Psoriasis can go fuck itself

[Fuckofpsoriasis]

Seen similar posts on here and just wanted to make my own

I have psoriasis and im so fucked off with it. But I’m more annoyed at other people’s reaction to it. I’m fed-fucking-up of being told I need to use moisturiser (yes, unsurprisingly I’ve considered using sudocrem and e45) or that my skin ‘looks dry’. No kidding it looks bad, my immune system is literally fucking attacking it. And no, I don’t think Nivea moisturiser will fix it even though it fixed your dry skin over night blah blah blah. I’m not even asking for suggestions, im just minding my business and these are well intended but unwanted opinions I’ve had from colleagues, friends, strangers, family etc just from looking at how obviously bad my skin is.

also I have to really bite my tongue when people say ‘oh I have psoriasis!’ Just because they have a bit of dry skin. It is NOT just dry skin. It’s a fucking autoimmune disorder and an awful one at that

sorry to sound so bitter I just needed to get this off my chest. I’m in my early 20s and lying awake yet again because the majority of my skin is a mess and my joints are excruciating because my psoriasis is attacking my joints now. My knees are in a horrendous state and I’m not even 25 yet and they’re so sore I’ve been up all night crying yet again

im just so tired and fed up with it all. Why can’t my immune system just get a fucking grip of itself

I feel your pain! I have so many patches of psoriasis they start joining up. It's all over my scalp so look like I have dandruff too. I have hypermobile joints too and I'm menopausal so my skeleton feels like it's jelly and I'm fed up using creams too

It runs right through my family. It’s so debilitating.

When I was 15yo I was covered head to toe with it. I literally looked like a cheese pizza & the inside of an orange peel. That’s the only way I can describe it. Ruined my life & nothing was working. I do not recommend it but the only thing that worked for me was Sun beds. I regret that massively now but I was a young teenager getting comments daily about my psoriasis so I was willing to try anything. I had to be kept off school for months because of it.

After years of trial & error with creams I’ve managed to get mine under control with a cream (I’ll dig the cream out & update the name) & using DiproBase every day as a moisturiser.

It’s really not a nice condition to have. You have my sympathies. It runs so much deeper than just a few scabs. It affects your mental health & confidence too, not to mention other symptoms of having psoriasis & it’s really bloody painful as well! I hope the doctor can refer you to a good dermatologist if they haven’t already.

Good Luck & please try not to let it get you down. Easier said than done. Sorry I don’t have better advice. It’s just a terrible condition to have. Xx

I hear you and you have my sympathy. I have a very slight case but mine has affected my nails . I’m not sure if this would help you in anyway or if it’s even anything you would want to try but fasting is worth a go . I do the 5.2 intermittent fasting . I think it has helped my nails a bit . The fasting slows down cell turnover as everything then stops and repairs itself . As you know psoriasis is excessive skin turnover and it may help or it may not . Best of luck with your condition and I’m hoping that one day scientists can actually find a treatment that can actually work, Take care xx

Fellow suffer too, palmar and plantar psoriasis so bad a couple of years ago I could barely walk. Sunlight works brilliantly on mine too.

You have my sympathy as a family member has this. Sounds like you also have psoriatic arthritis. Are you under a rheumatologist?

I get you OP. I posted a thread recently about my struggle too! My latest irritance at work yesterday - my manager telling me to stop itching, as it will apparently make it worse. Ah yeah cheers mate, you've really resolved this issue there. Also a comment on the patches on the back of my neck - 'ah they're not as angrily red as they were the other day!'

I've inherited very dry flaky skin pretty much everywhere but inner creases of elbows, knees, plus eczema on hands and face. I see a dermatologist from time to time for prescription medication. I've had the same; people who think if I would just try [insert cream brand name] my skin would magically cure itself. It's only because I never thought to try that particular cream/am lazy, obviously, that my skin is so flaky. "Have you tried......?"

I'm seriously going to insist on normal skin in my next reincarnation, just so I can try a life without constant maintenance of skin and inability to wear clothes like a normal person w/o self-consciousness. See how far I could have gone in this life if I'd had normal skin.

Om so sorry. My husband, at his worst has been hospitalised twice with psoriasis due to 90% plaque literally suffocating him. Hooked up to fluids and antibiotics and bleeding from the cracking.

He is now on his 2nd load of biological injections, the first type kept it at bay for 2 years. I so hope that these new ones work more permanently. They are really helping with the joint pain as a bonus. He takes them each month and has check ups as his liver is affected from the injection.

I have no advice, only masses of sympathy for you. The biologicals have been life changing for him, is this something you can push for?

The ONLY thing that worked for my husband is blending and drinking fresh celery juice every morning. If you look at the instagram page - Medical medium, you will see all the information there on how it can help with so many things. Sounds like a fad, but it honestly isn’t. Good luck as I know how much it bothered him too.

I follow medical news about any possible breakthroughs in this area and I get really frustrated that it’s so slow. The immune system is haywire and needs to be righted somehow. Instead of treating the symptoms it is the cause that needs treated. Three possible routes of doing this that I think sound promising. One is stimulating the vagus nerve. One is epidural injections of lidocaine which seems to stimulate remission. And also Dundee university found a vaccine - something to do with cucumber mosaic virus. But any progress on any of these are frustratingly slow. Also there is a cream available in the US called tapinarof which sounds amazing. I keep checking to see if it’s available in UK yet not sure why not.

I second a pp- are you under a rheumatologist? If so can you phone a nurses helpline and explain about your joints? Could be psoriatic arthritis- I have this so sympathies. There’s a really good uk psa face book group.

I feel your pain. I used to have bad excema and the only thing that helped was Betnovate, a prescription only steroid cream. Yet lots of people thought they could “fix” my skin by suggesting things like e45 cream. Of course I had tried all the he creams you can buy at the chemist! Nothing worked because it wasn’t just a case of a patch of dry skin 🙄
I guess they mean well but it is irritating.

I'm sorry, it is so shit and people say such stupid things. I don't have psoriasis myself but my young child does and it's rubbish.

This sounds like psoriatic arthritis OP, there are a lot of drug therapies to help with this, from methotrexate to biologic injections. I would highlight your joint pain to your GP immediately and request rheumatology referral urgently. I'd start thinking holistically about it too, possibly fodmap diet, fasting, vitamin protocols inc joint care supplements. I hope you get help, I understand how worn down you must feel. Kim Kardashian was diagnosed last year btw.

I am really sorry to read this. My husband has really bad psoriasis and was hospitalised with it last year it was that bad.

Are you receiving any treatment for it? He had tried light treatment and what feels like every steroid, ointment and moisturiser you can imagine. It is now under control with Ciclosporin tablets but he has to be constantly monitored for liver issues as a result.

I don’t have first hand experience but know through my husband just how bad it is and how terrible the comments from others can make you feel ❤️

My sympathies. It runs in my family. My gran had it on her heels and it was agony for her to walk. she'd wear open back shoes in the middle of winter and I remember even as a kid the stares she'd get in the street. My mum has had a lifetime of it and has been hospitalised twice. I know the agony she went through and so can understand your pain and frustration. she's in her 80s now, she still has it but so much less than when she was younger. It eased off when she retired, and the family has witnessed the direct link between stress and a flare up of the psoriasis. So I know it's easy to say and sorry if it's vacuous but go easy on yourself and try not to stress out, and ignore the dopes who think that a dod of cream is going to cure it. ❤