I’ll give a quick rundown - in October last year I had a sudden onset stabbing head pain with extreme fear, pacing, lip smacking, panic. I went to hospital and was triaged for a suspected brain bleed. My Ct and lumbar both came back clear.
Once I’d had clear results I continued having these intense feelings where I’d have about a minute of deja vu “it’s about to happen” and then very intense feelings of panic, pacing, chewing my lips, strange body movements. From October to February my GPs diagnosed anxiety and panic attacks and treated me as such. The ‘episodes’ continued happening until I demanded a neurology consult.
since then I have been diagnosed with temporal lobe epilepsy. I’m currently on 1000mg Keppra daily.
it’s not working. I had a cluster of seizures this morning and whilst I am conscious throughout them they are so horrifying to go through. They knock me for 6 every time, I truly feel like I’m about to die.
every time I speak to my consultant he just raises my meds again. But I’m a single parent and I constantly terrified I’m going to die in my sleep due to this being uncontrolled and my daughter will find me.
How do I speak to my consultant to get this under control?