and you are all doing a great job. You must all be so so tired. 🌺🌷💐

Did they give any medication to stop the clustering? Sounds like maybe midazolam would help to break the cycle.

We found that the problem is that whilst A&E are brilliant, they are reluctant to prescribe epilepsy related drugs. We had to wait for our epilepsy nurse to come in and then she prescribed a recovery drug. A&E just observed.

No, until we have the EEG they won't do anything.

We're on a ward now for overnight observations.